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Old 05-22-2014, 09:25 AM #31
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Has anyone dealt with the loss hunger? I have no hunger at all since Friday I force myself to eat.
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Old 05-22-2014, 09:54 AM #32
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Hi,

Your posts are so familiar to my earlier months.

I lost my appetite for about 6 months. Ate only to survive basically. I did have certain cravings at times though. First four months my body only wanted sweets if I ate. Not candy, but bakery items, pancakes, waffles. I don't eat that stuff so it was very bizzare for my family and me. Mostly I didn't eat.

Carry peace with you in some form knowing there are many of us here, like you, that understand.

My husband does next to everything. He's a solid, good, loving man. It's not easy for him, but he understands and makes our lives about what works for us now and goes to any length to enjoy life.

I couldn't do hardly anything in the beginning. I slept 80-90% of the first 100 days. That's what my brain desired. Everything is dictated by my brain.

Peace and wellness,

Jace
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.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 05-22-2014, 10:07 AM #33
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It's crazy you said that craved and ate pancakes last night. But I never actually got hungry. I'm so bored and miserable!
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Old 05-23-2014, 07:43 AM #34
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I would ask about the clear fluid.. could be something more than the ruptured ear drum

As for appetite.. I have been the opposite... I have gained 40 lbs since January...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 05-23-2014, 09:14 AM #35
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Workers comp claim nurse just implied by phone that she thinks my symptoms are being exaggerated!

WTH?
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Old 05-23-2014, 09:38 AM #36
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Quote:
Originally Posted by Dewitt2619 View Post
Workers comp claim nurse just implied by phone that she thinks my symptoms are being exaggerated!

WTH?
Ignore the witch: it's WC's job to screw you over.

From just the few incidents you've described, any unbiased person can tell you're in medical distress. If anything, what I'm hearing from you is a tendency to minimize and/or doubt obvious - and serious - symptoms of TBI

As I said earlier, you will have to advocate for yourself. It's so obscenely unfair, but it's the way it is.
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Old 05-23-2014, 11:44 AM #37
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At this point my lawyer has stopped all communication with WC. I will no longer communicate with them. Now if only I could get a good doctor.
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Old 05-23-2014, 11:57 AM #38
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Quote:
At this point my lawyer has stopped all communication with WC. I will no longer communicate with them. Now if only I could get a good doctor.
Your lawyer might well recommend a doc.
Last edited by Chemar; 05-25-2014 at 01:06 PM. Reason: name edit for privacy
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Old 05-23-2014, 12:39 PM #39
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Just got notification from my lawyer of a appointment tomorrow 25 miles away at a carespot. Praying it goes better than Tuesday did.
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Old 05-23-2014, 03:18 PM #40
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I am happy you have a new doctor! I really hope that this person listens to you!!

I am so sorry you are having to go through this... WC just stinks!! Sorry!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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