Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-06-2014, 06:50 PM #1
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Default Rest time: what's allowed

Sorry symptoms are bad now can't search the forum properly. It probably was discussed.

I tried doing nothing, i.e., being in a dark room. Laying on my back. And meditating. I can't do that for more than 2 hours a day. Then i try to sleep frequently. I still have about at least 10 hours to kill.

What is allowed? I guess, what is the least harmful....?
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Old 09-06-2014, 07:06 PM #2
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My rule when my concussion was fresh was nothing that took more than one sense... or at least tried... I did watch some TV.. I did play games on my phone... but I did these things for short periods of time...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-06-2014, 07:17 PM #3
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Weren't you jogging or running recently?

I hope you're not doing that still.
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Old 09-06-2014, 07:24 PM #4
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Another rule of thumb is doing things that are manual in nature. Playing solitaire with real cards. Doing hand crafts. Basically, if you limit your stimulation to the speed that your hands can move, the brain should be able to remain relaxed. Playing a musical instrument would be OK. Learning card tricks. Drawing, sketching, etc. Avoid any activity that causes frustration.

Knitting or crocheting works too. NFL football players do both to relax.
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Old 09-06-2014, 08:51 PM #5
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Thanks all.

Lara: yes, i previously went back to jogging since my symptoms were gone after 2 weeks, so by early august i was doing very well. I started slowly and increased. My mistake is that on aug 20 or so, i ran fast... That put me back at square one. Since my symptoms came back i have not been running

Mike: when i have symptoms i find it much harder to play piano without getting more dizzy, in comparison to say reading stuff on my ipad or playing chess, or doing low intellectual browsing of internet...

What are your thoughts on ipad time?
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Old 09-06-2014, 08:56 PM #6
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you'll probably bounce back pretty quickly if you were jogging slowly w/o symptoms recently. doing nothing gets a lot easier with time.

i did a little watercolor when i was desperate. just shades of blues and greens.
very soothing.

and i lay around on my yoga mat and stretch.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 09-06-2014, 09:02 PM #7
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Playing the piano may be too much two handed demand on your brain. Chess requires planning multiple steps/moves. That is a strain on the brain.

If the activity causes any symptoms, it is likely too much strain.
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Old 09-07-2014, 07:58 AM #8
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Is reading allowed? I've been doing some...For short periods of time though.
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Old 09-07-2014, 04:28 PM #9
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what about music?
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Old 09-07-2014, 04:51 PM #10
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In my experience, one needs to learn to recognize the early signs of brain fatigue. For me, if I was reading, I would find myself rereading a line to make sense of it. I might start trying to squint to see something. My eyes might start to feel tired. I might need to work harder to focus on a task.

There are plenty of other ways one might shows signs of fatigue. Learning to read our own bodies is important. Pushing through the fatigue just extends the time needed to recover.
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