Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-28-2014, 06:09 AM #11
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Originally Posted by JuliaBertha View Post
Yep, nobody really gets it in my family either. It is totally messed up. I moved back in with my elderly mother yesterday, because I can't be alone due to anxiety about this. Needing ativan to sleep, probably won't be able to return to my teaching job in August. Dealing with huge sense of grief/loss/fear.

Deciding to become a warrior for my own health. Advocate for myself (try). came across a great website that focuses on nutrition and healing pcs-- don't have the link at the minute but try googling "lucy" and "concussion." She has a lot of helpful tips about things to eat-- avocados, blueberries, and i am trying her suggestion of cell salts (never heard of them before, but i am desperate).

good luck, keep in touch.
julia
The good news, such as it is, is that you are very early in your recovery. One can never say with certainty, but the odds are overwhelming that you will see improvement in the days ahead.

In the interim, it's great that you are being attentive to things, like diet. Rest as much as you can and try (I know it's hard) not to worry too much.
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Old 07-28-2014, 10:53 AM #12
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Originally Posted by willgardner View Post
I feel like no one gets this (other than the people from this forum). No one wants to get it, but even if people did, would that make a difference? This is so frustrating, exhausting and depressing.

What kind of emotional support(friends/fam) do you have? who can you talk to about this? How do you release frustration/anger, etc?

EDIT: I will elaborate on this. I had to move back with my folks due to the injuries. Mother is not very understanding of the situation(or in denial) and while I get a shelter and food I get no emotional support.
You didn't mention where you live, but there may be a brain injury support group in your area; the Brain Injury Association may have one listed in your state. Take your mom and/or other family members with you.

http://www.biausa.org/state-affiliates.htm
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 07-28-2014, 01:21 PM #13
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Originally Posted by Lightrail11 View Post
You didn't mention where you live, but there may be a brain injury support group in your area; the Brain Injury Association may have one listed in your state. Take your mom and/or other family members with you.

http://www.biausa.org/state-affiliates.htm
I wish. My family is already annoyed with having to deal with me as it is. TOUGH LOVE.
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Old 07-28-2014, 01:42 PM #14
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Originally Posted by JuliaBertha View Post
Yep, nobody really gets it in my family either. It is totally messed up. I moved back in with my elderly mother yesterday, because I can't be alone due to anxiety about this. Needing ativan to sleep, probably won't be able to return to my teaching job in August. Dealing with huge sense of grief/loss/fear.

julia
I feel you, Julia. Fear/anxiety about my future is a huge part, especially given that I am yet to find a partner(which my folks are only too eager to remind me). It will crush my elderly mother if I tell her I cannot go back to my job yet. I had a huge fight with her to no avail, a couple of days ago regarding her attitude about my injuries, and I think something died in me that night. Seriously, I have been feeling different ever since. I just hope what does not kill me makes me stronger instead of leaving me more broken and damaged.
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Old 07-28-2014, 01:52 PM #15
Craig J. Phillips Craig J. Phillips is offline
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Default I believe I understand

Thank you for sharing what you have here. I have lived with the affects of a traumatic brain injury and an invisible disability for nearly 48 years. I have come to realize that denial can be like a warm blanket that people use to avoid having to feel their feelings. I have found that some people do not know how to feel their feelings.

Some people do not want to feel their feelings, so for them remaining in denial is a softer way. Other people realize -- either consciously or unconsciously that they would have to make changes if they stopped denying our realities. For them making changes is too.... I have found that trying to make people feel or change is some thing I am powerless over. With this painful reality, I have come to realize that I am the one who needs to get comfortable in my own skin.

To do this I have had to learn to accept myself in my reality, before I could stop fighting against myself. This has and continues to be a process for me *edit*



I look forward to hearing from you.

Have a great day and fun with your time.

Craig

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Old 07-28-2014, 02:17 PM #16
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Old 07-28-2014, 02:26 PM #17
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willgardner,
your post reminded me of something I read recently so I went back and found it. Maybe you've read it before and if you have, I'm sorry for posting it again.

http://sojo.net/blogs/2014/01/13/new...d-about-trauma

Read down to #9 and #10, that was the part that triggered the memory for me.

As for getting emotional support from others (family, friends), I've pretty much given up on trying to get that. I just try to accept that its difficult for people to understand things they are not familiar with and have not experienced.

And I try to remember that when dealing with that with others. I've started asking the question "What is it like for you to have xyz?" when they complain about their problem.

The biggest thing I've learned, is people just want to be heard and acknowledged about what they are experiencing. They don't want pity or someone to fix them (necessarily), they just generally want someone to hear their pain and acknowledge that its real and its shitty. They want to know they aren't alone.

The easiest way to get emotional support IMO is to pay for it. Find a good therapist and see them regularly. Its not the same as family and friends and in some ways that's a good thing... its way more dependable and its help with the proper training that doesn't have emotional investment in the relationship, so it can just be about you.

I've been seeing a rehab psychologist since about 6 months after my injury and have found her to be very valuable for many different things. Partly she helps coordinate different aspects of my rehab schedule, but she also keeps on eye on the emotional side of things and is helping me work through the acceptance part and the moving forward and "where do I go from here" stuff.

Its money well spent. Without her guidance, I wouldn't want to guess where I'd be at right now. My life is still filled with anger, upset and frustration, but having someone to help guide me through it is helpful.

Starr
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Old 07-28-2014, 02:46 PM #18
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Originally Posted by markneil1212 View Post
I'm bro I just saw this post and it looks like you posted it a while ago. Seriously you and hockey and others are the only thing that keeps me going. I know that is small consolation with what you have but if you wanted my number you can call me if you want my email you can have it if u want you messaged me you can at any time day or night I am there for you. You are the best friend I have right now loland don't forget i lol when I'm nervous and telling the truth
Mark, you are too kind. What you said means a lot.
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Old 07-28-2014, 02:47 PM #19
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Craig, thanks for the wisdom.

Sitke, thanks for the support.

Starr, thanks for the article. It was well-written. I enjoyed it.
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Old 07-28-2014, 03:06 PM #20
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Craig,

Welcome to NeuroTalk.

Please feel free to introduce yourself and tell us about your injury and how you have overcome your struggles.

I see you are involved as a Certified Rehabilitation Counselor.

Your educational struggles sound familiar.

So, welcome and please introduce yourself
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"Be still and know that I am God" Psalm 46:10
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