Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-03-2014, 04:20 PM #1
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default saw new doctor with some new ideas

new ideas behind what is causing my symptoms.

She said waking up with body burning usually during pleasant or intense dreams is possibly a reroute of the brain's switch sending out pain for pleasure signals. '

She also said that early on in my injury, what happens when one neuron dies is that it sends out toxic material that damages the next one an so on for a while after initial injury. I couldn't grasp that part so well.

the internal tremors she said sound like norepinephrine being overproduced and excreted at the wrong time when waking/

since both of these happen when I awaken, she said a problem could be thalamus and brain stem misfiring to each other..

As for treatment she didn't have a clue. But it was something.

So Kevboy/sarasmile/hockey/sitke and a few other of you could come around one day and repair my thalamus and brain stem one day this week. I just bought a neat set of tools!!!
anon1028 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (09-03-2014), Mokey (09-03-2014), underwater (09-03-2014)

advertisement
Old 09-03-2014, 05:20 PM #2
Bruins88 Bruins88 is offline
Member
 
Join Date: Mar 2014
Posts: 410
10 yr Member
Bruins88 Bruins88 is offline
Member
 
Join Date: Mar 2014
Posts: 410
10 yr Member
Default

Im good with a chainsaw Mark!!
Bruins88 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon1028 (09-03-2014), underwater (09-03-2014)
Old 09-03-2014, 07:30 PM #3
SarahSmile0205's Avatar
SarahSmile0205 SarahSmile0205 is offline
Member
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
SarahSmile0205 SarahSmile0205 is offline
Member
SarahSmile0205's Avatar
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
Default

Quote:
Originally Posted by markneil1212 View Post
since both of these happen when I awaken, she said a problem could be thalamus and brain stem misfiring to each other..

As for treatment she didn't have a clue. But it was something.

So Kevboy/sarasmile/hockey/sitke and a few other of you could come around one day and repair my thalamus and brain stem one day this week. I just bought a neat set of tools!!!
This makes so much sense with all I have read... I actually asked my neurologist about damage to the thalamus and she said it was possible but had no way to test for sure... maybe I need to bring that up again...

Heck, if the tools work on your head maybe we can do mine after!!!
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
SarahSmile0205 is offline   Reply With QuoteReply With Quote
Old 09-03-2014, 07:33 PM #4
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

I read some years ago that when a neuron dies, it send out tRNA (transmitting RNA) to the neighboring cells telling them to shut down to create a barrier or demarkation line so that no damaged cells try to function and disrupt the proper function of the healthy cells.

Obviously, this is not a prefect system as many are left with neurons that malfunction causing seizures and such.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon1028 (09-03-2014)
Old 09-03-2014, 08:04 PM #5
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

Quote:
Originally Posted by SarahSmile0205 View Post
This makes so much sense with all I have read... I actually asked my neurologist about damage to the thalamus and she said it was possible but had no way to test for sure... maybe I need to bring that up again...

Heck, if the tools work on your head maybe we can do mine after!!!
I guess there is no way to know for sure unless a glaring lesion shows and there should be in this day and age. most of my issues stem from thalamus brain stem and cerebellum functions

I know when I had that attack when mixing the nardil and beer three doctors told me I had a thalamic insult, bruise and stroke whatever that means. still don't know....sara if my surgery is a success your next
anon1028 is offline   Reply With QuoteReply With Quote
Old 09-03-2014, 08:22 PM #6
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
I read some years ago that when a neuron dies, it send out tRNA (transmitting RNA) to the neighboring cells telling them to shut down to create a barrier or demarkation line so that no damaged cells try to function and disrupt the proper function of the healthy cells.

Obviously, this is not a prefect system as many are left with neurons that malfunction causing seizures and such.
Mark, you are correct as I looked it up and read about it. As for a part of the damaged neuron damaging others, I could be wrong as I was having a hard time understanding her
anon1028 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
doctor is stumped, I"m a mess, any ideas appreciated aesedai Traumatic Brain Injury and Post Concussion Syndrome 10 06-21-2012 06:33 PM
Had 3 new pain doctor appointments....new ideas firegirl Reflex Sympathetic Dystrophy (RSD and CRPS) 12 08-09-2011 06:55 PM
Pain med ideas I compiled - any ideas? Sydney Chronic Pain 1 02-24-2007 01:54 PM


All times are GMT -5. The time now is 06:34 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.