Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-17-2014, 09:52 PM #1
anon1028 anon1028 is offline
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welcome to the board. you are so not alone. with negative tests it is hard to get anyone to believe us. I've only met one doctor who told me they failed us by not making a machine good enough to detect injury. diffuse tensor mris are said to be able to but they are hard to find. maybe you can ask mark in Idaho about the vitamin regimen. he and hockey are the most knowledgable and can help you. you story isn't crazy. it is all too familiar. you are still a little early I the recovery so hang in thereand feel free to post.
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Old 07-18-2014, 03:34 PM #2
Marina22 Marina22 is offline
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Dear KnockedOutMom,

I feel for you. I used to own a small business. But after my 2011 metal rail concussion I lost it. I loved what I was doing (in fact, it's been 3 years and I still get phone calls on my cell regarding my services from time to time). However, I can't do that anymore and chances are that I'll never be able to. Now, I'm a fat homemaker (gained 30lb) with very limited abilities. Well, life goes on.

I can't tell you anything optimistic. Read my signature - I was at the completely sympton-free stage and then a nasty fracture, surgery followed by a very minor bump - and all of my symptoms are back. I'm still suffering with almost no improvement.

What helps: vitamins (my life savers!), trying to stay optimistic, my extremely supportive PCP, family and my cat, light exercises, volunteering in my kids school, this forum, meditation, brain-friendly activities (like adult coloring books or crafts), healthy diet, Excedrin for headaches , celexa for depression, staying organized and trying to follow the same routine every day, so I won't forget anything.

What doesn't help: acupuncture, my neurologist, fake friends who disappeared from my life because I wasn't the same person anymore, trying to be tough and push through the symptoms, Amitriptyline for headaches(this is personally for me) - made me wanna kill myself, thought that I will recover 100% again and will run my business.

I don't know if this will help you! I wish you a complete recovery!
Marina
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2002 - hit my head on a washer door while doing laundry. Recovered in 24 hours (was 7 months pregnant at that time)
2005 (maybe 2006) - kitchen cabinet (it took me ~ 1 week to recover)
2009 - refrigerator shelf, recovered in 1 month
summer, 2011 - metal rail, the life-changing concussion. Black out for ~10 minutes, spent ~2weeks in bed (wasn't able to even use a bathroom by myself). Made a complete recovery in 2 months.
October, 2011 - washer door again. Recovered in 1 months.
March, 2012 - kitchen cabinet again. Suicidal depression. Was diagnosed with OCD. Severe anxiety. Was completely recovered in 4 months, celexa is a magical pill.

After that I managed to go almost 1.5 years without a concussion! Was at a completely symptom-free stage, started volunteering at my kids' school again. I was living a happy life. Then,

August, 2013 - fell down the stairs, broke my ankle badly (my surgeon said that he literally has never seen anything that bad ever before and he's been practicing for more than 20 years).
September, 2013 - my son was hugging me and we bumped into each other. Result - complete return of all of my symptoms., no improvement with time. Severe depression again.

7/7/2014 - hit my self on a metal shelf again while trying to clean.


I'm not clumsy. It's just the floor hates me, the tables and chairs are bullies and the wall gets in the way.
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Old 07-23-2014, 08:08 PM #3
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by Marina22 View Post
Dear KnockedOutMom,

I feel for you. I used to own a small business. But after my 2011 metal rail concussion I lost it. I loved what I was doing (in fact, it's been 3 years and I still get phone calls on my cell regarding my services from time to time). However, I can't do that anymore and chances are that I'll never be able to. Now, I'm a fat homemaker (gained 30lb) with very limited abilities. Well, life goes on.

I can't tell you anything optimistic. Read my signature - I was at the completely sympton-free stage and then a nasty fracture, surgery followed by a very minor bump - and all of my symptoms are back. I'm still suffering with almost no improvement.

What helps: vitamins (my life savers!), trying to stay optimistic, my extremely supportive PCP, family and my cat, light exercises, volunteering in my kids school, this forum, meditation, brain-friendly activities (like adult coloring books or crafts), healthy diet, Excedrin for headaches , celexa for depression, staying organized and trying to follow the same routine every day, so I won't forget anything.

What doesn't help: acupuncture, my neurologist, fake friends who disappeared from my life because I wasn't the same person anymore, trying to be tough and push through the symptoms, Amitriptyline for headaches(this is personally for me) - made me wanna kill myself, thought that I will recover 100% again and will run my business.

I don't know if this will help you! I wish you a complete recovery!
Marina
I have had many head bumps since my first accident, the most recent was a couple weeks ago getting in my car. It took me a couple minutes before I could move. I usually always walk into door frames when I am coming out of rooms, my left arm is always bruised! I was never a klutz before, but I sure am one now. I can't seem to do anything without bumping something!!
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Old 07-23-2014, 08:57 PM #4
Mark in Idaho Mark in Idaho is offline
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If your chiro is doing a "twist the head and pop the neck" adjustment, it may be too aggressive. There are gentler adjustment techniques.
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Old 07-26-2014, 08:33 AM #5
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by Mark in Idaho View Post
If your chiro is doing a "twist the head and pop the neck" adjustment, it may be too aggressive. There are gentler adjustment techniques.
No he doesn't do the manual "twist the head and pop the neck"! I've had that kind done before with other chiros and I don't like it. He does a really gentle pressure and using the table, sorry I can't remember the name of it.
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Old 07-23-2014, 08:04 PM #6
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by markneil1212 View Post
welcome to the board. you are so not alone. with negative tests it is hard to get anyone to believe us. I've only met one doctor who told me they failed us by not making a machine good enough to detect injury. diffuse tensor mris are said to be able to but they are hard to find. maybe you can ask mark in Idaho about the vitamin regimen. he and hockey are the most knowledgable and can help you. you story isn't crazy. it is all too familiar. you are still a little early I the recovery so hang in thereand feel free to post.
Thanks. It is nice to have found this group and people who make me feel like I am not crazy!
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