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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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09-08-2014, 02:33 PM | #1 | ||
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Im frustrated. So beyond frustrated. The headaches and migraines are just torture at this point.
Ive expended the medicines I can use for headaches and migraines according to my neurologist. Ive tried at least 20, and none touch them besides zomig (which I can only take 9 a month, and wc wont pay no more and its over $500 for them so I cant afford it). Im allergic to sulfa, and he says most are sulfa based, so im out of luck. Ive been taking at least 2-4 excederine (minus the caffeine, I went Marks way and got them individually, but I forget there names right now) a day and 10-12 ibuprofen a day. This has been going on now for almost 2 months, along with taking my amytryptolin at night. My stomach cant handle it anymore, my belly is beyond swollen, and I can barely eat, and have massive (sorry) diarrhea. Havent taken the excederine and ibuprofen in almost a week. My heads at an all time worst, and the seizures are full bore. What else is there to try that is OTC? Im waiting on authorization for a headache/migraine specialist, but its still at least a few weeks out. Dont think I can stand a few more weeks of these. This is probably the worst ive been since the injury in January. I cant function worth a dime because these migraines are so non stop, and cant even sleep because they pound so much. Oh, and the tinnitus is back big time as well. ARRRRRRGHHHHHHHHH SORRY I HAD TO VENT |
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"Thanks for this!" says: | Lara (09-08-2014) |
09-08-2014, 02:55 PM | #2 | ||
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Legendary
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I'm really sorry to read how bad the pain has become.
I read an interesting article about post trauma headaches and the doctor was talking about how important it was to find the true cause of the problem first, so that specific treatments can be used. different cause of headaches / different treatments. BrainLine Talks with Dr. Nathan Zasler Post-Traumatic Headache after TBI |
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"Thanks for this!" says: | EsthersDoll (09-08-2014), Hockey (09-08-2014) |
09-08-2014, 03:16 PM | #3 | ||
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Well ive had a neuropsych, and they know where the damaged areas are, and confidently think they know where seizures are coming from but still nothing being done.
Fed up. |
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"Thanks for this!" says: | Lara (09-08-2014) |
09-08-2014, 04:57 PM | #4 | |||
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Kev, I am so very sorry!!! I know how debilitating headaches can be... Can you call and see if there is a cancelation and you can get into someone sooner? Where are the headaches? Do you know what kind they are, aside from post traumatic?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | Lara (09-08-2014) |
09-08-2014, 05:25 PM | #5 | ||
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Mostly on the left side. They start around my eye socket and create a ton of pressure, and then radiate on just the left side of my head. Usually lasts for a few hours. I then get a little break, but usually a tension headache pops up. Then it starts over again in a few hours.
Thats the vast majority. The ones that wake me up at night are in the back of my head. At the very crown of my head, just a pulsating headache like im being held upside down and the blood rushes to my head kind of throb. Usually followed by a left side migraine. I occasionally get a temple to temple headache, which I assume is a tension headache. |
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"Thanks for this!" says: | Lara (09-08-2014) |
09-08-2014, 08:26 PM | #6 | ||
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Should add I occasionally get the same thing on the right side but its much rarer.
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"Thanks for this!" says: | Lara (09-08-2014) |
09-08-2014, 10:34 PM | #7 | ||
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HI
My daughter had acupuncture and it relieved the headache right away. We were at Stanford Integrative Clinic in Palo Alto, CA. The headache came back within a few days but that gave her some relief. We eventually found a local acupuncturist here in Santa Cruz, Ca and a different type of acupuncture was given which helped for a longer time period. If you have the ability to interview the acupuncturist, you could ask them if they have dealt with mTBIs/TBIs. The headaches are so bad....I sorry that you are going through this. |
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09-09-2014, 08:49 AM | #8 | |||
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I have the EXACT pain but mine starts on the right... currently my fix is alcohol every other day... but i should mention I DO NO RECOMMEND THIS OR CONDONE THIS! I do however think that there is something to EstersDoll theory,...
I have done the acupuncture.. it is great for relaxation but did nothing for MY pain... may help you though... I also did dry needle and cupping... I really hope you find that "thing" that makes you feel a bit better even if temporarily... are you in a state where you can get your hands on medical marijuana? and possibly find a strain where you do not get the rebound headaches?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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09-09-2014, 08:49 AM | #9 | ||
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Ya ive tried acupuncture. Also had mri and ct of head sinuses were fine.
Im thinking the otc meds for so long and so often have taken a toll on my kidneys. Already had bad kidney function for years from untreated hypertension. Last night I woke up w shooting pains in my kidney area and extremely sick. Dunno, dont feel well enough to go pcp today, maybe ill go tomorrow. |
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09-09-2014, 08:57 AM | #10 | ||
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Yes I am in a state that does, but no thank you on that.
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