Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-21-2014, 09:36 AM #1
Galaxy1012 Galaxy1012 is offline
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Default Advice needed

I am 4 months into PCS and 27 years old. My neuro prescribed me notriptyline 25mg for 2 months. It's been 20 days since I have started taking notriptyline and I am experiencing restlessness, increased heartbeat, mild shaking in my body. I went to my PCP today and he told me it's safe to stop taking notryptiline as the dosage is low. I want to continue with it as I feel mentally stable and relaxed after taking it. Also my family has seen mood improvements in me and good sleep after notryptiline. Is it safe to continue after the mentioned side effects? And is it safe to discontinue abruptly if I have to after 20 days ?

Also I have been taking a B12 supplement(Mecobalamin 1.5mg, Alpha Lipoic Acid 100mg, Folic Acid 1.5mg, Pyridoxine HCl 3mg) and cod liver oil capsules since 1 month. But I couldn't take them since 2 days as I was unable to follow up with my doc and ask if I should continue. Is it ok to continue with B12 and cod liver oil capsules more than a month?
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Old 07-21-2014, 11:00 AM #2
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SarahSmile0205 SarahSmile0205 is offline
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SarahSmile0205 SarahSmile0205 is offline
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I was told the same thing about the nortryptalin... as for why.. have you tried drinking more water to help flush it out?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 07-21-2014, 11:32 AM #3
berkeleybrain berkeleybrain is offline
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I would go to your neurologist - not your PCP - and discuss these new symptoms.

The ones you are describing sound like panic attacks. They sound like the kind I had when I would drive, and I got a prescription for propanolol that was quick acting. I didn't need to take it for very long and it helped.

If nortyrptiline (sp?) is working for sleep and mood than stay on it-but do discuss it with a neurologist first! it is a very low dosage, 25mg. Sleep is so key to healing and you are still in the early stages of your recovery.

Best of luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 07-21-2014, 03:17 PM #4
Mark in Idaho Mark in Idaho is offline
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The B-12 supplement is fine, in fact, very good. Same for the cod liver oil. I suggest you consider taking them for the long term although there are other fish oils that are just as good if not better.
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