Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-28-2014, 07:31 AM #11
music-in-me music-in-me is offline
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Hockey,

You sound like an incredible person and a loving mom. I hope that 7 years after my injury I will remain as gracious and encouraging as you are. Your daughter is blessed with such a special mom.

" You are an inspiration...", that's what your card should read. Take care,
M-i-m
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Old 07-28-2014, 01:59 PM #12
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Hockey,

You are an extraordinary human being with a beautiful spirit. Your daughter is very lucky to have you.
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Old 07-28-2014, 02:12 PM #13
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Hi Hockey,

I have tears too reading all this. Also a part of us did die that day.

You are such a wonderful person and mom and help so many, big hugs...
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Old 07-28-2014, 02:29 PM #14
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to you Hockey.

After reading this thread I've decided that on my anniversaries I'm going to eat cake from now on... to celebrate the part of me that didn't die.

Besides, I really like cake.

Starr
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Old 07-28-2014, 02:52 PM #15
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Hockey,

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Old 07-28-2014, 03:17 PM #16
Mark in Idaho Mark in Idaho is offline
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Cake sounds good. My weight is at an all time low for the last 35 years so I can splurge.

My favorites are yellow cake with chocolate frosting and German Chocolate cake. a bit of trivia, German Chocolate cake has nothing to do with Germany. It is named for a baker named German.

Yummmmmmm
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"Be still and know that I am God" Psalm 46:10
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Old 07-28-2014, 04:58 PM #17
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Hi Hockey,

Today is my 4 year anniversary for the MVA I was in too.

I try to remember the lessons the injury has taught me more than dwell on what it took away from me...

-I am a more patient person.
-There is a place for everyone in this great, big world.
-Even slow and/or disabled people can contribute in some way and be "productive".
-Family is more important than career.
-Quality time with loved ones is what makes life special/great/fun.
-I am only human and I make mistakes and that's ok.
-Material Possessions and wealth do not bring happiness.

(Can you guys tell I'm an American?)

I'm sure there are many more things I could add - but my memory isn't what it once was...

We went out to dinner last year to celebrate being alive for the anniversary - to celebrate how far we'd come since then and to congratulate our tenacity through it all.
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Old 07-28-2014, 05:02 PM #18
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Quote:
Originally Posted by Hockey View Post
Yes, it's amazing how your whole life can change in an instant. I always tell people, don't put off the things you want to do. I try to seize the moment myself.

I've been told, if I push myself less, that I may be able to prolong the time before my spinal injuries put me in a wheelchair. However, my daughter needs me now. I want to host sleepovers, drive her to amusement parks and take her to her activities, while I still can.

If I can hold out until she's off to college, I'll be able to face the wheelchair, knowing I did the best I could for her, when she needed me most. Then, I'll try to be the best wheelchair mom any adult child ever had. Heck, you can console daughters over broken romances and lazy landlords, from a sitting position.
my 17 year old daughter just graduated this year and reading this made me cry really hard
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Old 07-28-2014, 07:54 PM #19
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Thinking of you and admiring your strength and courage!!
Your daughter is so lucky!
Here's to continued healing and less degeneration!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 07-28-2014, 10:34 PM #20
berkeleybrain berkeleybrain is offline
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yes, cake is very good!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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