Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-20-2014, 10:16 AM #1
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Default Think of the positives, lets play a little game

So, most if not all of us know the battle with pcs. Some are more accepting of it wether it be from time with it, knowledge of issues, or just a great attitude towards it.

Im slowly learning to accept it. It stinks, its miserable, its life changing, but life goes on, and so will we.

By no means am I say this is a negative forum, because its not, its so beyond helpful. So many caring, knowledgeable people on here that it really really helps.

We all of go through the negatives, and will do so probably for the rest of our lives. Ive been going through a real rough spot these past few days, and just cant get positive, no matter how hard I try. Then I thought about it, it could be worse, and I thought of the positives.

So lets all post some positives, both in our pcs struggle, and our actual lives. Ill start, and hopefully this can help someone, or just overall make you feel better, even if its just for the day. We can start off small, and expand upon it in later posts.

The positives of my pcs struggle:
Ive come a long way in the memory department. I finished cognitive therapy and it really turned around my memory. Sure, I forget some stuff still, but for the most part my memory is close to what it used to be, and to me thats a HUGE positive.

The positives of my life:
I have a beautiful five month old daughter, and an amazing wife.

Someone elses turn, like I said, we can start small. Then when more people join in itll click a little bit. Positives only, no negatives as that will defy the point.

This is strictly going to be used to help us get through those dark spots we all experience, wether it be daily, or just at random!
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Old 08-20-2014, 10:29 AM #2
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its funny you said that, because I just posted a new thread about how I am sleeping good after 7 years with this nightmare due to determination to find the right doctors and a combination of flexeril and ambien 12.5.

live in air conditioned house thanks to dawn. she has gone to work while I lay on the couch feeling terribly ill, ut looking like a bum, and she never loses faith or complains really.

I know it sounds impossible but I took my new ssri yesterday and, now you guys know I am not the optimist, lol, but I felt better this morning. I have always had a very fast reaction to meds, so whether placebo or not, I will take it.

maybe one day I will say this injury was a blessing ni disguise, but I HIGHLY doubt it lol lets not get crazy. but you never know in life

and to the moderators who could have kicked me off a half dozen times I am so thankful they didn't. they really care.
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Old 08-20-2014, 10:43 AM #3
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Thats the spirit Mark.

Keep that drive and determination going!
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Old 08-20-2014, 11:39 AM #4
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I have a wonderfully supportive parents who have helped tremendously with the finical burden of all of this... I have a husband who as not questioned picking up the slack during this whole ordeal... for that I am thankful!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-20-2014, 02:02 PM #5
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I am thankful for my family have been so supportive through this ordeal.

I am thankful for my neighbors who keep an eye on me and help with the physical chores that are beyond me yet. A young man who I didn't even know showed up several times a week to walk my dog for me. Colin - you are a fabulous young man and I am definitely naming my next dog after you!
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Old 08-20-2014, 02:48 PM #6
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I've found out through this injury who are my real friends and family and while I've lost a few people, I have stronger friendships with others as a result.
If this injury hadn't happened i would not have realised I was unhappy living where I was and moved cities.
I'm closer to the love of my life now (another positive; I'm so grateful to have him) and although I still feel depressed a lot, I have more support and am significantly happier here
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Old 08-21-2014, 10:11 AM #7
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Positives, well, I've learned a lot about TBI's and about the brain. And about therapy and treatment that doesn't work. And I have a lot more sympathy with other people with aphasia. I totally respect how wonderful it is to be able to communicate by talking. What a wonderful invention talking is

Oh, and my ex-husband finally leaves me alone. He won't come near me now. Yay, don't have to listen to his rants and raving.
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Old 08-21-2014, 10:26 AM #8
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Quote:
Originally Posted by kevbo887 View Post
So lets all post some positives, both in our pcs struggle, and our actual lives.
First and foremost, I can be grateful for and celebrate being alive. As my neurosurgeon later told me, upon admittance to the ER that wasn’t considered the most likely outcome of the accident.

My early NPA reported: "Patient’s speech was paraphasic with notable word finding difficulties. He misreported his age as 40. He was unable to follow a 3-step command but was able to follow some 2-step commands. He registered 3 of 3 words, but could not recall any with distraction or identify any when provided with multiple choice cues. The patient produced some confused speech and numerous paraphasic errors. He reports difficulties with memory and decision making. He does display an aphasic disturbance as well as confusion and difficulties with attention and memory."

Five months post accident, the follow up NPA reported: "On examination, the patient demonstrated intact cognition in all domains assessed including learning and memory, attention, processing speed, language skills and executive functions. He has shown an excellent recovery from his severe injury only five months age. From a cognitive standpoint there are no concerns with respect to the patient returning to work full time or returning to driving.”

Every brain injury is different and they heal differently. I consider my recovery miraculous but not unique.

Thanks for the thread, very best to all of you.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.

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Old 08-21-2014, 05:30 PM #9
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I have a lot to be thankful for. I had a supportive family. I too found my real friends and friends here too.

I took this year of healing and wrote about it. I just published my book and it's called Make Art from Your Splattered, Scattered Brain: my journey through post-concussion syndrome. It's now available at amazon.

I don't want to sound like a commercial, but doing that book was really very positive for me and I encourage anyone to find the things you CAN do to help you feel better.

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 08-21-2014, 08:44 PM #10
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I can't sit on the computer all day like I used to, so I've been doing low key chores around the house, when I have the energy. My house is so much more organized than it used to be! Papers are filed, drawers organized, books sorted alphabetically and magazines ordered by type and date. I'd trade it all to be back at work in an instant, but it's important to think of the positives. Thanks for the reminder :-)
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