NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   6 months in hell. (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/206065-6-months-hell.html)

MomWriterStudent 06-26-2014 10:23 PM

Quote:

Originally Posted by Tmarie23 (Post 1078107)
At this point, I don't even care if it takes 18 months, just so long as it goes away and I can have energy and feel normal and be able to live again. And I've been in this constant dream like fog for the past 6 months. I can't live like this.

I had that dream-like fog for months, and I hated it. I actually felt like that was my worst symptom. It was like I was constantly drunk and high 24/7. I don't do drugs, but I can imagine that an acid trip is similar to the brain fog I experienced.

I am terrified that the brain fog will return one day. If anybody knows the medical term or what causes it, please let me know. I'd like to research it more but can't find much via Google.

Oh, and my brain fog stopped a week after I started taking curcumin 3x a day. Not sure if you're on a supplement routine, but it totally killed my fogginess.

Superstition 06-26-2014 11:14 PM

I don't even know what to say. I completely understand where you're coming from though. This is not a fun thing to go through. I keep trying to search my soul and figure out what I'm supposed to be learning from this. My kids were all in school for the first time in 16 years. I started back to work and had a job that I was loving SO MUCH. It seemed like everything was falling into place seamlessly and then BOOM! It all got taken away so quickly last November.

It STINKS! As my husband keeps pointing out, this has really brought all of us closer. Not that we weren't before but my husband and kids have had to learn to pitch in more and nobody has complained about it one bit. I'm trying to really focus on how loved and supported I've felt through most of this.

Sorry for rambling. I hope that things start turning around for you soon. It does help when you start seeing a little progress.

Tmarie23 06-30-2014 06:46 PM

I'm so afraid I'm never going to feel normal and good again. What exactly do people mean by "you will never be exactly as you were?" Please tell me I'll be able to concentrate and not be foggy and spacey and exhausted and be able to actually have energy and be normal again? That the experience just gives you a different perspective on life? What exactly do people mean by this? I cannot imagine going through the rest of my life like this. And nothing seems to be getting better. I'm so scared.

Mark in Idaho 06-30-2014 06:51 PM

At 5 months post injury, you still have plenty of time to improve. Some on NT did not see improvements until almost a year after. Usually, it was the result of finding ways to reduce anxiety and stress levels. Anxiety can cause the foggy brain and struggle to concentrate.

Have you had a serious hormone assessment ?

Tmarie23 06-30-2014 06:56 PM

Not in particular, but I've had so many tests and bloods done throughout 8 hospital visits in the first 2 months that I'm sure I'm fine. One hospital tested my hormones and my thyroid. Everything is normal.

Tmarie23 06-30-2014 06:58 PM

I have also been diagnosed with slow focusing and convergence insufficiency. I need vision therapy but who knows how long it'll take to start. I'm going through the worker's comp nightmare.

Tmarie23 06-30-2014 07:01 PM

Everything is very strange. I don't ever feel like I'm "here". Artificial lights make everything look 10x more strange, always have pressure in my head and face, constantly feels like im walking on a boat. And ohhhh the fatigue. Horrible. Concentration and comprehension SUCKS. I just never feel good, or a fraction of that.

todayistomorrow 07-05-2014 11:02 AM

Quote:

Originally Posted by Tmarie23 (Post 1079156)
Everything is very strange. I don't ever feel like I'm "here". Artificial lights make everything look 10x more strange, always have pressure in my head and face, constantly feels like im walking on a boat. And ohhhh the fatigue. Horrible. Concentration and comprehension SUCKS. I just never feel good, or a fraction of that.

I have/had many of the same thoughts/symptoms you have. There is good news though! It took me 1 year to figure out I had convergence insufficiency and that was the main contributor to my headaches/inability to read/work on a computer/fogginess.

A quick background, I was in a Tbone car collision when a kid ran a red light likely going 60mph+. My SUV went airborne, spun in the air and landed on its side. Miraculously I escaped unscathed minus a mTBI. First year was pure hell and I made it through day to day from use of painkillers. Basically a blur now.

Through a recommendation from a poster on here, I got tested for convergence insufficiency and paid $400 for tinted glasses to help correct it. Despite my lack of confidence in this working(everything else I tried failed) I noticed immediate improvement. I would strongly suggest you try the glasses before you spend $ on vision therapy. There's no reason to be in pain when there may be immediate relief and the glasses help improve convergence over time.

Feel free to message me or Skype me anytime and ill be happy to talk further.

Sitke 07-05-2014 11:17 AM

5 months is not long at all, had my accident early last year and hate to say it but still struggling a lot, I have all the symptoms you're talking about.

It is scary, I was told I'll never be the same again, those words.....aaaggghhh! my short term memory is shot so have to put notes everywhere then I forget I even have notes....now use a timer which helps with things.

It can be a long road but stress and tiredness, I find, makes it all worse so take really good care of yourself.:grouphug:

sciencetoy 07-05-2014 08:34 PM

It's been nearly 2 years for me. No, not getting any closer to what I used to be. I hate hate hate when someone says that I'll get used to the new me. I don't WANT to get used to the new me. Unless the "new me" has a lot of qualites that the "regular me" had. Not happening so far.


All times are GMT -5. The time now is 03:33 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.