Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-09-2014, 11:10 PM #11
music-in-me music-in-me is offline
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Join Date: Aug 2013
Posts: 127
10 yr Member
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
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willgetbetter,

Your opening statement, "Sometimes I wonder if this PCS thing is all in our heads"...Hmm. You came to this website seeking information on dealing with your post concussion issues and readily accepted advice. We all did and still do. But to make a generalized statement about all of us is so wrong on many levels. You experienced a remarkable change in your status only 7-8 months after your injury. For that I'm glad for you.

But for the many others of us who have dealt with ongoing issues from PCS, mine going on 20 months and others here much longer than that, you simply cannot tell us we are" reachng or overexxagerating our symptoms" because you have not experienced the truly prolonged changes that are life-changing and disabling.

Like Mark always says, "If you've seen one brain injury, you've seen one brain injury." You were fortunate enough to have most of your symptoms resolve and return to most of you pre-injury activities. Yet you experience some kind anxiety about the symptoms that remain. Join the club. I don't know if any of us knows exactly how we are to recover and when that recovery will finally end. I know I am more acutely aware of each symptom, although being aware of them does not mean I become over-anxious or fixated on them. It simply means I am need to be aware of what my new set of limitations are, and this is encouraged in brain rehab so you don't get over-fatigued or experience any potentially dangerous situations.

We need to understand one another on this site, and not be making negative generalized statements here. It is hard enough to get people who have never experienced brain injury first-hand to "believe" us; we don't need to cast more doubt and add to our own problems by not supporting one another. Please, let's all be understanding of each one's unique experience.

Take care, M-i-m

Last edited by music-in-me; 06-09-2014 at 11:27 PM. Reason: sentence structure errors
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