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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-21-2011, 11:01 AM #1
greenfrog greenfrog is offline
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Default Q&A with Canadian concussion specialist
A recent CBC interview with a highly-regarded neurosurgeon and concussion specialist in Toronto, Canada:

http://www.cbc.ca/news/health/story/...-tator-qa.html
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Theta Z (10-15-2012)
Old 05-10-2012, 02:09 PM #2
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Default Disability Cards
If you want to get cards made to carry with you informing people about your condition:

http://www.pantheracards.com/
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex

Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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Old 05-10-2012, 06:55 PM #3
Mark in Idaho Mark in Idaho is offline
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These cards are a good idea. I make my own. They can be easily laminated with packing tape. I even make a pull tab so I can easily pull it from my wallet. Some people I know put the card so it hinges off their driver's license.

I find it is best to have multiple copies so you can hand the card to the person who needs to read it. I do this at TSA at the airport. With no need to take it back, there is a better chance they will read it all and refer back to it.

Mine says:

Please be patient with me. I suffer from a
brain injury that causes me to over-react
when confronted with shouting or someone
barking orders. I respond by getting loud.
Any assistance to help limit excessive
auditory stimulation is helpful.

I can easily print this in 12 pt type on a piece of paper that is smaller than a credit card.

I also have my ICE information on my cell phone. Emergency personnel know to check cell phones for ICE ( In Case of Emergency) information. Start the name as ICE plus 'wife Susan' or 'mother Diana, mil Debbie, ' ect. Emergency personnel know to check this right away.

This issue is an important one. One TBI survivor I know uses an iPhone/iPad app that will speak for him when he is under stress and struggling with word finding. It states the issue based on an icon he selects.
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"Be still and know that I am God" Psalm 46:10
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Dumpling15 (05-05-2013), MommaBear (05-12-2012), Mrs-B (08-27-2012)
Old 01-16-2013, 01:53 PM #4
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Default More Useful Links
Good information about TBI and concussion.

A patient's perspective.
"Sixteen years ago doctors assured me that I would return to my old self in a matter of months. To date nearly 200 months have passed since that fateful day in 1982, and I have yet to be restored to my pre-injury splendor. At this point I am pretty much convinced that the effects of post concussion syndrome will plague me into my golden years."
http://www.headinjury.com/linktbinih.htm

I found the Tool Kit helpful as well.
http://www.headinjury.com/library.htm#toolkit
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Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea
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Old 03-29-2013, 05:24 PM #5
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Thanks Chemar for the help and the links!! MUCH appreciated! )
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Old 04-27-2014, 12:05 PM #6
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Default You'll be okay!
Quote:
Originally Posted by pierre93 View Post
hey guys

i need help , about 2 -3 weeks ago i was at the gym and a rubber (but heavy) weight fell on my head , it didnt knock me out but about 20 mins later i felt strange and drousey and had to be rushed to hospital by my family , they did a CT scan and everything was fine. The next day i felt ok and returned to work the day after , but i noticed i started feeling strange , 3-4 days after my injury i was at work and just felt terrible all of a sudden everything became super bright and noisy , i felt so overwhelmed i called my manager and said someone needs to cover for me and was crying. i felt like i was going CRAZY!!

for the whole of that week i felt DRAINED , i had a very weird heavy feeling on my left side , it was teriible i literally could not do anything my brain just felt fried. During that week i had a consultation booked (i have cosmetic surgery booked) i just felt still really low and heavy , the surgeon advised for an ambulance to be called , they took me there and i was told i had post concussion and i need to rest and time off work.

i must say i feel like ive improved since my first week but i still feel so terrible. im still sensitive to light and loud sounds , i have a weird kind off numbing feeling on the left side of my head and kid of in my ear , i feel so " not on earth" its like im dreaming , i just feel so down and stressed , my home dont feel like my home anymore , i feel so alone , i used to love watching youtube videos and movies and i just cant anymore because i cant concentrate , time just dont feel like it use to be , i go to sleep like this , wake up like this and its so overwhelming to deal with

i had soooooooooo much planned , surgery , a trip booked to america with my friends , i just cant see it all happening now , this has effected my life so much!!! im only 20

I'm new to this forum (a fall in my condo 8 months ago has me dealing with similar symptoms to yours). If you rest and don't try to push through it you will heal. Reading through the stories on this forum gives me hope. I had a very similar experience to you. I didn't realize I had a problem at first and now here I am with getting tired just from talking to my friends, sensitivity to noise and getting dizzy from just walking.

BUT each week when I don't overdo it I do see improvement. The key is to have patience. It sucks to lose your social life, especially at your age when going out is expected but you just have to tell your friends you are sick and just stay home. Let yourself heal now. It's better to have a boring year at 20 than to live it up in misery and suffer for longer. Rest now so you can enjoy the rest of your 20s when you are ready.

You might want to postpone the trip - America isn't going anywhere. Our pizza will be here waiting for you over the next 80 years of your life. You will get here!

When you are depressed come to this forum and see there are people who understand.

Hang in there!
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Old 07-24-2014, 08:56 AM #7
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Default Useful and informative link on recovery from PCS
http://bianj.org/wp-content/uploads/...rommildtbi.pdf
Last edited by Lara; 06-06-2015 at 05:46 PM. Reason: Fixing broken link
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Old 06-06-2015, 05:35 PM #8
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Default Chronic Post Traumatic Headaches
In my travels just now I found an interesting article about headaches associated with Post Concussion Syndrome.

Just thought I'd add on there in case it's of help to someone...

http://www.hacoop.org/professionals_5_1.html
Chronic Post-Traumatic Headache (2003)

Thomas N. Ward, MD and Morris Levin, MD
Co-Directors, Dartmouth Headache Center
Lebanon, New Hampshire
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