Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-17-2014, 08:39 PM #1
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Default Issues when Dark outside

Hope someone might be of help on this question.

Suffered a head injury 5 months ago. During the day i have ample energy to walk several miles however as soon as it gets dark out my body/brain feel exhausted and i want to shut down. It feels as if i'm so called "out of it" or have extreme "brain fog". Is this a vision issue, brain issue or simply sleep deprivation issue?

Is this due to the fact that i have heavily struggled with severe insomnia the past 5 months (3-4 hours of sleep per night) or is it a PCS symptom?

My other symptoms are a few headaches now and then, on-going Tinnitus which is bothersome and floaters in my vision that i noticed when i look in lighted areas.


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Old 08-17-2014, 08:52 PM #2
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Default Pcs

Hello there,

Insomnia is one side effect of pcs, as is brain fog. It sounds like you are doing a lot in the day, and at night you're feeling the effects of it all. My suggestion would be to go a bit slower. Walk less, and see what else you can scale back on so you can pace your energy throughout the day.

There is also just the horrible fatigue that comes with brain healing. I don't know if that is what you are experiencing at night as well.

As for sleep, I take melatonin every night, still, and some other supplements, but they are not so much to do with the brain injury I had.

Hope this helps!

Sincerely,

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 08-17-2014, 09:11 PM #3
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This symptom is called 'sundowning.' It is common with many forms of dementia because the subject reaches their limit of energy at about the same time that the sun goes down.

What sleep hygiene have you tried to get better sleep ?

Getting good sleep takes discipline. I have struggled for 14 years and have systems I use to get to sleep.
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Old 08-17-2014, 09:57 PM #4
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oddly the only thing that helps me sleep at night is if i have a nap during the day... I may not feel tired but if I do not sleep for a few hours I am up all night.
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-17-2014, 11:22 PM #5
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Thanks for your input.

I truly hope this is i won't have permanent diagnosis of sundown syndrome or dementia as this is my first major concussion.

Unable to sleep well because my tinnitus is very bothersome. it amplifies with white noise.

I haven't had 6 hours of sleep in 6 months. I try to nap however the squealing tinnitus is so loud i can't.
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Old 08-17-2014, 11:35 PM #6
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I did not say that sundowning is an indication of dementia. I said that it is common to people with dementia as their brains fatigue later in the day at the same time as the sun sets.

Please do not try to read more into your situation than is evident. Nobody suggested a permanent diagnosis of anything.

Have you tried sleeping with music, especially soft lyrics ? The brain will focus on the understandable lyrics and may be able to ignore, even partially, your tinnitus. I find I do best with music and lyrics I know so my brain is not listening actively, more passively.
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Old 08-19-2014, 05:51 PM #7
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Thanks for your insight mark. I'm going to try good ole fashioned talk radio and see how that works.

Back in the good ole days I would always fall asleep listening to ESPN talk radio.
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