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Old 09-05-2014, 11:12 AM #11
GingerandBella GingerandBella is offline
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Originally Posted by SarahSmile0205 View Post
Thoughts on this??? I am torn...
Currently trying it. Had 1 round of 3 - did not touch the pain. Waited 3 weeks for it to kick in - had to go back to my regular doc to up my pain meds. Guess I will try the 3 rounds but not hopeful. Keep telling them that I do not think it is the same pain as migraines - but since I never had one of those can't back it up much. It is my brain that hurts - it feels raw. I guess they don't get it.
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Old 09-05-2014, 06:23 PM #12
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new "headache" neurologist concurred that while Botox may help with some of the pain a lot of it will not be helped... she put me on an antiquated drug that they use as part of a cocktail with Verapamil to see if that will help... we will decide in 2 weeks...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-05-2014, 06:47 PM #13
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Ginger..RAW is the perfect word!! I couldn't explain how my head and neck felt. I would say it felt like it was rubbed over and over on concrete. they'd look at me like I was nuts. So far nothing has worked.

Doctor who does deep brain stimulation said he's meet with me but that is a mighty big step
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Old 09-07-2014, 08:10 AM #14
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Ginger..RAW is the perfect word!! I couldn't explain how my head and neck felt. I would say it felt like it was rubbed over and over on concrete. they'd look at me like I was nuts. So far nothing has worked.

Doctor who does deep brain stimulation said he's meet with me but that is a mighty big step
Hey markneil - I said the exact thing to my doc - I feel like someone is slowly dragging my brain across the sidewalk.

Nice to know some gets it
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Old 09-19-2014, 06:30 PM #15
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I just had my second round of treatment last week. So far, so good. It has changed my life and had gotten me out of the "dark room". They also injected the left over into uber tight muscles: traps, scaps and rhomboids on my left side.
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1 year post-concussion caused by a high-speed MVA.
Driver to driver head-on. I was stationary and the other vehicle hit me traveling > 110 km/hr successfully breaking my sternum.
Diagnosed with chronic neuropathic pain, PTSD, somatic symptom disorder, depression, anxiety. I suffer from daily headaches, 24x7.
Meds: On prescription medication for neuropathic pain, breakthrough pain, anxiety, depression and sleep disorder.
OTC medications used to try and keep headaches in check: acetaminophen and ibuprofen.
Treatments: Physio (declined since May '14), RMT (declined since Feb '14), Psychiatry CBT (since Nov '13), Pain Clinic Nerve Blocks, Botox and Lidocaine Infusion (since May '14), SLP (since Aug '14), OT (since Sep '14).
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Old 09-19-2014, 07:05 PM #16
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Well considering my accident aged me a good 10-20 years i'm pretty sure that after this nightmare i'll consider some botox to preserve whatever looks are left.
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Old 09-24-2014, 07:42 PM #17
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Originally Posted by martin82 View Post
Well considering my accident aged me a good 10-20 years i'm pretty sure that after this nightmare i'll consider some botox to preserve whatever looks are left.
not sure but this botox is not the same potency as the stuff used in cosmetic procedures.
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What happened - MVA
Multiple injuries - here for support of mtbi, chronic headache and cognitive deficits.
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Old 09-24-2014, 07:46 PM #18
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I go next week for my consult to see if im a candidate for it. Im not having high hopes for it.
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