Hi,
I am feeling really down right now. I am 19 months into my concussion/PCS - I tried Botox injections last week for the first time and have had no relief from my headaches- today just feeling crappy - I guess I was really hoping that this was going to be the answer.
Has anyone else tried Botox?

Hi,

Sorry you are suffering.

My physiatrist actually mentioned botox for headaches the other week, did say it's so expensive and sometimes does not work.

My accident was 16 months ago, had horrendous headaches/pressure all last summer, seemed to go, except for a few occasions during the winter, and are now back with a vengeance.

Did your Dr say the botox would work pretty much straight away?

Hi Sitke,

Thanks for the response. I actually had to mention the Botox to my doctor after reading about it- my neurologist's constant quote is "after 2 years everything is permanent".
He gave me the Botox - said it would take 7 days to work - if it is going to work - and then said I need at least 3 treatments.
It is quite expensive - luckily I have a plan that covers it for now.
I know how you feel with the headaches - sorry you are suffering as well.
It seems like the pressure/headaches will never go away - my brain feels raw. I also have really bad days after my vision therapy - which is today. Took Tylenol3 - it takes the edge off.

My neuro mentioned it and said that it would work if i was having migraines... but my headaches are not migraines they are related to damage to the brain... so she opted out of doing them.. she did however try a nerve block... didn't work but I hear it works for some.

Thanks for the response Sarah - I wish my neuro would say ANYTHING - I quite agree - my pain is not migraine headaches - even though I have never had a migraine - I just wish they would listen to me and say something intelligent. Very frustrated.....and in pain all the time.

Sorry you are not having any luck!

With everyone's complaints about their neuros I wish I could clone mine for everyone..