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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-18-2014, 10:05 AM | #11 | |||
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I have a much more profound appreciation for life, while at the same time no longer have a fear of death. My relationship with my spouse and erstwhile caregiver has grown deeper. I have learned it's OK to depend on and accept loving care from her and others. Friends who visited me during my hospital stay and after showed me how much people really care for others. I appreciate the power of prayer. I believe that without the prayers, heartfelt concern, and kindness of friends and family my neurosurgeon's initial fears would have been the outcome. Instead I can more forward and enjoy life. Prayers for peace to all of you.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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07-18-2014, 06:02 PM | #12 | |||
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I am changed as u mentioned. My compassion for others has increased. I am also so much more sensitive to others tragedies. Anxiety and stress wise. One of my dear friends took me to a beautiful quiet lunch today. I love her immensely. I am so blessed. I hope everyone here has someone. Jenna
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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07-18-2014, 06:08 PM | #13 | ||
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my friends all hit the road in years ago lol my family doesn't believe I have a brain injury they think I'm addicted to drugs or alcohol or both lol
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07-19-2014, 12:16 AM | #14 | ||
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07-19-2014, 12:23 AM | #15 | ||
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When those close to me betray me, I learn how to be loyal. Easier said than done, but chin up! |
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07-19-2014, 12:37 AM | #16 | |||
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I laugh a lot more. Life can be so hilarous now. Am I like I child? I have the child pov.
I know God is in my life and I belive angels help me and really helped me at my darkest times. I embrace my artist side now. No more conflicts there. I write, love to write, am a writer, am a poet and proud of it. Writing and rhyme is easier and more fun now. I play more, I could care less what people think about me now. I just live and let live. I try not to be too blunt -- sometimes my filter needs adjustments, but that was true before. i try not to be harsh in my forthrightness. Life is a gift. I get that. Every day has a blessing and I just have to still myself to find it. Anger is a waste of time and I try not to indulge in it. It's OK to be intese, but I try to focus that intensity on postitivity. I can relax more now because I can live more in the moment. Goes along with not caring what others think. Better listener now. have averted course from becoming a negative person. Prior to the accident I was becoming a very unhappy person even I didn't like. That girl is gone and I am pretty sure she died inthe accident. Go new me! Go! Profound new interest in nutrition and chemicals in our food and everything. Awarness of food. Found new friends on line and good places like this. I can say with pride now, I am a brain injury survivor. I am writing about that. Have a memoire in the works about that. Want to connect with others on this path. I probably could say more, but this is enough for now.
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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07-19-2014, 08:32 AM | #17 | |||
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Everyday I list 3 things I did and 5 blessings in my life.. there are days when my 3 things consist of brushing my teeth, brushing my hair and getting out of bed... other days where my 3 things are bigger like grocery shopping and getting everything on the list, cleaning a bathroom or cooking dinner... a journal of these things helps me realize how far i have come...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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07-21-2014, 10:58 AM | #18 | ||
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I am definetely trying to balance the good with the bad in all of this mess.
I have found three positives: I've learned to appreciate and shrink my inner circle. I'm a giver and have run myself ragged over the years being there for people. Seeing the people who bailed while I am hurting well, I'm not blinking to cut them off and I don't feel one bit of guilt over it. I guess that sounds negative but its really a positive because in the past, I felt immense guilt if I lost relationships but now, I'm not letting people take advantage of me. It's also led me to really appreciate the people who really love and care for me. I'm learning to say "no" which is very hard for me, see above. I'm taking things a lot slower and being more organized. My life was pretty chaotic before. I'm learning to relax and take things one at a time. |
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"Thanks for this!" says: | Hockey (07-21-2014) |
07-21-2014, 11:03 AM | #19 | ||
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Wow, then I go back and reread everyone's responses and realize how not alone I am. So many references to the people who disappeared and appreciating the ones who've stayed!!
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"Thanks for this!" says: | Hockey (07-21-2014) |
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