Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-03-2014, 12:51 AM #1
Mokey Mokey is offline
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Default Remembering my state of mind just before my accident

I went in to my office today to prepare to teach a class. It was a class I had prepared to teach the week before my accident three Septembers ago.

It is funny how pulling up the file on the computer and seeing the date on it triggered a very strong sense of how I must have felt in those pre-brain injury days.

It was a very strong feeling and I was overcome with emotion. I thought back to when I was preparing the course materials pre-brain injury and reflected that I would have had no idea that my life was about to change forever. I was in a very happy space, with such optimism for the future.

That led me to the feeling that as I was preparing today for tomorrow's class I have no way of knowing what tomorrow might bring. We only have the moment we are now living.

I hope nothing bad happens to any of you tomorrow or to myself for that matter!

I feel very sad tonight after that experience. On top of that my son was cleaning out his room and pulled out a box with some photos of me pre-injury. I look bright and alive in them. Not how I feel these days. I am sure there are some of you who share my emotions. I wanted to share this and wish everyone continued healing, personal growth and love. Carpe diem. It is all we have!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.

Last edited by Mokey; 09-03-2014 at 04:16 AM. Reason: Typo
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Old 09-03-2014, 01:42 AM #2
anon1028 anon1028 is offline
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I distinctly remember before getting sick that I had made it. I would have the house, the car, and perhaps marriage and kids.

I wont put any definites on the future but it would be very shocking if I attained those now, 9 years later and with this chronic injury.

It is what it is.

Once again I add the disclaimer that I had multiple bad injuries and those of you who are new to the injury can make remarkable progress in the coming months.

The only good thing about this injury was meeting people like yourself on the board. A good, caring bunch.
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Old 09-03-2014, 11:07 AM #3
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SarahSmile0205 SarahSmile0205 is offline
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I have grieved a lot of pre-accident days... my accident was on my sons 5th birthday... a day he will not soon forget and tells people all the time that his mommy's head was knocked around on his birthday in a car accident and it was the worst birthday ever... makes me sad but I know that one day I will learn to live with all of this and be able to be back to spending good birthdays with my kids!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-03-2014, 11:44 AM #4
Mokey Mokey is offline
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".. my accident was on my sons 5th birthday... "

That is awful, Sarah. Hopefully the energy from the joy of your son being born can conquer the awful thing that has happened to you.

Wishing you continual improvement and hoping that someday you don't even think about your accident when the birthday roles around!!

Take care.
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.

Last edited by Mokey; 09-03-2014 at 02:12 PM. Reason: Tupo
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