Currently trying it. Had 1 round of 3 - did not touch the pain. Waited 3 weeks for it to kick in - had to go back to my regular doc to up my pain meds. Guess I will try the 3 rounds but not hopeful. Keep telling them that I do not think it is the same pain as migraines - but since I never had one of those can't back it up much. It is my brain that hurts - it feels raw. I guess they don't get it.
GB

new "headache" neurologist concurred that while Botox may help with some of the pain a lot of it will not be helped... she put me on an antiquated drug that they use as part of a cocktail with Verapamil to see if that will help... we will decide in 2 weeks...

Ginger..RAW is the perfect word!! I couldn't explain how my head and neck felt. I would say it felt like it was rubbed over and over on concrete. they'd look at me like I was nuts. So far nothing has worked.

Doctor who does deep brain stimulation said he's meet with me but that is a mighty big step

Hey markneil - I said the exact thing to my doc - I feel like someone is slowly dragging my brain across the sidewalk.

Nice to know some gets it:p

I just had my second round of treatment last week. So far, so good. It has changed my life and had gotten me out of the "dark room". They also injected the left over into uber tight muscles: traps, scaps and rhomboids on my left side.

Well considering my accident aged me a good 10-20 years i'm pretty sure that after this nightmare i'll consider some botox to preserve whatever looks are left.

botox
 

not sure but this botox is not the same potency as the stuff used in cosmetic procedures.

I go next week for my consult to see if im a candidate for it. Im not having high hopes for it.