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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-07-2014, 06:11 PM
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Reality comes and gives you a swift kick to the face. My mom invited me to go to this thing at church tonight. Some sort of worship thing. I honestly didn't want to go that much but figured I'd give it a shot. We thought it would be held in the main church. Wrong. It took place in the much, much smaller chapel.
About 10 minutes in they began with the music. I was already a little tight because the first speaker was echoing a bit. But that music was everywhere. I've gotten so much better with noise. I'm not wearing my earplugs at work anymore or anything like that. But even with plugs into I only lasted another 10 or 15 minutes. And I'm a wreck. Had to take an Ativan and everything. So much for being better.
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What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks. Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia. And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc. |
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06-07-2014, 06:37 PM
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Legendary
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Church music has been a serious problem for me for a decade. The sound systems usually are poor quality. The echos are atrocious. Then, the many voices signing out of tune and sync make it all worse.
I suggest planning a slow recovery day tomorrow. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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06-08-2014, 05:47 AM
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Hi Socks
As recovery goes, you might find some things bother you more (like music) than others. I've found there is no way I know for sure what I can and can not do until I try things out. I keep earplugs in my purse at all times just in case sounds are suddenly very loud again and I can't handle it. Also, if I am not sure how a situation will affect me, (like going to a movie) then I have a back up plan in place -- like making sure I will leave the movie and letting people I go with know that leaving may happen for me. Keep on healing! Poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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06-08-2014, 10:53 AM
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I miss church so, so much. I used to love going.
I am going to try again soon and see if it's any better. I hope that it gets a bit easier on you with time. Is there a lobby you can sit in at church? My church has a lobby with recliners and TVs where you can watch the live service. Maybe that would be easier on you?
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It is what it is. . |
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| "Thanks for this!" says: | music-in-me (06-08-2014) |
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06-08-2014, 11:02 AM
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Quote:
__________________
What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks. Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia. And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc. |
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06-08-2014, 01:03 PM
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Live action. That's a good way to express the noisy crowded movement filled world outside of home.
Live Action. I can't imagine I would survive being at a church service. The rest of the day and possibly the following g days also might be in bed. I have always said I'm in church 24/7, 365. Fellowshipping now is more one on one. The video series YOU LOOK GREAT made me realize I can handle an evening with another couple much better than say church. I might sleep more the next day but it will fulfill social needs that are vital to my existence. Way off topic I am sure I am as I don't remember the topic. Well wishes for a beautiful Sunday. It's 65 sunny and breezy here in northwest Indiana. Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | MiaVita2012 (06-10-2014), music-in-me (06-08-2014) |
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06-08-2014, 03:30 PM
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I absolutely used to love being in church prior to my accident. I even played guitar and sang on the worship team, sometimes for both Sunday morning services. Now, I am slowly beginning to ENJOY being back in church, but I still have to limit the noise and movement stimulation in the service. And I wear my sunglasses to help with this, but I end up getting overstimulated eventually.
I retreat to the women's bathroom or the fellowship hall area to get away. Or sometimes I just fall asleep during the service behind my cool shades!! The music issue is bittersweet, because I love to hear and participate in the singing, but I have a very limited capacity to do this. Just today, the team was asking when I would return to singing with them, but I think I will never be able to perform musically again. Been stuck in the same place for over a year now musically. But I count my blessings to have some return musically, and I still appreciate music by listening to it. The teaching today quoted a verse in Zephania that says God "sings over us". A beautiful picture for those who love and appreciate music. Take care, M-i-m |
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06-08-2014, 03:47 PM
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So sorry, I am the same way... some weeks I can handle it and other weeks i have to leave... stinks!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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06-08-2014, 08:39 PM
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Noise is difficult! I guess you have to give yourself permission to stay in quiet places. Over time, challenge yourself where you can easily bow out if there is too much noise. I do that at home (two kids!!!).
Tonight we had a sudden rainstorm when I was out in the car and the noise of the rain was deafening (to me)! Have to reach for the earplugs! "normal" people would not understand that, but I am sure all of you do! 
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | MomWriterStudent (06-09-2014) |
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