Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-28-2014, 11:15 PM #11
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I am so sorry dear!

I have to make appointments as a "first available" basis and then put them in my phone so my alarm goes off one day before.. then one hour before..

I hope you find something that works for you..
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 06-29-2014, 06:59 AM #12
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Quote:
Originally Posted by Living_Dazed View Post
My mom takes me to many appts now that she is retired. We always forget where the car is. Now I take a picture.

Jenna
LOL I photograph my car, too! I also photograph any identifying things near it, such as street signs or weird statues.
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Old 06-29-2014, 07:52 PM #13
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I like the photograph idea of the car. I wish I could take a video of walking to the appointment like hansel and gretel. I have walked around for 30 minutes using my car alarm looking for my car many times.

This has been so hard-to be relatively young and yet to have such an impaired memory.

Mokey-you are not alone! This is just a new challenge and these are good ideas to help us along. I have learned a lot of new ideas here, as always.

I feel like we could publish a really great book on best practices on how to live a best life after pcs/mtbi.

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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 07-01-2014, 10:06 PM #14
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OMG I'm laughing, at least it's good to know you're not alone!

Cracked up at the Hansel and Gretel idea, we could put bread crumbs down but they'd probably get eaten by birds so we'd be back to square one....

The photographing of the car is a good one, never thought of it, can never ever remember where mine is, the direction I came in to the parking lot, left section or right...

Don't know if anyone else does this but when I have an appt the next day, that night that's all I can think of...don't forget...and hardly get any rest which is of no help...oh boy...
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