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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-22-2014, 09:00 PM
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Father in law passed yesterday morning. He's been in the hospital since June. My husbands and my parents live a few blocks from each other so we packed everything up to go stay at my moms
So did my sister and her husband which is my husbands brother. <giving all time to process...> Too many people at my moms and animals. Movement, sound, tv, talking, just too much. It was chaos to me. Before, I could have and have handled it. All my symptoms went crazy. Hubby packed all my stuff and took me and the animals home There are 8 kids on one side and 8 kids on the other side, aunts, uncles, friends. Such a huge celebration of life which is beautiful. I made it for a bit but will have to nap. Miss that never ending energy but I'm thankful to be alive and able to participate as much as I can. I can't handle chaos anymore. Simple is best even when it comes to the decorating in our home. Simple life. I follow a young girl of 15 that is going to die any time now. She has a tumor at the base of her skull. It's inoperable and has not responded to treatment. Even at 43 I have lived a great and eventful life. This little one is just a pup. I think of her now when I want to get mad at my situation and I am determined to live as much as I can and try to accept when I must sit out. Life is unpredictable and not a guarantee. Live as much as you can any way you have to with those you love. Jenna
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | Hockey (07-22-2014), Lara (07-23-2014), Marina22 (07-23-2014), Mokey (07-23-2014), music-in-me (07-23-2014), Sitke (07-23-2014), St George 2013 (07-23-2014), willgardner (07-24-2014) |
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07-23-2014, 09:00 AM
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Hi Jenna,
Sorry to hear of your loss. As you know, I lost my mother-in-law in March, and had some of the same issues you are having with the gathering of family and overstimulation. I did actually better than I thought I would, but I did retreat to quieter areas when I had to. You are right about the time we are given. Never truly know when it is up, and it's precious. I hope you will eventually see improvement in the areas of your life that are such a daunting challenge. So glad you are continuing your positive attitude.  M-i-m
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| "Thanks for this!" says: | Mokey (07-23-2014) |
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07-23-2014, 11:03 AM
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I'm so sorry for your losses.
I'm sure to be around your love ones is also a gift and to participate as a family in this time is fundamentally what family is all about. Take time to take care of yourself, too. But it is so powerful, how we never really know when our time will come.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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| "Thanks for this!" says: | Mokey (07-23-2014) |
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07-23-2014, 01:10 PM
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Legendary
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I'm very sorry to read this, Jenna.
take care of yourself there. You too, music-in-me. |
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| "Thanks for this!" says: | music-in-me (07-23-2014) |
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07-23-2014, 02:23 PM
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So sorry to hear all this Jenna, please take good care of yourself, big hugs...
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07-23-2014, 03:43 PM
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n/a
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I am sorry for the loss. You are very tough as are many people on this board. I am proud to be a part of iteven if quite not as tough.. my prayers go out
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07-23-2014, 08:15 PM
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I am so sorry for your loss.
I went to a large family function about 6 weeks ago (first time since my injury) and it was too much. I lost my vision and my husband had to bring me home and carry me to bed. |
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07-23-2014, 10:19 PM
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My thoughts are with you Jenna.
My mom passed away about a year after my injury and I had to travel back home for the funeral and all the family chaos that was involved with that. It was a really tough time. Losing family members is rough at the best of times, but is brutal after a brain injury. Do your best to be kind to yourself and look after yourself. Starr |
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| "Thanks for this!" says: | anon1028 (07-23-2014) |
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07-23-2014, 11:02 PM
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So sorry to hear about your loss. Your spirit is strong.
I have lost a few close relatives since my injury and have felt it deeply, but have also felt some impairment of my ability to grieve the way I used to. it is strange. But at least we can feel. Courage to you and your family.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | "Starr" (07-24-2014) |
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07-24-2014, 09:09 PM
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Hi Jenna
Sorry for the loss and all the hard times with chaos. In time, the chaos thing will get better. Take care poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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