Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-01-2014, 12:08 PM #1
underwater underwater is offline
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Default should i get an MRI

Hi all,
Would love some advice. I waved off the offer of an MRI/CT from my neurologist months ago since we both assumed it would show nothing. I'm on private disability through my employer and so far so good with them believing me.

One of my ongoing problems is throbbing in my head whenever i stand up, move too quickly and most of all go up stairs/inclines. I'm hoping getting off amatryptaline and increasing my low BP with salt and exercise will help, and it has gotten better since months ago when i felt like my whole head shook when i laid down on my pillow.

But i'm sorta despairing that i'll never be able to hike faster than a 90 yr old. I know i shouldn't say never. But would an MRI/CT scan be of any benefit at this stage in answers/treatment for the pounding (which isn't really painful, just worrisome, and gets worse if i overdo it cognitively or physically)?

I suppose i don't have to share the results w/ the disability company anyway if they are negative. but i suspect there's no real treatment for this, so should i bother?

thank you, folks who i've come to think of as friends
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 09-01-2014, 01:16 PM #2
Mark in Idaho Mark in Idaho is offline
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It does not sound like you have any symptoms that suggest an MRI or CT Scan would help. A CT Scan would just be a recklessly huge dose of X-Ray radiation.
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Sitke (09-01-2014), underwater (09-01-2014)
Old 09-01-2014, 02:05 PM #3
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I am on private disability and have not had to share anything... even if an MRI does not show anything it does not mean that there is not an issue... I think you should have it done...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-01-2014, 07:47 PM #4
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I agree with Mark in that it doesn't sound like an MRI or CT scan would help (show anything) but for your peace of mind maybe have an MRI? I would.

I'd stay away from the CT scan though.

MRI's don't show everything either so as Sarah says it doesn't mean nothing is going on.

Don't know how long you've been suffering with this but I had the same problems for months and still do 17 months later, it sucks, I know. I used to hold my head when walking, now I'm so darned used to it!

Feel better...
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Old 09-01-2014, 09:31 PM #5
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What peace of mind will you get from an imaging that does not show concussion injuries anyway ? Don't waste your time or the expense unless you have access to a Diffusion Tensor Image MRI. Even a DTI is a little late. It might possibly have shown something early on.
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Old 09-01-2014, 09:40 PM #6
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Quote:
Originally Posted by Mark in Idaho View Post
What peace of mind will you get from an imaging that does not show concussion injuries anyway ? Don't waste your time or the expense unless you have access to a Diffusion Tensor Image MRI. Even a DTI is a little late. It might possibly have shown something early on.
Mark, why does it not show later on? just curious because I was thinking of getting dti for disability in the city. my symptoms have progressed and the regular mri has shown nothing. what a worthless test.

I still remember getting my first mri after months of terrible terrible headaches an when she said it was negative, I thought she was joking.
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Old 09-01-2014, 09:43 PM #7
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thanks everyone, really appreciate it. so what is the pounding anyway? vascular restriction due to damage?
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 09-01-2014, 09:49 PM #8
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I was always under the impression it was a vascular issue, but then I just read this earlier today...

It's very interesting

from PsychCentral
Throbbing Pain Linked to Alpha Brain Waves, Not Pulse

Uni of Florida - College of Medicine
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Old 09-02-2014, 10:25 PM #9
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I'd definitely do the MRI but that's me

People can tell you what they would do but in the end it's up to you and if you feel you want to get one, go for it.
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Old 09-02-2014, 10:42 PM #10
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I don't GET it. If my finger hurt SO bad for a month straight, I would bet my savings (if I had one ) that something would show on imaging test somewhere. The first six months of my head injury, I couldn't even explain the pain in human terms, just make noises and I couldn't BELIEVE the test was negative. I know the reasons behind it, but it's 2014. Come on man. If the BI didn't cause depression, I wouldn't be on ssdi and that's just wrong in this day and age.
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