Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-26-2014, 01:18 PM #11
Laupala Laupala is offline
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I started taking lexapro about 5 months into my injury, it was prescribed primarily for anxiety, although I was often depressed too. I am also someone who does not enjoy taking meds (have hardly taken tylenol for my constant headaches), and if you'd have told me a year ago that I'd be on an anti-depressant I wouldn't have believed you, as I've never been depressed (numerous people called me the happiest person they'd ever met).

It was with a degree of reluctance that I started on lexapro, as I just didn't like the idea generally and was afraid of side-effects, but my anxiety had reached a point where what I had been doing was insufficient to stop downward spirals into anxiety and depression that were preventing healing, so I thought I had to do something.

Having been on a 10mg dose (which is low I guess) for a couple months, I can say that I think it has helped with anxiety. I simply don't get stuck in negative thought patterns as often, and can recognize them coming on more easily (meditation has helped tremendously with this). Also, the visceralness of the flight/flight response is not what it used to be, which helps.

It has not helped as much with depression, but I really think that's just a consequence of me being unhappy with what my life has become and sometimes hopeless that I'll get it back. But that's getting better with time I guess.

I haven't experienced any noticeable side effects, and I'm hoping this continues through the weening off process. I'd like to get off it ASAP, just because I won't feel totally better till I can get on normally without it, but I figure I should wait till I'm seeing significant progress.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 09-26-2014, 03:08 PM #12
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by SuperElectric View Post
You might want to look at this thread http://neurotalk.psychcentral.com/sh...ighlight=sleep

People have different ways of dealing, or trying to deal with sleep it's a case of finding what works for you I guess.

Hey, did someone say they get 8-10 hours and fall asleep straight away - how is that humanly possible I ask 8-)
Yes that is me! You would think I would wake up feeling energized and ready to take on my day, instead I wake up with a headache and have horrible fatigue all day. The normal average is 7-8 hours, the 10 usually only happens after I go through 3-4 days of 4 hours of sleep because of insomnia.
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Old 09-26-2014, 03:09 PM #13
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by Mark in Idaho View Post
KnockedOut,

When you wake up and can't get back to sleep, try getting up and doing something for a while before trying to go back to sleep. Read a book, do ironing, watch a boring movie, etc, to let your mind reset to sleep mode.
My doctor mentioned that to me, I usually try to do a little reading or watch a movie because if I try going back to sleep the stress of not being able to go back to sleep usually keeps me awake. Vicious cycle!
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Old 09-26-2014, 08:54 PM #14
RAllen82 RAllen82 is offline
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Laupala-
You described what is happening to me perfectly. This downward spiral has me thinking I am very, very insane and I'm not kidding. I want to get a handle on this so terribly bad. But where do you begin when you feel the anxiety is automatic and you can't find a trigger?

I feel so hopeless these days. I beginning to feel like detached from myself because I'm so different than what I was before the accident. I hate looking at myself in the mirror because I don't know who that is anymore.

My feelings of anxiety are slowly slipping into constant fear and paranoia almost. I think about this constantly and can barely hold a conversation with someone. I'm terrified of becoming mentally ill beyond repair.
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32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
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Old 09-26-2014, 09:53 PM #15
Mark in Idaho Mark in Idaho is offline
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RAllen,

At your current condition, it appears your current meds are not helping at all. You need to seriously consider a change in meds to find something that works. A benzo like Klonopin can be a quick acting and short term help.

Just because a doctor prescribed a med does not mean it has any credibility. Most doctors are a try this and see how it works for you, especially with SSRI's and other psychotropic meds. You need to be willing to try something different.

Have you looked for a neuropsychiatrist ?
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"Be still and know that I am God" Psalm 46:10
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Old 09-26-2014, 10:08 PM #16
RAllen82 RAllen82 is offline
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I have looked and have not found one in my area. You are right about the way the doctors have gone about this so far. They look at me and say, "you mean you had no previous history of panic/anxiety/ depression before this?!!" and send me along to the next person.

Last week a therapist who I had only spent less than a hour with told me I have PTSD. Then told me to do group therapy. Whatever the dx, I just need some relief. My anxiety is so bad it's like I am convinced I'm not fixable at this point and I'll drift through life not being a good mom to my girls or do anything with meaning.

I know I comment a lot about this on many different threads. I just find this is the only means of getting things off my mind and receive encouraging words and helpful advice that is needed so badly. I find myself acting as "normal" as possible and withholding alot of what I'm really feeling from my family because I know they are getting worn thin.

It's so hard for us to talk with others who don't understand. It's hard for them to believe what they can't see. That is why I enjoy this place so much.
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32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
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Old 09-26-2014, 11:34 PM #17
Mark in Idaho Mark in Idaho is offline
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Your family NEEDS to watch the YouTube series "You Look Great" at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be

If they want to have any input into your care, they need to become informed first.

The therapist is thinking you can think your way out of your anxiety. It is physiologically driven first, thought driven as a second event in response.

Please believe me. There is a way off this anxiety train. You just need to stick it out until you find the help you need.

What larger metro area of Alamama are you nearest ?

btw, I was born in Mobile but convinced my parents to move away by the time I was six weeks old.
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Old 09-27-2014, 05:39 AM #18
RAllen82 RAllen82 is offline
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Small world. I live across the bay from Mobile. That would be the largest city near me.

I believe every word you say. I just am stuck and don't know where to find the help I need. I feel like I'm doomed, everyday worse than the one before. I'm fighting this for my children. I would never want to leave them with the legacy that I took my own life. However, it's impossible not to think about that option. I'm just so tired of the pain and suffering.

I'm religious so I don't want God to think that I'm not grateful for the health I do have. I hope that he knows this is my sick brain and not me thinking these thoughts. I never in a million years would imagine I would be in this dark place. I was always so happy and outgoing. I got pleasure out of so much in life. That is all a distant memory now.

I will show my family the video, thank you for providing the link.

Thanks again for your support. It means more than you'll now.
__________________

.

32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
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Old 09-27-2014, 05:58 AM #19
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yeah that's Never an option. Especially for something you will very likely overcome. If it ever gets to be an option, please let someone know right away. I really feel for you. I wish you weren't going through this. But there is a very good chance you will get pleasure out of so much in life again. You need to believe that.
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Old 09-27-2014, 09:03 AM #20
KnockedOutMom KnockedOutMom is offline
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Quote:
Originally Posted by RAllen82 View Post
I have looked and have not found one in my area. You are right about the way the doctors have gone about this so far. They look at me and say, "you mean you had no previous history of panic/anxiety/ depression before this?!!" and send me along to the next person.

Last week a therapist who I had only spent less than a hour with told me I have PTSD. Then told me to do group therapy. Whatever the dx, I just need some relief. My anxiety is so bad it's like I am convinced I'm not fixable at this point and I'll drift through life not being a good mom to my girls or do anything with meaning.

I know I comment a lot about this on many different threads. I just find this is the only means of getting things off my mind and receive encouraging words and helpful advice that is needed so badly. I find myself acting as "normal" as possible and withholding alot of what I'm really feeling from my family because I know they are getting worn thin.

It's so hard for us to talk with others who don't understand. It's hard for them to believe what they can't see. That is why I enjoy this place so much.
I want you to know that you are not alone, I struggle with the same often. I don't share as much as I should with my family about what I am dealing with. I feel horrible for what my injury has done to my family. My kids haven't been the same and it kills me that I can't help them.
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