Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-20-2014, 11:43 AM #1
Bruins88 Bruins88 is offline
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Default Finally feel like im turning a positive corner

So, as of right now im on amitriptyline, zomig, and also excederine migraine.

The headaches are still present, but much more minor, I actually feel like I can function on a more normal basis. I actually feel like I can think! Ive actually strung together a few pretty good days in a row, something I havent done since the injury.

I finally feel like my sleeping is improving as well, as last night was the first night I did not wake up a single time. I still woke up with that pounding headache, but instantly took an excederine and it toned it down significantly.

For once im finally feeling extremely positive. Ive been pushing myself these past few days both physically and mentally, with really not much negative effect. Ive realized these past few days that there are actually triggers to when these headaches get extremely bad and then the seizures start. Ive realized most start in the afternoon, when im getting fatigued both physically and mentally. Loud, or repetitive noises get me. Although ive upped my physical excersise, I now know when im about to get a pounding headache and can stop myself, same with when im doing cognitive therapy through say lumosity or just reading. I now realize there are signs that are telling me to stop.

Im really hoping this string can continue in this positive trend and I can hopefully return to work soon. Ive also come to the fact that yes, certain things I still cannot do, but I can work around them. Rather it be earplugs, asking for help, or simply slowing down.

Finally feeling positive that maybe the light at the end of the tunnel is closer than I think. Its amazing how the right combination of medicine can actually make such a huge difference.

Ill post some updates in the next few days, and hopefully they will continue to be positive.
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Old 07-20-2014, 11:49 AM #2
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I should note that on Saturday I experienced a really bad time, so I should reword my stringing together of good days.

But I know why, I took the zomig at an incorrect time, and I attended a wedding (even though it was for an hour and a half) without earplugs. It was miserable and I paid for it, but before that, the day was good.

So in all, ill chalk it up to a good day, because I really shouldve approached the wedding differently rather than trying to be cocky about my positive days.
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Old 07-20-2014, 03:48 PM #3
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Happy for you Kev!!! hope this is truly you turning the corner!!!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 07-20-2014, 05:10 PM #4
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This fills me with joy and hope. What is your accident history? how far into recovery are you?
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Old 07-20-2014, 05:40 PM #5
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Ive had 5, that I can recall concussions. 2 in the past year and a half. 3 being pretty severe.

Im going on 8 months. Really the thing right now is to continue to work on my cognitive skills (which have improved greatly since starting cognitive therapy)

Dr has seemed to finally have found the combo of meds ( amitriptyline, zomig, and excederin migraine) that minimize the headaches. Hopefully that will lead to less seizures.

Ive also been pushing myself both mentally and physically, without much issue. Thats why im fairly confident things are finally turning around.
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Old 07-20-2014, 06:03 PM #6
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fyi,

Excedrine Migraine is no different than Extra Strength Excedrine or many other acetaminophen (Tylenol)/aspirin/caffeine combination OTC drugs. Don't be afraid to buy generic forms of Excedrine. The ingredients are 250 mgs acetaminophen, 250 mgs of aspirin and 65 mgs of caffeine. Costco and Walgreens sell a very cheap copy.

If the aspirin causes stomach upset, you can use enteric aspirin, acetaminophen and caffeine tablets combined. Or, leave the caffeine out and enjoy a cup of coffee.
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Old 07-20-2014, 06:19 PM #7
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Quote:
Originally Posted by Mark in Idaho View Post
fyi,

Excedrine Migraine is no different than Extra Strength Excedrine or many other acetaminophen (Tylenol)/aspirin/caffeine combination OTC drugs. Don't be afraid to buy generic forms of Excedrine. The ingredients are 250 mgs acetaminophen, 250 mgs of aspirin and 65 mgs of caffeine. Costco and Walgreens sell a very cheap copy.

If the aspirin causes stomach upset, you can use enteric aspirin, acetaminophen and caffeine tablets combined. Or, leave the caffeine out and enjoy a cup of coffee.
Thank you Mark, I will keep that in mind.
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Old 07-20-2014, 06:45 PM #8
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I've had so many different symptoms come and go throughout the past nine years that I have lost count lol. the most important thing is to not get another injury. don't even think of risking it. please.
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Old 07-21-2014, 08:42 AM #9
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Hi kevbo887,

I am glad to hear you are experiencing more positive days. I notice that your posts have become more well-written in content and in syntax, and that you are using less abbreviations and incomplete sentences. Good for you!!! Nice to see the change.

I also wanted to mention that you have been very proactive on sharing advice to others on this site. It is nice ton move from the one who posts the questions to the one who can give some advice, isn't it?

I hope you and all of us can continue to have more positive days.
Take care, M-i-m
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Old 07-22-2014, 12:45 PM #10
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Figured I would post a small update.

With the good comes the bad, and with the bad comes the ugly.

Sunday was fantastic day for me. I felt really really good. Monday was a slightly different story. I felt great in the morning, and then all of a sudden I got extremely tired and just wanted the day to end. Was a miserable day headpain wise.

Today, more of the same, although not as bad as far as pain goes. I had another seizure today, or at least I think. I sat down on the couch, and clearly remember looking at the clock and it said 12:00pm. I then remember kind of zoning back in, and realizing it was 12:15pm. No clue what happened in between there, but I know I didnt fall asleep. I felt really fuzzy and confused and still do. At a little after 1, I decided to take my walk, and walk to the local coffee shop. Im not sure if another one happened, but I was staring at all the coffee, trying to find the decaf, which is in the same spot every single day. The lady that worked there snapped me out of it and asked if I was ok. Now, she knows whats up with me because I frequent there often. She said I was staring at the coffee makers for about 5 minutes. Just staring, no shaking or anything like that, just staring like a zombie.

As for right now, my heads throbbing, and im very angry. I drink my coffee black, no sugar. For some reason I put cream in it today. Never ever have I ever drunk coffee with cream or milk in it.

Im chalking today up as a loss. Hoping tomorrow will be good, but usually on therapy days I get taxed and it ends up being more of the same.

Still keeping positive though, as the good days are happening more often than not. At least I feel much better cognitively, and I continue to do my lumosity workouts daily for my brain, as well as newspaper puzzles.

As I finish typing this Im getting the warning that another zone out is coming. Ill talk to you all later.
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