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-   -   Topomax (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/206858-topomax.html)

mouse1 07-18-2014 01:35 AM

Well I have to say this is very heavy duty medication, I can see why some people call it Dopomax. It has made me feel quite odd.

I also have Lyrica and Cymbalta in my system so that probably exacerbates these feelings.

Nonetheless my appetite has gone completely and I have no pain so it is setting out what it was supposed to achieve! If this continues I won't be increasing the dose to 50mg as 25mg will be enough.

berkeleybrain 07-18-2014 12:13 PM

Yes-it is a very drowsy feeling. I would give it a few weeks. If you have other medications in your body it is to be expected.

Also do try to get a full night's sleep to counteract the drowsiness. Good food as well.

Be good to yourself. I'm sending a lot of light and hope your way.

mouse1 07-20-2014 04:26 AM

Things settling down now, it sends me to sleep and I wake up groggy but no bothersome side effects. Will step up to 50mg on Thursday but don't think I will need more than that.

I did notice when I did a 40 mile cycle yesterday that I didn't sweat a lot - possible side effect. However no headache/earache of any great significance afterwards, only minor.

So with 30mg Cymbalta and 50mg Topomax I will hopefully be able to get on with my life - without weight gain.

anon1028 07-20-2014 04:33 AM

40 miles cycle ride lol I just that you're well on your way to recovery

mouse1 07-20-2014 04:40 AM

Quote:

Originally Posted by markneil1212 (Post 1083510)
40 miles cycle ride lol I just that you're well on your way to recovery

Yes Mark I am thanks! The only thing for me is every time I try to cut back/stop meds the neuropathic pain returns.

So I can lead a normal life with the help of medication. This includes exercise (cycling) but not running or gym as I have tried this and it is too much for me.

berkeleybrain 07-20-2014 01:05 PM

:) a nice long cycle! It's a good sign. I love that feeling of getting the heart pumping again. Fingers crossed.

Also make sure to splurge on good brain food (coconut, avacado, bacon, nuts, eggs, etc). I sound like a mom, I know. But it will help counter that brain fog effects of topamax.

NormaW 07-20-2014 06:17 PM

Mouse, I hope it works for you. I am unable to take it as I have a history of kidney stones and one of the side effects is kidney stones.

I am still waiting on the Botox injections.

anon1028 07-20-2014 06:57 PM

if you have to take some medication to feel good so be it!! I would take 50 pills a day if it meant I could feel like my old self lol. wait. I think I am taking 50 ppills a day lol

mouse1 09-30-2014 03:11 AM

Over the past month I have been getting headaches, earache, cheek ache, numbness in gums/teeth.

I am going to see my GP today to get the Topomax increased to 75mg.

I don't know enough about neuropathic pain but when I was on Lyrica I had to switch up to 75mg from 50mg. It must get worse for some reason or the medication becomes less effective over time.

mouse1 10-08-2014 04:18 PM

I am not too sure what is happening to me, but the 75mg Topomax increase hasn't halted the Neuropathic pain so I am now up to 100mg a day.

Major cognitive, memory, and word finding problems at these higher doses as well, but I will stick with it. Also a major appetite suppresant at this dose! I Hope it works out, Lyrica was so much smoother.


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