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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-18-2014, 01:35 AM
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Well I have to say this is very heavy duty medication, I can see why some people call it Dopomax. It has made me feel quite odd.
I also have Lyrica and Cymbalta in my system so that probably exacerbates these feelings. Nonetheless my appetite has gone completely and I have no pain so it is setting out what it was supposed to achieve! If this continues I won't be increasing the dose to 50mg as 25mg will be enough.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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07-18-2014, 12:13 PM
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Yes-it is a very drowsy feeling. I would give it a few weeks. If you have other medications in your body it is to be expected.
Also do try to get a full night's sleep to counteract the drowsiness. Good food as well. Be good to yourself. I'm sending a lot of light and hope your way.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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| "Thanks for this!" says: | mouse1 (07-19-2014) |
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07-20-2014, 04:26 AM
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Things settling down now, it sends me to sleep and I wake up groggy but no bothersome side effects. Will step up to 50mg on Thursday but don't think I will need more than that.
I did notice when I did a 40 mile cycle yesterday that I didn't sweat a lot - possible side effect. However no headache/earache of any great significance afterwards, only minor. So with 30mg Cymbalta and 50mg Topomax I will hopefully be able to get on with my life - without weight gain.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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07-20-2014, 04:33 AM
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40 miles cycle ride lol I just that you're well on your way to recovery
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07-20-2014, 04:40 AM
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Quote:
So I can lead a normal life with the help of medication. This includes exercise (cycling) but not running or gym as I have tried this and it is too much for me.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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07-20-2014, 01:05 PM
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 a nice long cycle! It's a good sign. I love that feeling of getting the heart pumping again. Fingers crossed.Also make sure to splurge on good brain food (coconut, avacado, bacon, nuts, eggs, etc). I sound like a mom, I know. But it will help counter that brain fog effects of topamax.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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07-20-2014, 06:17 PM
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Mouse, I hope it works for you. I am unable to take it as I have a history of kidney stones and one of the side effects is kidney stones.
I am still waiting on the Botox injections.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues. Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest..... |
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07-20-2014, 06:57 PM
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if you have to take some medication to feel good so be it!! I would take 50 pills a day if it meant I could feel like my old self lol. wait. I think I am taking 50 ppills a day lol
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09-30-2014, 03:11 AM
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Over the past month I have been getting headaches, earache, cheek ache, numbness in gums/teeth.
I am going to see my GP today to get the Topomax increased to 75mg. I don't know enough about neuropathic pain but when I was on Lyrica I had to switch up to 75mg from 50mg. It must get worse for some reason or the medication becomes less effective over time.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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10-08-2014, 04:18 PM
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I am not too sure what is happening to me, but the 75mg Topomax increase hasn't halted the Neuropathic pain so I am now up to 100mg a day.
Major cognitive, memory, and word finding problems at these higher doses as well, but I will stick with it. Also a major appetite suppresant at this dose! I Hope it works out, Lyrica was so much smoother.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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