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What should I be asking the neurologist?

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Old 05-22-2014, 05:41 PM #51
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Oh please dont feel sorry. There are people far worse off than myself. Stuff is being documented as well. Todays been good and no episodes so far. Yet again Ive been laying down resting all day after yesterdays events.

How accurate are these eegs in terms of telling us if I am having seizures? Wouldnt I actually need to have one during the test. Just worried it will come back completely normal and they think im nuts or something.
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Old 05-23-2014, 07:47 AM #52
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So glad you had a good day!

I am not sure about a eeg if it is done on a short term basis... My nephew was overnight for his first one and a weekend for his second... do you know how long it will be?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 05-23-2014, 08:02 AM #53
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No clue to be honest. But I really do not want to stay overnight anywhere when I have a 2 month old
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Old 05-23-2014, 08:20 AM #54
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I completely understand...

Do you notice that this happens more when you stress yourself? If so, is it possible to stress yourself so you are sure that they get it on the scan? I know that sounds horrible but I really want it to be a successful scan for you!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 05-23-2014, 08:39 AM #55
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Its more so when my blood gets flowing. Like physical activity. Stress seems to just really build the pressure in my head.
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Old 05-23-2014, 08:51 AM #56
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Maybe go walk a mile before you go in then... that way the eeg is not a waste of your time... I know... sounds horrible but might makes the most sense... or call the doc and tell him that is what brings it on and they may have you do it on a treadmill...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 05-23-2014, 10:50 AM #57
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Well this stinks. I was always an avid gamer. The gym and video games have always been my only hobbies. Obv cant do the gym now but evidently no video games either. Just loaded one up and had to turn it off after 25 minutes. I just got really dizzy weird feeling and started vomitting. What the heck could be causing that?!
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Old 05-23-2014, 10:53 AM #58
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Quote:
Originally Posted by kevbo887 View Post
Well this stinks. I was always an avid gamer. The gym and video games have always been my only hobbies. Obv cant do the gym now but evidently no video games either. Just loaded one up and had to turn it off after 25 minutes. I just got really dizzy weird feeling and started vomitting. What the heck could be causing that?!
Right now, it's just way too much visual and cognitive stimulation.

In the immediate aftermath of my accident, I couldn't even handle the lights and muzak at the mall.
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Old 05-23-2014, 10:57 AM #59
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I feel like complete crap right now. So foggy and cant get rid of this urge to puke.
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Old 05-23-2014, 11:04 AM #60
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Quote:
Originally Posted by kevbo887 View Post
I feel like complete crap right now. So foggy and cant get rid of this urge to puke.
Yes, the video games were too much for you - and, now, you're paying the price. Find a nice, quiet spot and try to rest.

I know you're frustrated.
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