Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-27-2014, 10:21 AM #21
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I have made a strong recovery (not 100% yet, but getting close). Life is mostly back to normal. I did not take any meds at any point. It has taken me almost 3.5 years to get this far.

Not sure if that is an endorsement for not taking meds or not!
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Old 09-28-2014, 02:20 PM #22
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Default Complementary medicine for PCS

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Originally Posted by KnockedOutMom View Post
Thanks for that link. I have never been one for pharmaceuticals, I am a natural/homeopath kinda girl! So I am hesitant to just hop on the bandwagon because my doctor keeps pushing it. I don't want to be numb to my symptoms.

I have found that complimentary approaches ( essential oils, bodywork, naturopath and chiropractic)- were more helpful overall than the pharmaceutical meds. But the Zoloft (50mg) kept me from crying all the time and the Klonopin (.5mg) did secure sleep. I realized not one dr knew the whole answer and I had to coordinate the care myself.

Car accident 2-9-14- still off work due to headaches and concentration problems
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Old 09-28-2014, 09:02 PM #23
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Default Ciprolex

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I am a year PCS and it seems like every doctor I see wants to put me on depression meds and Ritalin for daytime fatigue. Has anyone had success without meds?

Does anyone have experience with ciprolex?
I find that Ciprolex helps control my horrendous mood swings. I am 5 years post concussion and that’s the only drug I take for it. The rest caused too many side effects. After 1 year of lying on the couch I finally got permission to exercise again starting very very gradually. I still get massive fatigue sometimes, but I feel better about it because of the exercise.
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Old 09-28-2014, 10:03 PM #24
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I have pretty much tried everything. I got the sleep info from Mayo clinic. Been through sleep study...the machine hurts my brain. Melatonin, valerian, cal/mag don't work. Guided meditations on u tube help me relax. It seems when I lay down, My central nervous system gets all wired. Full of adrenaline.
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Old 09-28-2014, 10:24 PM #25
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dawneve,

I need gabapentin to settle my body so I can get to sleep. It does not make me sleepy. It just allows me to get to sleep. I take 600 mgs. I used to take 1200 mgs. I still need to practice good sleep hygiene.
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Old 09-29-2014, 04:30 AM #26
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Quote:
Originally Posted by greenfrog View Post
I have made a strong recovery (not 100% yet, but getting close). Life is mostly back to normal. I did not take any meds at any point. It has taken me almost 3.5 years to get this far.

Not sure if that is an endorsement for not taking meds or not!
Hi greenfrog, so glad for your recovery and hope you reach 100% soon. Can I ask you what symptoms you had and which ones are gone or seem going away ?
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Old 09-30-2014, 06:49 PM #27
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Personally speaking the turning point in my recovery was when I was precribed Cymbalta (SNRI). At the time I had dreadful fatigue, noise/light sensitivity, dizzyness, irritibility, forgetfulness, and terrible earache, tinnitus, toothache, jaw ache, pain in my eyes and the bridge of my nose. As well as this I had insomnia, being awake between 12-5am for months.

The Cymbalta instantly cut through my pain and also reduced all of my symptoms, including insomnia. It also helped my mood greatly and put me on the road to recovery.

We identified Imigran as a very effective drug for my post concussion headaches and it would also completely erradicate noise and light sensitivity for me.

2 years on I just take 30mg Cymbalta in the morning, and Topomax 75mg a day for ongoing neuropathic pain since my head injury. I lead a normal life, work, exercise and and I am mostly back to normal. I couldn't have done this without medication.

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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 09-30-2014, 07:13 PM #28
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mouse1,

have you tried to stop the Cymbalta ? It would be interesting to see what symptoms you still have without the Cymbalta. SNRI's and SSRI's can be a struggle with side effects and such.
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Old 09-30-2014, 07:27 PM #29
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Do you have ADHD or ADD, because I used to take ritalin for that and might be going back on it hopefully it will help... Did It help you at all?
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Old 10-01-2014, 12:47 AM #30
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Quote:
Originally Posted by KnockedOutMom View Post
I am a year PCS and it seems like every doctor I see wants to put me on depression meds and Ritalin for daytime fatigue. Has anyone had success without meds?

Does anyone have experience with ciprolex?
Yes, I succeeded without drugs. This time last year I had no hope, was depressed, had major insomnia fast forward to now - I'm doing well and sleep is good.
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PCS following head injury August 2013. Experienced anxiety, weight loss, insomnia, sensory overload.



Update as of Nov. 2015: 99% healed.

vitamins and minerals that helped me: b-12, vitamin d, and zinc + copper.
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