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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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being done over the bridge in Manhattan by a lot of places. should I look into it for the waking internal tremors and the pain, as well as the ocd? I don't know much about deep brain stimulation but reading more.
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#2 | |||
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Wish I could help but I know nothing about deep brain stimulation... what does it entail?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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#4 | |||
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interesting... like a tens machine?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | anon1028 (09-04-2014) |
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#6 | ||
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Legendary
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I only know about DBS as it relates to treatment in OCD and Tourette's Syndrome.
It's usually only used in treatment resistant patients. The results are sketchy to say the least. I would be very wary and thorough in any research you do if you are entertaining going down this route. http://www.ocfoundation.org/EO_DBS.aspx Deep Brain Stimulation for Highly Treatment-Resistant OCD By Darin Dougherty, MD, and Benjamin Greenberg, MD, Ph.D. http://www.ocfoundation.org/dbs.aspx Deep Brain Stimulation (DBS) What I'm posting below from TSA-USA is obviously not related to your conditions, but there is helpful info. there particularly in the section "What is deep brain stimulation". http://tsa-usa.org/dbs/DBSfall09x.html TSA-USA - Questions about TS and DBS Quote:
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"Thanks for this!" says: | anon1028 (09-04-2014) |
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#7 | |||
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Member
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Have you looked at the Ceflay device? it is $400
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | JuliaBertha (09-04-2014) |
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#9 | ||
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Junior Member
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Hi
I recently went had DBS in July and with much success. Prior to DBS I was in a wheel chair half of the day. My on and off was constant sometimes 5 minutes on and thanw off. I was on high dosage of carbo/levo which was causing Paranoid and delusions. I was depressed all the time and not able to function at times except with help. DBS was done in 3 steps. The first step was the two holes in the head where the wires were attached. A week later a stimulator was implanted in my chest under the collar bone. The procedures were not painful and I continued my regimen of medications. About 10 days after the stimulator was implanted the doctor turned on the power. I was amazed and able to walk again. I was also able to turn over in bed which had become a huge problem. My second visit the neuro turned it up further and , as in the first session, reduced my medications again. I am returning next week for my third session. ![]() Damon4309 |
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#10 | ||
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Legendary
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Hello damon,
I'm pleased to hear that the DBS is helping you manage your Parkinson's symptoms. It's always so good to hear such a positive outcome. |
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