Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 06-12-2014, 12:59 PM #1
ED's Avatar
ED ED is offline
Junior Member
 
Join Date: Jun 2013
Posts: 99
10 yr Member
ED ED is offline
Junior Member
ED's Avatar
 
Join Date: Jun 2013
Posts: 99
10 yr Member
Default Topamax

Hi everyone, just wanted to bring up to speed on how I have been feeling of late. I still get daily headaches, not as intense as last year this time. My sense of well being is gradually improving and I am having shorter duration time of malaise type feelings, fatigue is slowly improving as well. My spirits are getting better as well. Lets put it this way in comparison to last year at this time from 0 to 10, 0 feeling horrible and 10 feeling great, last year I was a minus 1, as for this year I would say I'm a 5. There are steady but extremely slow improvements. My biggest issue are the headaches and symptoms related to my headaches. So my physiatrist has recommend i start taking Topamax, those of you that have took and have been taking Topamax how have you responded with this medication?

Currently on 100mg/day zoloft,


ED
ED is offline   Reply With QuoteReply With Quote

advertisement
Old 06-12-2014, 01:03 PM #2
Socks Socks is offline
Junior Member
 
Join Date: Apr 2014
Posts: 95
10 yr Member
Socks Socks is offline
Junior Member
 
Join Date: Apr 2014
Posts: 95
10 yr Member
Default

Quote:
Originally Posted by ED View Post
Hi everyone, just wanted to bring up to speed on how I have been feeling of late. I still get daily headaches, not as intense as last year this time. My sense of well being is gradually improving and I am having shorter duration time of malaise type feelings, fatigue is slowly improving as well. My spirits are getting better as well. Lets put it this way in comparison to last year at this time from 0 to 10, 0 feeling horrible and 10 feeling great, last year I was a minus 1, as for this year I would say I'm a 5. There are steady but extremely slow improvements. My biggest issue are the headaches and symptoms related to my headaches. So my physiatrist has recommend i start taking Topamax, those of you that have took and have been taking Topamax how have you responded with this medication?

Currently on 100mg/day zoloft,


ED
I take 125mg daily and do very well with it but I know results vary from person to person. There is the potential for some significant side effects.
__________________
What Happened: 3/6/14 I was leaning in to pick my phone off the floor of my car and hit my head on the door frame. No immediate problems but I woke up the following day with blurred vision, nausea, fogginess and memory issues. Headaches came the next day along with speech problems. CT scan was clear. Took a few weeks off work. Went back for half days for two weeks.
Then: 4/14/14 While still recovering from the first concussion I hit my head on the edge of my desk. Immediate headache, nausea and blurred vision. Doctor referred me to a neurologist who prescribed physical therapy for my neck, as I get incredibly stiff/sore necks daily which helps to bring on the headaches. Doctor also referred me to a counselor, who is helping me to cope with the anxiety and panic that has come up in my post concussion world. I deal with severe sensory problems and the frequent bout of aphasia.
And Then : 10/6/14 I was cleaning something (ok cat puke) up from underneath my new glass table when I stood up too fast right into it and voila, trauma #3. I was out of work for a month and a half this time. Noise problems, aphasia, etc.
Socks is offline   Reply With QuoteReply With Quote
Old 06-12-2014, 02:28 PM #3
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
Default

Topamax has really been a life saver for me. I know some have hated the brain fog and aphasia issues.

I have been able to reclaim my life: no vertigo-no migraines-no headaches.

I combat brain fog by strict sleep regime (same time sleep routine, no computer, no coffee, melatonin, eye mask, ear plug). I cut out gluten. No dairy. Exercise daily (walking). Eat Autoimmune paleo diet. Lots of water. Self-care has risen to top of my list.

It's almost 2 years - but I think topamax has been the only med to get rid of a lot of the constant head pain and inner ear pain. It's not for everyone, but it really has been the right one for me.

I'm at 30 mg at night, 20 mg. at morning. Slowly titrating up to 100mg.

Best of luck!
__________________
The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
berkeleybrain is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Topamax coffeegirl Bipolar Disorder 13 04-02-2014 05:29 PM
Topamax camyam73 Traumatic Brain Injury and Post Concussion Syndrome 9 03-18-2014 04:37 PM
Topamax help please Reddawn600 Reflex Sympathetic Dystrophy (RSD and CRPS) 24 08-23-2011 10:14 PM
Topamax soulflower Multiple Sclerosis 10 01-02-2011 11:37 AM
Topamax! invisable Peripheral Neuropathy 3 09-30-2010 10:11 PM


All times are GMT -5. The time now is 09:32 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.