EEG's are not the best testing machine. Sometimes it takes 3 or more EEG tests to determine wether someone is having a seizure or has epilepsy. You may just need another test.

You need to be open and honest with your Dr. If you don't trust your Dr. to give you the proper care that you deserve you should look for another one.

I assume you have an attorney? What does your attorney say about it?

http://www.epilepsymatters.com/engli...iagnosing.html

"How accurate is the EEG test?

The EEG is not foolproof. It can only measure abnormal electrical activity that occurs during the test period. Sometimes, the brain of the person with epilepsy functions perfectly normally during the test. Or the electric patterns that the device is looking for happen too deep in the brain to be picked up by the scalp electrodes of the EEG. When the EEG doesn't find anything unusual, it is common for the patient to get a continuous, 24-hour EEG monitoring in hospital. About 20% of people with epilepsy have normal EEGs, and a small percentage who don't have epilepsy have abnormal ones!"


Other related info:

http://www.webmd.com/epilepsy/electr...g-21508?page=4

Do either of you have a cell phone with video recording capabilities ? It would be good to document this to show the doctor. Also, have your wife explain what she saw to the doctor.

The fact that you were aware of what was happening means these were not true seizures.

Have you been exposed to any chemicals like herbicides or insecticides ?

Negative on being exposed.

Also i remember some but not all of it it makes a difference.

What could this be??

Hi Kevbo887,

I know how frustrating it can be to have experienced seizure-like activity and still get negative results on an EEG (3 in fact for me). My last Neurologist told me I had absolutely no seizures, and I should stop using the term altogether. This was after a 72-hr. continuous monitoring, where my rehab team actually got video of my events to conincide with the EEG.

All I know is that the Neuro. refused to make any diagnosis of what these are, and even intimated that I was suffering from stress and possibly PTSD brought on by my father's wartime experiences(?!!!). My father died when I was 9 years old, and NEVER shared his wartime experiences with me!!! Talk about REACHING!!!

Thank God I have such a good Neuropsychologist, who just isn't satisfied with no diagnosis. And she sent me back to my primary care physician to do a whole work up on all other organs / systems in my body that can possbly be responsible for seizures, other than the brain. All tests came back negative for abnormal function which could be responsble for them.

So, off to an Epilepsy Center I go. I will be grateful to get some answers and help to make these finally stop. I still expereince them 2-4 or more times a week. I hope you get to go right to an Epilepsy center so you don't have to go through what I have to get answers.(4 Neurologists and 3 EEGS).

I know that this sounds like I'm looking for someone to give me answers I want, and in part that's true. But I will accept the RIGHT answer ( true seizures vs. psychogenic seizures ) as long as I can get them to finally stop. It has been a long time ( over a year ) since these things started, and they can be severe enough to go to the ER by ambulance.

Good luck to you. Please try to get some rest from worrying about these too much. Also, I am concerned about your multiple head bumps since you began here on this site. You should go back to your physician right away and report them. Take care,
M-i-m

Well finally after two weeks of me calling and trying to talk to the Dr, im finally going back. My wife had enough after last nights incident and called them this morning, and now low and behold ill be seen early next week. She is going to be there as well to inform them whats going on from her perspective, as shes been there for around 90% of all of these things.

I was on another health board that I frequent for hypopituitarism and someone mentioned that they recently were diagnosed because they were having "non-epileptic seizures" (or psycho-somatic seizures) in the ER and it was determined by a savvy endocrinologist just before being discharged that she was experiencing the seizures due to low cortisol.

I wasn't able to find too much about it other than these two some-what relative articles:

A PHD explaining some causes of seizures in her "practice" (I'm not exactly sure what her practice entails, she is not a medical Dr.) but it might be worth further investigation for you...

http://www.wnho.net/seizures-convulsions.pdf

And this:

"When the sodium level drops too low patients may get quite sick and have seizures."

from page 13 of this:
http://www.pituitarysociety.org/publ...ismEnglish.pdf

It might be valuable for you to see an endocrinologist to get a hormone panel ordered to see if you have any deficiencies.

If cortisol gets low enough, it can be life-threatening.

Hormone deficiencies can be caused by concussions, or a concussion, which I've posted a LOT about in other threads and in some of the stickies at the top of the forum.

Hi there,

Sorry this is happening to you.

After my MVA I started with seizure like activity, ER Dr thought absence seizures but am seeing a neurologist soon. I suddenly get a shift in my brain, feel sick, everything slows down, things that should be very familiar look unfamiliar, hard to explain, and my arms/fingers shake for around a minute or two, then feel extremely tired.

I've been told there are many different kinds of seizures, some you won't remember anything and some you are aware of everything that's happening, you know it's you but can't stop it. I've experienced both.

I hope you get answers soon, you know something's wrong! it's so frustrating.

Yah its beyond frustrating. Its weird how some are so minor and some are seemingly more complex. How some I can remember and know whats going on, and others I dont remember much if any.

They happen so randomly too, there seems to be no rhyme nor reason. I just hope the doctor doesnt think im completely crazy.

Also, about the hormones.I used to see an endocronologist because of a small set of nodules on my thyroid. Last time I went (last septmember I believe) everything was in check, no growth on the nodules for over a 3 year period and never any hormone issues, but who knows, just saying.


The thing is, the first 3 months, I honestly dont know if I was experiencing this as much. I know once in a while I would remember the shakes, and randomly wake up in a weird place in my house, but I just attested it to being concussed and thought I was crazy. Then its when I went back to work that this seem to either A.) reach full steam or B.) much more noticeable because others saw it too, and it wasnt just me questioning if anything happened. Now my wife has documented all of this stuff happening, and so did my coworkers when I went back to work for that short time. Now at least I know im not crazy.

Well off to the dr in a bit. Im really nervous. Not sure why. I just feel as though people think im nuts when I have these seizure esque episodes. I hope he can comprehend that they are random and dont happen all the time. Sometimes I go days without them. Itll be nice to have my wife there with me, as shes been around and seen a majority of them. Im also slightly nervous that shes going to grill the dr, which I guess is a good thing, but last thing I want is a po'd dr trying to fix my brain.

How did it go? any answers?