Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-26-2014, 01:04 PM #1
willgardner willgardner is offline
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Default Boredom-how do you spend your time?

I wish I could read or exercise. I am incredibly bored and some days I worry about how I am going to get through the long hours in a day. This journey is quite exhausting. would like to hear from you all about how you spend your time.
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Old 07-26-2014, 04:04 PM #2
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Solitaire... candy crush.. here...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 07-26-2014, 05:47 PM #3
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I play a lot of Spider Solitaire and watch non-stressful TV. TV pickings have been very poor lately. I have played 1500 games of Spider Solitaire since last fall. I play the easy level and have a high score of 1207.
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Old 07-26-2014, 06:12 PM #4
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Go for a slow, gentle walk outside
Put in a bird feeder or bird bath so you can sit and watch birds
Color - buy a big pack of crayons or colored pencils and Google "coloring pages for adults" or "free mandalas to color"
Play with play-doh or legos
Listen to a meditation or guided relaxation podcast
Do chair yoga
Give yourself a manicure or pedicure
Download a nature sounds app for your phone and listen to it with your eyes closed
Brush and floss your teeth
Take a bubble bath
Experiment with different hairstyles
Take a nap
Snuggle with your pet and/or child
Call friends on the phone
Buy exotic fruits and taste them
Bake cookies or some other very simple recipe
Mindfully peel and eat an orange
Mindfully make and drink a cup of herbal tea
Knit
Crochet
Read (or listen to an audiobook) if it doesn't stress your eyes or your brain
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

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Eowyn Rides Again: My Journey Back from Concussion

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Old 07-26-2014, 07:45 PM #5
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Quote:
Originally Posted by Mark in Idaho View Post
I play a lot of Spider Solitaire and watch non-stressful TV. TV pickings have been very poor lately. I have played 1500 games of Spider Solitaire since last fall. I play the easy level and have a high score of 1207.
I love Spider Solitaire. I haven't advanced to playing with different coloured suits, but I'm not giving up. My high score, on Beginner, is 1206.

I'm also trying my hand at the online Majong game. It's a real challenge for me because I struggle to see patterns. It reminds me of looking for shapes in Attention Processing Therapy.

This is a big step up for me. Eighteen months after my injury, I couldn't fathom how to play Junior Monopoly.
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Old 07-26-2014, 07:47 PM #6
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Originally Posted by willgardner View Post
I wish I could read or exercise. I am incredibly bored and some days I worry about how I am going to get through the long hours in a day. This journey is quite exhausting. would like to hear from you all about how you spend your time.
I think being bored is a good sign.

When I was first injured, I'd just sit for hours, unaware of the passage of time, and unmoving, unless prompted. Heck, I didn't even have thoughts. I was just blank. Bored means your brain wants to do something.
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Old 07-26-2014, 08:00 PM #7
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When I am feeling adventurous, I play Freecell. It is not on every version of Windows, though. I win about 80 % in Freecell. Before 2001, I could win about 90%. I win 78% in Spider Solitaire. I don't play except until I get a good deal. I just keep pushing F2 until the deal has a lot of opening moves.
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Old 07-26-2014, 08:48 PM #8
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Great question and some great answers.

I sleep a lot. I also play a lot of games. I used to be a game programmer but it's very seldom that I can recognize one of the games I worked on.Every so often I do recognize a gameplay algorithm I invented.

I also watch a lot of Let's Play videos online. I used to think that would help me relearn about games, but, no.

I also fantasize about food. I dream about stuff I used to eat. I miss cooking. On one of my rehab places they tried to teach us how to prepare our own meals - using boxes, cans of stuff and so on. Talk about depressing!!
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Old 07-26-2014, 08:56 PM #9
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We have a hobby farm with goats and chickens, so I'm busier than my rehab team wants me to be just looking after them. We've cut back a lot since my injury, with the exception of my recent acquisition of 4 new baby goats, that I am calling my "rehab goats" much to the dismay of some of new rehab team.

My rehab psychologist, however, thinks they are a great idea since they make me happy and give me a purpose to continue with my rehab program, a reason to continue.

I like to hang out with them, they are very friendly and like to sit in my lap and snuggle and also run around and do funny things.

I spend a lot of the rest of the time asleep, but I do sometimes watch tv shows. We don't have cable here, just good high speed internet, so I watch tv online, netflix, project free tv on my laptop. I prefer simple shows with simple story lines, nothing too twisty or complicated.

I'm currently rewatching The Big Bang Theory... but never the opening sequence with the flashing images during the theme song... that's not TBI friendly at all!!

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Old 07-26-2014, 09:07 PM #10
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Quote:
Originally Posted by sciencetoy View Post
Great question and some great answers.

I sleep a lot. I also play a lot of games. I used to be a game programmer but it's very seldom that I can recognize one of the games I worked on.Every so often I do recognize a gameplay algorithm I invented.

I also watch a lot of Let's Play videos online. I used to think that would help me relearn about games, but, no.

I also fantasize about food. I dream about stuff I used to eat. I miss cooking. On one of my rehab places they tried to teach us how to prepare our own meals - using boxes, cans of stuff and so on. Talk about depressing!!
It's interesting about your not being able to recognize the games you worked on. I was a writer, and when I read the stories I published before my brain got mashed, I can't see how I ever put them together. It's so depressing that I tossed all my work into the wood stove. Having those reminders of the "old" me around was like being haunted by a ghost.

As for cooking, don't give up on that. Before I was injured, I loved to cook. We'd throw big dinner parties and I made everything my family ate from scratch.

Realizing cooking was important to me, both practically and psychologically, my occupational and cognitive therapists worked really hard to help me get back into the kitchen.

While I'm not throwing any elaborate dinner parties, I am back to being able to prepare a family meal (that doesn't involve cans or microwaves, lol). I started with simple things, but I'm getting to be able to tackle more involved dishes.

Among the tricks I've learned is to line up my ingredients, in the order I will need them, and put them away as soon as I'm done with them. That way, I neither forget an ingredient, nor add any more than once.

I have to banish everyone from the kitchen while I'm working. If I converse while cooking, the meal can get "interesting."

I also have to have my husband check that I have set any timers properly and that everything is turned off when I'm done. I have been getting better about remembering.

If you have to start with the cans and the boxes, start there. Any cooking will get the brain firing on that task, again. Your skills will improve.
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