Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-18-2014, 10:31 AM #1
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Default For those of you that no longer work...

Did you make the decision to leave or did your doctor finally say... "I am sorry, you will never recover from your cognitive impairments.. you will not be able to return to work"?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-18-2014, 10:45 AM #2
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I had to stop driving in most situations. No congested traffic or busy metropolitan areas. My wife had to drive me to my remodel jobs but that got too rough on her so I finally had to apply for SSDI.

It's a tough decision. My NeuroPsych Assessment was a big part in the decision.
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Old 08-18-2014, 10:48 AM #3
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Mark- what did your neuro psych show? How long after? I know you have had multiple different head traumas but just trying to assess what my REAL chances are of ever going back to work... can the therapies that they recommend really help?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-18-2014, 11:50 AM #4
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My NPA at 1 years showed severely limited short term visual and auditory memory and slowed processing. I had it repeated at 5 or 6 years with the same results. For me, it was a slow progression over decades that was accelerated by an injury on Jan 16, 2001.

Many on NT have seen recovery take a year or more but then were able to get back to a more normal life.
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Old 08-18-2014, 01:49 PM #5
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I am still deemed "unable to return to work" by my family doctor.
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1 year post-concussion caused by a high-speed MVA.
Driver to driver head-on. I was stationary and the other vehicle hit me traveling > 110 km/hr successfully breaking my sternum.
Diagnosed with chronic neuropathic pain, PTSD, somatic symptom disorder, depression, anxiety. I suffer from daily headaches, 24x7.
Meds: On prescription medication for neuropathic pain, breakthrough pain, anxiety, depression and sleep disorder.
OTC medications used to try and keep headaches in check: acetaminophen and ibuprofen.
Treatments: Physio (declined since May '14), RMT (declined since Feb '14), Psychiatry CBT (since Nov '13), Pain Clinic Nerve Blocks, Botox and Lidocaine Infusion (since May '14), SLP (since Aug '14), OT (since Sep '14).
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Old 08-18-2014, 02:07 PM #6
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Stopped work myself and Dr said to leave until better.

I could not get anything accomplished, I'd burst in to tears, forget everything, severe headaches, had spells of not knowing where I was, getting lost on the way to different areas, it was so stressful and made everything worse.

I have been told I'll never be the same, on good days I think..blah, blah, I'm going to show them and on other days I'm a bundle of tears.
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Old 08-18-2014, 10:41 PM #7
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I was told I would probably not be able to teach (university level). I taught one course last semester. It was very tough and I did not do much else but prepare, suffer, make mistakes and lie in bed when I came home (my poor children. )

but I wanted to prove them wrong. Don't give up. It is a very hard struggle but I see progress in bits and pieces.
Take care!!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 08-20-2014, 05:28 PM #8
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From the time of my injury I was told by dr to limit myself to 10 hours a week and spread that time out. At results of 2nd neuropsych test 2 years after wreck the neuropsych told me to apply for disability immediately.
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My life has been interrupted by PCS (Post Concussion Syndrome) aka TBI (Traumatic Brain Injury) due to a car wreck April 13, 2010. It can go back to normal any day now!
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Old 08-20-2014, 06:19 PM #9
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i was still so sick 2 years after injury I couldn't stand without falling right down. and other symptoms you' rather not know about. a shame because I oved my job and nyc.
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Old 08-21-2014, 10:19 AM #10
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Quote:
Originally Posted by roadrunner63 View Post
From the time of my injury I was told by dr to limit myself to 10 hours a week and spread that time out. At results of 2nd neuropsych test 2 years after wreck the neuropsych told me to apply for disability immediately.
what happened in your accident?

I am getting very discouraged by my lack of ability to convey messages properly... it is bad when I am trying to re-finance my house and can not describe what we are trying to accomplish.. and it is simple...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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