Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-06-2014, 11:37 AM #71
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I totally agree but is one less stress sort of. The disability Ipaid for through work made me apply and appeal and is now hounding me to get the lump sum payment because they want most if not all of it...will be happy when I get them all off my back for a while.

QUOTE=Hockey;1073996]Not that anyone wants to be disabled, but congrats on your SSD approval.[/QUOTE]
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Old 06-06-2014, 12:35 PM #72
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Quote:
Originally Posted by LauraM View Post
I totally agree but is one less stress sort of. The disability Ipaid for through work made me apply and appeal and is now hounding me to get the lump sum payment because they want most if not all of it...will be happy when I get them all off my back for a while.

QUOTE=Hockey;1073996]Not that anyone wants to be disabled, but congrats on your SSD approval.
[/QUOTE]

Yes, I get that. You probably feel a lot like I did when I "won" my MVA litigation.
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Old 06-07-2014, 11:24 AM #73
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You got that.......we could all use one less stress. maybe more
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Old 06-07-2014, 02:31 PM #74
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LauraM,

Congrats on your SSD acceptance. What a load off your shoulders.

I'm getting ready to apply. Seems like a mountain of work!

Jace
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.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 06-09-2014, 05:10 AM #75
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Audio books and dark rooms. I found that house management/cleaning helps and fills the day. Going for 2 long walks every day helps too, especially if at dusk or slightly after sunset so that its not bright.

I don't bring my wallet, just in case...
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Old 06-10-2014, 09:55 AM #76
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Yup, its miserable sometimes. I really need to go to Walmart and Costcos to pick up stuff for the house, but I just cant. Both are close enough to where I can HOPEFULLY safely make it there, but the way my driving has been, its not worth it to endanger anyone. Thats the other thing, if I were to go, I probably could not handle all the bright lights and stimulation from other shoppers. Had difficulty at the grocery store thats 2 minutes away with my wife the other day. Its annoying.

Oh well, im hoping soon someone can bring me there, just so I can get out for a little bit. Its sad that I looked forward to going to the Dr and the therapist just to get out.
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Old 06-10-2014, 08:03 PM #77
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Oh my! Waiting on everyone else to take me somewhere makes me feel like a burden. On days I feel like getting out it all depends on if someone is available. I'm not one to be dependent. I've always been the giver.

Really, really feel bad that people are putting so much energy into me. I never wanted to be in this spot.

I do shop for some household things on amazon or walmart. I set aside quiet time and use my iPad. Keep it quick. Free shipping right to my door. I even ordered a46lb bag of dog food and the delivery man put it inside the front door for me. ☺️

I'm still trying to come up with more ideas for us all

The chat is set up. We could all have some real time conversations soon!
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 06-10-2014, 09:21 PM #78
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Oh! I know this is going to sound silly, but coloring books.
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
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