Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-18-2014, 09:33 PM #11
cerebellarmaniac cerebellarmaniac is offline
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Oh I also have some auditory processing issue. For example, I have issues hearing someone in a croweded area, regardless of how loud they are speaking to me.

I'm just curious whether or not anyone else has experienced this. I suspect there is a strong link btw this issue and the visual-spatial system.
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Old 06-18-2014, 09:40 PM #12
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Quote:
Originally Posted by cerebellarmaniac View Post
Oh I also have some auditory processing issue. For example, I have issues hearing someone in a croweded area, regardless of how loud they are speaking to me.

I'm just curious whether or not anyone else has experienced this. I suspect there is a strong link btw this issue and the visual-spatial system.

yes! Very difficult, although I have seen slow improvement. There are therapies you can do to address auditory processing. Slow exposure to multiple sources of noise, for example. Doing things while playing music or having the radio on.

But it makes for a lonely life when you can't go to noisy places. Most places are noisy!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-18-2014, 10:31 PM #13
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Default Yes eyecontact!!

I recently found that I look away to concentrate better on what is being said. I get really distracted when I look at the speaker and sometimes when I try to speak, my words get gummed up in my throat and if I look away, I can speak more freely or better.

Thanks for bringing this up.

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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-25-2014, 08:43 AM #14
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Originally Posted by Hockey View Post
Thanks so much for the explanation.

I don't look away, consciously, it's just, sort of, a reflex. However, I do know that I don't like to look at moving object (no TV for this gal) - and heads do move.

This might also explain why the person I have the hardest time looking at, when he talks, is my poor husband. He's very animated when he speaks (plenty of bobble head gestures and flailing arms - that's his culture) He shaved off his beard - and I didn't even notice. Yes, he does talk a lot.
I so relate to this. My dear boyfriend is Italian and a very demonstrative talker. I have to close my eyes to even hear half of what he's saying now. He has been trying to keep the gestures down but it's a part of him.

I have noticed I close my eyes alot when talking to other people. Otherwise, I get dizzy or can't hear what they're saying. One of my worst ailments right now is poor tracking and convergence so I'm sure its related to this. I also give people a heads-up while talking that I am listening even if my eyes are closed.

I do find it interesting though. When I close my eyes while talking to someone, its a reflex, like when something is coming at your face, you close your eyes. I wonder if it's the same sort of mechanism my brain is using to protect itself. Maybe that sounds silly, could just be my fun brain not making sense again .
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Old 06-26-2014, 01:09 PM #15
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It was very difficult for me to look people in the eye too... I wasn't able to really start to do it again until after I started finally getting better... maybe 5-6 months into the HRT.

I think with me, it also had to to with not being able to handle too much information at once.

We get so much information from someone's eyes that it was too much for me to look them in the eyes AND listen to what they were saying.

But it really limits the quality of the communications I had before the accident and after...

tbi reduces the quality of life in SO many ways!!
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Old 12-26-2017, 10:16 AM #16
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Quote:
Originally Posted by cerebellarmaniac View Post
I recently had a brain tumor resected from my cerebellum. The tumor has affected some of my ocular functions and I find it is very difficult for me to track moving objects or text. The tumor/surgery also impaired my vestibular apparatus, so I often feel dizzy or overwhelmed.

They say the tumor was a slow growing tumor, and I have probably had it for most of my life. The impairments I talked about were always issues for me to some degree. Unfortunately, I shrugged it off as shyness/social anxiety. In reality it was the symptoms (feeling overwhelmed, trouble tracking) that manifested into low-confidence and anxiety.

Now my short term visual memory/attention is below norm, according to neuropsych testing. Most of the psychologists I spoke to couldn't explain this to me. I suspect my poor eye tracking/coordination, has made it extremely difficult to attend to minute details.

Oddly, I think I always struggled in those areas in the past. However, I found ways to compensate. Now these issues greatly affect my quality of life. The good news is that I have noticed some improvement.
I could have written your post. In other words, I had similar.

Brain surgery in 2014 for me. How are you managing now
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Old 12-26-2017, 12:16 PM #17
Mark in Idaho Mark in Idaho is offline
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pilocyticastrocytom,

Welcome to NeuroTalk,

This is a dormant thread. cerebellarmaniac has not posted since last February.

Is there anything you are struggling with that we can help with?
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