FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
Reply |
|
Thread Tools | Display Modes |
05-18-2014, 12:51 PM | #1 | ||
|
|||
Junior Member
|
Hi again,
I am leaving to go to my Mother's home (mother is posting this since I can't use computer) in 2 weeks. With my acute symptoms of headaches, dizziness, and nausea, I anticipate a difficult trip with exacerbated symptoms lasting for many weeks or even months afterward. We are considering doing this by air ambulance since doing it commercially would be just too difficult. My question is whether it is dangerous to my brain to ask the medical staff to sedate me during the trip so I can sleep. Also, whether anti-nausea medication like Dramamine or even something stronger would do anything to hurt my brain. After my horrible experiences with Prednisone and Topamax, I am very cautious about using drugs for any reason. Prednisone and Topamax caused my brain long lasting harm and I don't want that to happen again. Joe |
||
Reply With Quote |
05-18-2014, 01:05 PM | #2 | |||
|
||||
Member
|
I would double check with a pharmacist.. but I suspect that xnax and zofran would be ok together
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
|||
Reply With Quote |
"Thanks for this!" says: | Joe in LA (05-19-2014) |
05-19-2014, 09:57 AM | #3 | |||
|
||||
Member
|
Joe,
I feel for you. Okay, last year we drove 5 hours and I slept three. I had bad vertigo and nausea for 5 days. I had Xanax and Zofran (nausea med for cancer patients generic is ondansetron). Xanax was the generic form:alprazolam .25mg. The ondansetron was 8mg. Insurance did not like to cover the ondansetron but my nausea was so intense I wasn't eating. Now I will get it filled at Costco and pay for it myself. I am calling today for the price. Dr. Hain, my otologist in Chicago said they get it there cheap. I did not rely on my meds enough during that drive. I though sleeping would be enough. On the way home I did and it did help. Prednisone made me eat, that's it. Topamax didn't do anything for me. I took the ondansetron for a year and did not bother my brain. I take it when I have extreme nausea now. I always take the smallest dose of Xanax for my panic attacks and use ice and pillow and blackest to help sooth me. Commercial flights just the thought of it is frightening. A calm, controlled as ossicle environment sounds much better. You can make them aware of your issues and needs. How long r u staying with your mom Joe? If you would like snail mail let me know. Pm me. I've been sending short notes lately to work on my writing. I can send you pictures. Peace and wellness, Jace
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
|||
Reply With Quote |
"Thanks for this!" says: | Joe in LA (05-19-2014) |
05-19-2014, 11:09 AM | #4 | ||
|
|||
Junior Member
|
Thanks, Jace.
It sounds like your TBI and mine are pretty different! I will be staying with my mother as long as it takes. I am giving up my apartment in Los Angeles since I am unable to work or even take care of myself and will depend on my mother as caregiver until things change. Joe |
||
Reply With Quote |
05-19-2014, 11:28 AM | #5 | ||
|
|||
Member
|
Hi Joe,
Much luck on the voyage to your mom's house. My boyfriend cared for me a great deal and still helps me out a lot and the accident I was in was almost 4 years ago... most people heal much sooner, and I pray for a faster healing for you too. |
||
Reply With Quote |
"Thanks for this!" says: | Joe in LA (05-19-2014) |
05-19-2014, 11:55 AM | #6 | |||
|
||||
Member
|
Joe,
Great idea staying with your mom. My mom and hubby were my caretakers for the first year. Now just my hubby. I'd be lost without him. Daily life at home is still hard. Care taking is hard. Make sure your mom has someone to talk to. Plus she still needs to do for herself. I'm a teacher too. After my neuropsych testing I was told I would not be going back to teaching, or driving. Not ready to believe that though. Hope is a powerful emotion. Good luck to you Joe.
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
|||
Reply With Quote |
"Thanks for this!" says: | Joe in LA (05-19-2014) |
05-21-2014, 05:33 AM | #7 | ||
|
|||
Junior Member
|
I went to my PCP Monday and got a supply of ondansetron. He offered Ativan but I felt that was too strong a drug for my fragile brain and did not take it. Thanks for all your suggestions. I did take Meclizine to help me get to the doctor in a wheel chair and car and I did not have any nausea for 24 hours after taking it . So that will be the drug I will take an hour before going to the airport. The doctor thought I should go commercial since the $30,000 for air ambulance was overkill for my condition. So that is what we will try to do. Hoping all the noise and confusion does not fry my brain.
|
||
Reply With Quote |
05-21-2014, 07:45 AM | #8 | |||
|
||||
Member
|
Hi Joe,
Well $30,000 is a huge amount. Sorry it's so expensive. Good job on the ondansetron. Around four months out I started vestibular therapy. I couldn't walk, ride in a car, look at anything moving...it helped me, didn't heal me, but helped. A visit to an otologist may be a good idea. The vestibular system is very delicate and can become damage easily with life changing effects. Good luck to you. Keep us posted! Peace and wellness, Jace
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
looking back at the first drugs I used by RX for nausea from Sinmet- Domperidone! | Parkinson's Disease | |||
Anti Nausea medicines... a question | Reflex Sympathetic Dystrophy (RSD and CRPS) |