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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-22-2014, 10:31 AM | #1 | |||
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Good morning all,
I am home all day by myself because I can't drive. Everyone I know works. I still have a hard time out with all the movement and sounds so I am selective and use glasses and ear plugs when I go out. Reading books and tv are out for me. We are still getting organized from moving so my jewelry stuff isn't out. I don't cook alone. I pick stuff up around the house 10 min at a time but who wants to clean everyday all day. I sit on the patio, pace, try games to help my motor skills. I just started that. have to find ones that aren't so busy and things moving. I have the animals, but they are lazy and sleep all day. In our other house my husband put up a 96" screen and projector. He ran the wires for sound system. We loved watching movies and had an amazing family room. We don't have the screen and projector here. The tvs are hardly on. Music either. Upstairs was my space. No tv. My music on all the time. Not sure what I'm going to do with myself this summer. Some days are strikingly lonely. If I lived by the water I'd sit on the edge and soak my feet all day long. I miss my work and the interactions all day long. I have become old in my 40s. I sit on the couch and watch EVERYTHING outside. I do take short walks but I'm cautious because my vertigo can be unpredictable. I don't have a back up besides calling 911 if things go wrong. Anyone else in my spot. What do you do all day til your family gets home
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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05-22-2014, 10:42 AM | #2 | ||
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I'm currently stuck at home all day. I'm so bored, I feel useless, I feel like less of a man. I sit/lay around. Small walks in my yard. But I'm in the same position as you.
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05-22-2014, 12:16 PM | #3 | |||
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Magnate
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Been there, done that, it sucked - but don't lose heart.
I am - finally - allowed to drive a little. If I can make it back, there is hope for pretty much everyone. After my MVA, the neurologist declared that I'd NEVER drive, again. We were even going to sell our second vehicle. Thankfully, my PT encouraged me not to give up. The PT worked really hard on improving my physical skills, while the occupational therapist suggested modifications to the car (like a captain's arm rest), the cognitive therapist worked on my concentration and my GP used medication to get my seizures under control. I even worked with a driving instructor to help get over my MVA-related PTSD. I can't drive in heavy traffic, or for long distances, but I am so thankful for what I can do. Don't give up, friends. |
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05-22-2014, 12:25 PM | #4 | ||
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Junior Member
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I do drive, but I don't if I don't have to.
What do I do all day? I spend a lot of time on my back patio, watching the birds and drinking coffee. I don't usually feel like doing much else. Probably not much of a help. Sorry. |
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"Thanks for this!" says: | Living_Dazed (05-22-2014) |
05-22-2014, 12:29 PM | #5 | |||
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Magnate
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Birds and coffee... sound a lot like my day.
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05-22-2014, 12:35 PM | #6 | |||
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Member
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Hockey,
It must be nice to have some independence back. Wow, that's great. Do you have damage to your vestibular nerves? The nerve that controls my vision is damaged. I was just told I wouldn't drive again. It would be great to hear of someone's vision improving enough to drive! Even if I could only drive in my town I'd be thrilled. We are in the process of selling our second car. It's a sedan and I can't stomach my family being in it. I was in an SUV when the accident happened. If I was in the car it would have been much worse. When the rest of North America drives sedans then we can be in a sedan. Until then, I just can't. Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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"Thanks for this!" says: | Theta Z (05-30-2014) |
05-22-2014, 12:42 PM | #7 | |||
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Member
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Hi mynewreality,
I did that several times today. Substitute coffee with turkey and tomato sandwich. I just got a picture book on North American birds. Problem for me is I can't track them to see exactly what they are. So...it goes. Hawk. Seagull. Geese. Crane. Song Bird. Fast bird. High in the sky bird. Sadly sometimes on my walks, dead bird, Oh! It's a brown finch! I hope you have a good view on your patio. You could get really wild and drink flavored tea. Be careful with that. Peace and wellness, Jace
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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"Thanks for this!" says: | MyNewReality (05-22-2014) |
05-22-2014, 03:53 PM | #8 | |||
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Magnate
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Quote:
I owe my life to a high quality SUV, as well. Even the cops told my husband, I would have been killed in a car. |
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"Thanks for this!" says: | Living_Dazed (05-26-2014) |
05-23-2014, 10:34 PM | #9 | ||
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Member
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I find having something to look forward to helps.
During the winter I go across the street twice a week to watch t.v. with an elderly couple. I really enjoy it. My brother invited me to Bermuda for 2 weeks and I really enjoyed it. I get some satisfaction from baking. The worst part is the isolation, I am sitting home tonight, my headache is particularly bad and all I can really do is go to bed. My daughter may take me camping this summer. I really hate the lack of independence. I can't drive very far, I can't lift anything heavy, so I have to depend on others if I want to go somewhere. I must admit one of my new goals is to create some type of social life for me. Before the accident I was thinking about dating, but now I am so limited I can't image dating. No movies, no crowded places, no loud places, can't walk too far but I can still talk..... It is a huge adjustment and not easy, but we are not alone, there are a lot of us making the same adjustment.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues. Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest..... |
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"Thanks for this!" says: | Hockey (05-24-2014), Living_Dazed (05-24-2014) |
06-09-2014, 05:10 AM | #10 | |||
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Junior Member
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Audio books and dark rooms. I found that house management/cleaning helps and fills the day. Going for 2 long walks every day helps too, especially if at dusk or slightly after sunset so that its not bright.
I don't bring my wallet, just in case... |
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"Thanks for this!" says: | Living_Dazed (06-10-2014) |
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