awsome thread - please keep us posted - especially if you see this specialist!

I most certainly will... And thank you for the pituitary discussion. Although, I had testing done by my PCP....I am now in question as to whether seeing an endocrinologist is not beneficial, just to have the clarity.

Sure. There are several different hormones that can be deficient, not just the thyroid and the levels that indicate a deficiency are different after a brain injury and most PCP's don't know that. Unfortunately, most endos don't know that either... if you do go to one, go to one with experience with this sort of thing. If you have any questions, feel free to reply or PM.

My MRI showed evidence of a prior injury to the brain and evidence of white matter disease. My family doctor said the white matter was nothing to worry about, and that it was indicative of normal aging.
Jamie

[QUOTE=thedude58;1096597]My MRI showed evidence of a prior injury to the brain and evidence of white matter disease. My family doctor said the white matter was nothing to worry about, and that it was indicative of normal aging.
Jamie[/QUOTE

That is correct if you are over 60. However, having diffuse white matter disease at 41 is not indicative of aging. There is significant scientific proof that TBI and white matter disease are related in the aspect of injury. Think about it this way....

If you hit your arm hard enough the small vessels under your skin will break, therefore lead to small bleeding causing a bruise. The white matter in your brain the same....if your brain accelerates/decelerates enough, the same. Most small vessels cannot withstand too much injury, without atrophy.

Thanks for that, I'm 57 and the scan was about a year ago. I understand the machanics of the damage, and that it does not necessarily show up in an MRI.

I have made some phone calls today, one to the doctor who wrote the articles...She is actually a Neuroradiologist, and is working with informing the medical community about differentiating white matter disease impact after brain injury. Which, this lead me to a sports concussion clinic whom deals with nothing but TBI, I made an appointment. I also was able to discuss my situation with a doctor there over the phone. First, everyone does not respond to all vestibular therapies, more than often your treatment will have to be modified to you...so if it is not working you need to be with a specialist who is trained adequately to know there are other treatments and that you need them. If you are not with a therapist that is capable of doing, find one who is. 2. White matter disease showing up on an MRI of someone under the age of 60 post head injury IS indicative of areas that the brain received damage. It was explained to me, that even though most doctors will blow this off, if you have had a concussion and your MRI is positive for this, this needs to addressed. This is a leading cause to memory problems. 3. There is hope in making things manageable. The right specialist will know how to effectively treat you, the problem has been, what is not known by most doctors regarding TBI is blown off. They don't know how to address a problem that they are so unfamiliar with.

So, now that I know that several of my doctors are in the unknown and have lead me down a path of feeling stuck in this state forever. So, they will not be my treatment physicians for this.

I will let you all know what information I can gather.