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Thanks for the info. I'm not necessarily doubting her study, but when the difficulty I have believing that I'll ever get back to my normal self (even when my providers all think I have a large likelihood of doing so) is attributed largely to the comments on an internet forum of a single person I don't know who seems to know what he's talking about, and those comments are based on personal experience and a single researcher's work (at least as far as I can tell from what's been posted here), I'd like to know what they actually did in the study.
I'm not doubting your knowledge or personal experience, I'd just like to assess the primary source for myself. Edit: Bummer, I can't seem to be able to access the article through my university online. I did glean from the abstract that they induced stress by simulating low oxygen conditions, and having 10 university students with a concussion history but perceived total recovery do a test, and that they performed significantly worse than those without a concussion history. How much worse I couldn't tell from the abstract. |
Dr Dorothy Gronwall-
Amazon has a peek inside one of her books - http://www.amazon.com/Head-Injury-Ox...der_0192627139 |
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I know it is hard to be patient but chances are a year from now this board and this injury will be most likely a distant memory. You are very smart. I am too. We tend to have to KNOW what will be, not what might be. You may never know if you are 90 or 100 percent. It likely wont matter. You will be better. Some here would kill for 90% :0 So don't lose sleep over it. Just rest and get better. |
Laupala,
I have never said you will not recover from your concussion symptoms, nor did Dr Gronwall's research. What I said is that symptoms may return during times of stress. Her research in to 70's dealt with an 8,000 foot altitude oxygen level. She has done more research since then. I just have not had the funds for her more recent book. I think it is $80. Her 70's research did not address the other stresses we may face but extensive anecdotal evidence says that many other forms of stress can cause a return of symptoms. Plus, I have read other reports and articles that support this. I do not remember what the studies were like so I have not promoted those studies. And, my neuro-psychiatrist also told me this. He said that stress causes toxic chemical buildup in the brain that results in a weakened condition with a return of symptoms. These symptoms may be concussion symptoms for those with a concussion history and/or them may be symptoms of depression. He is the one that got me started on the vitamins and supplements regimen. Regardless, you still have healing to do. You may return to a symptom free condition and only need to be aware of stress issues. I don't see a reason to get worried or frustrated. As I have said many times, anxiety/stress is one of the biggest things that delays recovery. Taking a positive approach to recovery by reducing stress as much as possible is the best way forward in my opinion. There is no reason to expect to not recover from the struggles you are having now. Only a small percentage have prolonged struggles. |
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If, understandably, that seems too cold and abstract, consider this Board. Very few folks are stuck at NT long enough to get past the "member" designation. As an "elder" and a "senior," respectively, Mark and myself are anomalies on the PCS forum. We are also atypical patients. Mark has endured a number of concussions, starting in childhood. I was involved in a high speed car crash, sustaining an injury that is rarely even survived. You will do better than us - but I don't hate you for it.:winky: |
Thanks for the kind words, the kindness and compassion shown on this board in the face of such hardship is truly astounding and such a powerful resource for everyone going through PCS and TBI.
Mark, I know you nor Dr. Gronwald's research have said I'll never recover, and I hope my post didn't suggest I was calling you out or anything like that. I'm just depressed by the notion that I may have to always think about how some activity or some situation might flare up symptoms, and thus limit my life. I also know that worrying about this, or being depressed about it, isn't helping me get better. I think that thinking about every little thing I'm doing, and whether it's helpful or harmful to recovery is setting me back too. For instance, I've started volunteer coaching at my old HS cross country team since I'm taking a medical leave of absence and want to do something positive other than listening to audiobooks. I've done it for 2 weeks, 3 days a week, and the practices themselves go fine - I feel a bit more like myself, am happy, and don't seem to feel too bad. But then I get home, and if I maybe feel a little tired or have a slightly worse headache I start to worry that maybe I shouldn't be coaching, and then I get sad thinking about how I can't do so many of the things I love, and worry that this will be this cloud hanging over me for the rest of my life, directing the things I can and can't do. So that's why I find the notion that even after I recover, stress could cause a relapse, so distressing. I just don't want to have to worry about this for the rest of my life. Sorry, I didn't mean to hijack the thread! |
Your biggest problem is anxiety. Getting caught on an increase in head ache or fatigue is unreasonable. If you get a head ache, take a break. If you get tired, take a break. Think of it as a momentary clue to take a break.
If you are going to take on a busy activity, expect you MAY need to take a break afterward. Get used to the fact that you may have relapses from time to time. As your life goes on, you will begin to learn how much stress you can tolerate. You may be able to tolerate a high level of stress in certain areas and less stress in other ways. So, the head ache or tiredness is not saying you should not be coaching. It is saying you need to take a break. |
Don't forget the stages of grief, it applies to all life changes not only loss of a loved one. We go through these stages with Illness and injuries..
http://psychcentral.com/lib/the-5-st...d-grief/000617 |
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I had 2 accidents, one in December last year in which I'm pretty sure I sustained a concussion, then a minor car accident a month later, after which I started experiencing symptoms. I returned to work in July for 2 half days and it was just overwhelming and bizarre. I looked over some emails I had written before and some documents I had put together before the accidents and it was like they had been written by someone else. I can't write to that standard of English anymore or get across complex ideas. But, like you said, the thing that scares me the most is I feel like a different person. I, too, was very active both mentally and physically. I loved being smart and it was a big part of who I was, gave me a sense of validation, self-esteem and confidence. I was a very strong, social and independent person and I'm just not anymore. Now I can't use big words anymore as I'm no longer sure of their correct use and often get them wrong, so to avoid embarrassment I speak a lot more simply. I don't get jokes, either at all or quickly enough to not look really stupid in social situations (this is leading me to avoid some social situations). I have no confidence in myself anymore and I have no idea what I can and can't do in terms of my cognitive abilities. Whenever they are 'tested' by a challenging situation, then I seem to fail pretty quick. I spend most of my days doing light tasks which tax neither my brain nor my body and sometimes I feel 'normal'. I don't feel myself, but I feel like I don't have issues. However, as soon as I am mentally challenged then this all falls apart and I realise I'm still broken. I think, like you, most of all, I was happy and a very cheerful person. I don't feel like that anymore. I realised I rarely smile or take much pleasure in doing anything and it's taken me some time to accept that I am depressed. I'm 7 months in and when I first came on the forum I felt a mixture of relief at finding some answers to questions I had and sadness at the answers themselves. It was hard to read about damage being permanent, but obviously made sense when I thought about it (I studied the brain somewhat, I should have known this!). I'm also awware that it's only some stuff that can be rerouted so to speak, so there are deficits I have that I will always have. I also felt really down initially at the prospect of never being back to who I was before the accident and I think I've just started the long road of coming to terms with that. I try not to be negative about it, but instead I feel I'm being realistic. I will never be a Clinical Psychologist now. I may never have a high status/complex job (this was very important to me). I may never improve much beyond my current situation. BUT, I keep telling myself, like you said, that it could be so much worse and I can still live a very full life. I keep trying to think of all the things I CAN do and not everything I can't. |
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You are wise to try and focus on the positives. I try to measure myself by how far I've come SINCE the injury, not how I was before it. I've come a very long way, and I'm still traveling. My initial prognosis was terrible, but I decided to ignore it - and I'm glad I did. |
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