NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   TBI & PCS articles, research & other useful links (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/20875-tbi-pcs-articles-research-useful-links.html)

vini 11-26-2008 11:14 AM

try not to do to much
 
see link



http://www.utahinjurylawblog.com/200...aumatic_1.html

Mark in Idaho 02-25-2009 05:37 PM

Brain Injury Checklist
 
Here is a link to a great checklist of symptoms. It is important to track your results from behavior modifications and other responses to symptoms. We learn to help ourselves heal better that just a therapy program.

http://www.headinjury.com/checktbi.htm

vini 02-28-2009 12:57 PM

please See link for USA
 
please see link for USA http://www.biausa.org/stateoffices.htm

vini 02-28-2009 12:59 PM

Headway uk
 
please see link to headway UK http://www.headway.org.uk/

Anneteaem 01-21-2010 04:13 PM

Everyone should get vision testing if you've had a tbi/pcs
 
Hi Everyone,
After 13 months of suffering with mtbi, & pcs (I fell, hit my head on the sidewalk while walking my dog New Year's Eve morning 2008) I saw Yet another dr in my myriad of clueless medical professionals...a neuro-opthalmologist who diagnosed me with yet another issue...convergence insufficiency. I have not been able to drive for over a year now due to depth perception issues nor read very well - eyes jump / cognitive issues etc. Daily headaches! Public places, especially the grocery store are hell...visual & hearing issues etc. Google-ing "convergence insufficiency" I found a site "NORA" (Neuro-optometric rehabilitation association) that deals with vision issues after tbi/pcs. This sent me to a Behavioral Optometrist who not only confirmed the convergence insufficiency but also diagnosed "Post Traumatic vision syndrome" PTVS, which can occur from a tbi. ??? and my dr's never told me this??? After official vision testing (not the typical 20/20 eye chart whihc I'd already done - futily I must add) I was diagnosed as processing at a 7 year old level (I'm 57 - was smart & articulate b.f.(before fall)) along with issues with my ambient vision. In addition, I found another site neuroskills that deals with tbi/vision issues etc. That site under the vision section has several articles explaining the PTVS and also the issues that occur when ambient vision is skewed. These articles described my issues EXACTLY!!! I am on to something now....
I'm beginning vision therapy in 2 weeks...am hopeful that I found the right direction to help correct or at least improve my issues. I'll post back after a few sessions to update everyone.
At the very least...find a behaviorial optometrist that can check your vision for these possible issues and offer a treatment program.
Can anyone explain why the medical community refuses to look at these other alternatives....needless to say, I'm frustrated and disgusted with most (not all) medical dr.'s. and am convinced I'll have to find the right therapy/programs myself as the dr's are clueless
Thanks for listening!
Anneteaem

vini 04-25-2010 05:03 AM

Minor Head Injury Discharge Advice - Adults
 
Minor Head Injury Discharge Advice - Adults
On returning home it is important that, if possible, you are accompanied by a
responsible adult. While unlikely, there is a small risk of developing complications,
so if you experience any of the following symptoms in the next few days you
should return to A&E as soon as possible.
● Loss of consciousness
● New deafness in one or both ears
● Loss of balance or problems walking
● Any weakness in one or both
arms or legs
● Any vomiting
● Clear fluid coming out of your ears
or nose
● Drowsiness when you would normally
be wide awake
● Increasing disorientation
● Problems understanding or speaking
● Blurred or double vision
● Severe headache not relieved by
painkillers such as paracetamol
● Bleeding from one or both ears
● Any fits (collapsing or passing
out suddenly)
● Inability to be woken
Dos and Don’ts
DO make sure you stay within reach of a telephone and medical help in the next few days
DO have plenty of rest and avoid stressful situations
DO show this factsheet to a friend or family member who can keep an eye on your condition
DO take painkillers such as paracetamol for headaches
DON’T stay at home alone for 48 hours after leaving hospital
DON’T drink alcohol until you feel better
DON’T take aspirin or sleeping tablets without consulting a doctor
DON’T return to work until you feel ready
DON’T play any contact sport for at least three weeks without consulting your doctor
DON’T return to driving until you feel you have recovered. If in doubt consult your doctor.
While most people recover quickly you may experience some of the following
symptoms over the next few days and weeks, which don’t require a return to
hospital:
● Headaches
● Feelings of dizziness
● Nausea
● Sensitivity to light
● Sensitivity to noise
● Sleep disturbance
● Memory problems
● Irritability
● Restlessness
● Impulsivity and self-control problems
● Difficulties with concentration
● Feeling depressed, tearful or anxious
● Fatigue
● Difficulties thinking and problem-solving
In most cases these symptoms will resolve themselves within two weeks. However,
in some cases they may persist much longer. Try not to rush back into normal
activities, as this may delay recovery. If you still have any symptoms after two weeks
we suggest you see your GP and take this factsheet with you. It may be possible to
seek referral to a head injury specialist such as a neurologist or neuropsychologist.
For medical advice, contact your GP or call NHS Direct on 0845 46 47
in England and Wales, or NHS 24 on 08454 24 24 24 in Scotland.
For further information, support and contact details of local Groups and Branches

roadrunner63 06-24-2010 09:14 AM

FREE Pdf manuals/booklets abotu tbi
 
Lash and Associates provides free PDF downloads of manuals and booklets with information for survivors, families, caregivers, and clinicians on traumatic brain injury.

http://www.lapublishing.com/blog/cat...pdf-downloads/

roadrunner63 06-25-2010 02:46 PM

FREE Pdf manuals/booklets about tbi
 
Lash and Associates provides free PDF downloads of manuals and booklets with information for survivors, families, caregivers, and clinicians on traumatic brain injury.

http://www.lapublishing.com/blog/cat...pdf-downloads/

PCSLearner 07-27-2010 11:10 AM

Pituitary Damage
 
I caught bits and pieces of a show on TLC called "Mystery Diagnosis". The episode was about a girl who had a mild head injury. Some time later she had major symptoms of fatigue, etc. After something like 4 years her docs finally figured out her pituitary gland was damaged in the car accident.

I will post a link to the site here, although I don't think this episode is available for viewing yet. Keep checking back if interested...something to look out for for sure!

http://health.discovery.com/tv/mystery-diagnosis/

Mark in Idaho 07-27-2010 10:15 PM

TBI Survival Guide by Dr Glen Johnson
 
TRAUMATIC BRAIN INJURY
SURVIVAL GUIDE
by
Dr. Glen Johnson
Clinical Neuropsychologist
5123 North Royal Drive
Traverse City, MI 49684

(231) 929-7358
(e-mail) debglen@yahoo.com
(Web Site) www.tbiguide.com


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