[anon1028]

Every Single Day there is a post in the Parkinsons room about a new treatment or clinical trial, it seems.

I do hours and hours of reading and the Vast majority of promising trials and treatments are for Parkinsons or alzheiers, and so few are for brain injury.

The clinical trials I do find almost always involve the first 48 hours or five weeks.

I called director at BIUSA, and he says he gets TENS of thousands of calls a year asking what going on? Anything for tinnitus? no. Headaches? No. Memory issues? no. Sleep issues? no. Balance issues? no.

Heck, they aren't even sure what CAUSES these symptoms most of the time.

It's 2014. Come on, man. There are up to 400,000 soldiers with tbi injuries according to some sources, football players are suing for billions.

And a neurologist gets a piece of paper saying negative mri and it's all over. You're all better, it's in your head. See a shrink.

NOW, some psychologists (who I'm beginning to hate) are saying those left over symptoms are from ptsd!! Again, it's all in your head folks. Nothing to see here. Move on.

I know, I know, the injuries are too small to pick up on conventional mri, blah blah blah. Well then design a machine that shows them!!! The pentagon has 4 zillion dollars to spend to do this. Just do it!! I'm really thinking of going to the city to get DTI mri just to hear somebody say, gee, there really is something wrong.

There should be a list of neurologists who have had head injuries.

I called BIANY THREE Times to volunteer my time, never got an email or call bak And they want a donation. just wow.

Meanwhile, supplements sellers and sake oil salesmen make BILLIONS off of us.

I'm done ranting.

[Galaxy1012]

No point in being frustrated. We are in a situation which is hard to explain, difficult to treat and impossible to ignore. And unfortunately, medical world is still ignorant to this condition by blaming it all on anxiety, leave alone trying to treat it by coming up something new. Most Doctors are ******** and very few really care about us and do some research to find a treatment. It's like, deal with it or shut the **** up thing.

It's pointless crying cribbing and trying to explain. When it comes to concussions, tinnitus, memory problem or any traumatic brain injury thing, our cries are falling on deaf ears and nobody will care no matter what happens because deep inside everybody and doctors know that nothing can be done about it and the damage is done which is irreversible, so it's better to make the patient believe that it's all in their heads which might put them in some ease. Remember, once you get a concussion, there is no shaking it no matter what you do because there simply is no treatment as of 2014 because of our shameless ignorant medical world. We can only hope to feel better with time. You know it, I know it and they know it's real. But I guess some people are destined to get it and keep it throughout their lives.

[GingerandBella]

Originally Posted by markneil1212

Every Single Day there is a post in the Parkinsons room about a new treatment or clinical trial, it seems.

I do hours and hours of reading and the Vast majority of promising trials and treatments are for Parkinsons or alzheiers, and so few are for brain injury.

The clinical trials I do find almost always involve the first 48 hours or five weeks.

I called director at BIUSA, and he says he gets TENS of thousands of calls a year asking what going on? Anything for tinnitus? no. Headaches? No. Memory issues? no. Sleep issues? no. Balance issues? no.

Heck, they aren't even sure what CAUSES these symptoms most of the time.

It's 2014. Come on, man. There are up to 400,000 soldiers with tbi injuries according to some sources, football players are suing for billions.

And a neurologist gets a piece of paper saying negative mri and it's all over. You're all better, it's in your head. See a shrink.

NOW, some psychologists (who I'm beginning to hate) are saying those left over symptoms are from ptsd!! Again, it's all in your head folks. Nothing to see here. Move on.

I know, I know, the injuries are too small to pick up on conventional mri, blah blah blah. Well then design a machine that shows them!!! The pentagon has 4 zillion dollars to spend to do this. Just do it!! I'm really thinking of going to the city to get DTI mri just to hear somebody say, gee, there really is something wrong.

There should be a list of neurologists who have had head injuries.

I called BIANY THREE Times to volunteer my time, never got an email or call bak And they want a donation. just wow.

Meanwhile, supplements sellers and sake oil salesmen make BILLIONS off of us.

I'm done ranting.

Even within the "us" we are fragmented. Sport concussions get all the attention. One pain clinic turned me down b/c it was not a sport concussion - another turned me down b/c it was not an auto accident. I keep wondering who is going to help an older woman (won't say how oldwho got her concussion from a fall.

On the other hand - b/c sport concussions are all in the news now - we can hope that more research is up and coming. Sooner the better I say.

GB