Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-28-2014, 01:48 AM #1
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Help Possible to Return to 100%

I just read the TBI guide (*link attempt edited*).

The author says it is impossible to get back to 100% but we just have to cope with what has become of us (whether it is 99% or 80%).

The prospect of permanent damage is very disturbing to me.

Are there any cases where a full recovery has been measured and quantified (e.g. IQ scores before concussion and after recovery)?

What are your thoughts?

Last edited by Chemar; 08-28-2014 at 06:03 AM. Reason: sorry but no links in any form are allowed for new members
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Old 08-28-2014, 07:05 AM #2
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Hi chgs,

I believe I have read a comment from a neurologist in a medical magazine in which he stated those who have suffered a mild concussion and have a quick resolution in their symptoms can recover 100%.

I was told in Neuro rehab that more complicated brain injuries don't recover to 100%, but a great amount is possible to recover. As you wrote " whether is is 99% or 80%", these numbers are still very doable, as long as you learn workarounds.

I only know of lightrail's recovery here on this site, where he received Neuropsychological testing twice, and demonstrated improvements after a pretty big injury. When was your injury, and what symptoms are you experiencing?
Take care, M-i-m

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Old 08-28-2014, 07:13 AM #3
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I was talking to a doctor yesterday at my neurophych she said that in the first year you have the greatest chance of recovery.. normally what is left after the first year you are stuck with ALTHOUGH there are studies that will show some very slow progress up until the 2nd year..
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-28-2014, 08:12 AM #4
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A quote from something I read at BrainFacts.org.

Myth- Brain Damage is always permanent.

After more serious brain injury, such as stroke, research indicates that — especially with the help of therapy — the brain may be capable of developing new connections and “reroute” function through healthy areas.
BrainFacts.org
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Old 08-28-2014, 08:20 AM #5
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The literature that I have read indicates that even mild TBI causes lasting loss of neurons in the brain.

My concussion was just over a week ago and resulted in unilateral pain, nausea and mild brain fog. Not as bad as many others, but still very troubling.

I believe symptoms are both functional and structural. Unfortunately, structural damage to the brain seems to be permanent. If someone could show any evidence to the contrary, it would be very helpful to us.

Why is it that some people recover so well and others don't? Is it down to genetics or are there environmental factors that we can take advantage of to help recovery?
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Old 08-28-2014, 08:24 AM #6
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Quote:
Originally Posted by thedude58 View Post
A quote from something I read at BrainFacts.org.

Myth- Brain Damage is always permanent.

After more serious brain injury, such as stroke, research indicates that — especially with the help of therapy — the brain may be capable of developing new connections and “reroute” function through healthy areas.
Yes, I agree, but doesn't this imply that the damaged neurons are lost already, and the brain is just attempting to compensate by using the remaining healthy areas?

This is my biggest fear, and I hope someone can show evidence to the contrary. I am hoping for evidence of neurogenesis after MTBI, not neuroplasticity.
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Old 08-28-2014, 10:14 AM #7
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The brain never recovers to 100%. It may recovered to an appearance of 100% but it will be less tolerant to stress. When under stress, the less than 100% recovery may be evident.

You are far too early in your recovery to be worried about how much you will recover. You may recover to 99%. Nobody can predict how much you will recover.

What specifically are you afraid of ? Plenty of people live full lives with residual symptoms from a brain injury.
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Old 08-28-2014, 10:33 AM #8
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Yes, what is lost does not heal. Science refers to the process as Neuroplasticity (or brain plasticity).

My brain scan shows evidence of a prior injury to the brain. I interpret that to mean brain damage. However, the good news is that when you excercise your brain it responds by adapting. At least, that is how I understand it.

Another quote:
Brain plasticity is a common term used by neuroscientists, referring to the brain's ability to change at any age – for better or worse.

brainHQ from Posit Science
http://www.brainhq.com/brain-resourc...ain-plasticity

I interpret the words 'better or worse' to mean, 'use it or lose it'. Your brain can and will adapt if you give it the chance.
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Old 08-28-2014, 12:05 PM #9
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this lady's blog give hope for those who's injuries don't resolve in 6/12 months
http://www.fightingpcs.com/about/

took her 5 years, but she's back to being a triathlete.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-28-2014, 12:40 PM #10
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Underwater, this quote jumps out at me:
My advice to anyone going through this: never give up. Find and focus on little successes each day. Eventually they may add up and the good days will start to outweigh the bad.
Emphasis mine.
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