Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-26-2014, 07:44 AM #1
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
Default Fight or Flight Therapy

Has anyone heard of this? Have personal experience or any information? I'm desperate. I don't know why I'm thinking this therapy is even feasible as I probably can't afford it. But, I've been in contact with the MD that does this and he seems to want to help. His name is Dr. Tessler and he is in Colorado which is many states away from me.

When I had my accident I didn't have health insurance and racked up the cost of two ER visits. Ouch. However, I can't continue on like this. I feel like this has been going on for two months and now my brain "thinks" this constant anxiety state is normal. I don't ever have a clear mind and think about PCS and it's effects constantly. I'm fearful of going crazy. How do I stop the repetitive thoughts?

The Zoloft is horrible and I hate it. I haven't tried another drug because my MD thought this one is best. My family is supportive but are adamant that I need to stay on the medications. I know there are many that have dealt with the mental state change that comes along with some PCS sufferers.

Thank you.
__________________

.

32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
RAllen82 is offline   Reply With QuoteReply With Quote

advertisement
Old 09-26-2014, 07:57 AM #2
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

I know you don't like medications and that's a good thing. But have they tried Xanax just until you heal more and don't need it. Zoloft, in studies, have helped tbi patients, but it takes at least a few weeks to a month to kick in. Good luck to you. I would be interested in Mark in Idaho's opinion on the fight or flight therapy and hope he sees this thread.
anon1028 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RAllen82 (09-26-2014)
Old 09-26-2014, 09:20 AM #3
Capital Capital is offline
New Member
 
Join Date: Sep 2014
Location: Washington
Posts: 2
8 yr Member
Capital Capital is offline
New Member
 
Join Date: Sep 2014
Location: Washington
Posts: 2
8 yr Member
Default

RAllen - I haven't heard of that treatment, but I hope it works for you if you pursue it.

I am so sorry to hear about your suffering. I have also struggled with anxiety - the feeling of being on edge and very far away from peace for no discernible reason other than having a brain injury, and I know how miserable it is.

I'm six months post injury, and while I still have bad days and nights, the anxiety has gotten a lot better for me. I've found the book Brainlash very comforting in this regard. The author describes the feeling of agitation as a stage of recovery. You won't have to stay this way for ever. It will pass.

While everyone is different, and I hope you end up getting great results from Zoloft, I will say that I tried it twice under the supervision of two different doctors, both a Neurologist and a Psychiatrist, post concussion and both times it made me feel horrible - rapid weight loss, days in bed, tinnitus louder than usual etc.

The third doctor I saw, a physiatrist at the rehab hospital who specializes in brain injury, took me off zoloft and put me on Amantadine. It's hard me to say whether this or just time has helped, but I know the Zoloft wasn't helping. I've learned after giving something a fair shot, to trust my body and speak up to doctors about what's working or not working for me. I did so just this week when melatonin was making me whoozy in the evenings, and the doctor cut my dose in half. They should be helping you suffer less, not more.

To relax myself outside of medication, I listen to Tara Brach's relaxation meditations and I find they genuinely help. There is even a part where she talks about smiling as a way to turn off your body's fight/flight response.

I also do acupuncture once a week and have found that this helps me to relax. I also got one cranio sacral massage, during which my stomach started rumbling and the practitioner mentioned that digestion was a sign that my body was moving from fight/flight to digestion and relaxation.

Yoga and light cardio (eliptical machine at 120 - 130 heart rate) also help.

Knowing that everyone and every concussion is different, I just wanted to share with you what has worked for me in dealing with the horrible symptom.

Hang in there. It will get better!


Quote:
Originally Posted by RAllen82 View Post
Has anyone heard of this? Have personal experience or any information? I'm desperate. I don't know why I'm thinking this therapy is even feasible as I probably can't afford it. But, I've been in contact with the MD that does this and he seems to want to help. His name is Dr. Tessler and he is in Colorado which is many states away from me.

When I had my accident I didn't have health insurance and racked up the cost of two ER visits. Ouch. However, I can't continue on like this. I feel like this has been going on for two months and now my brain "thinks" this constant anxiety state is normal. I don't ever have a clear mind and think about PCS and it's effects constantly. I'm fearful of going crazy. How do I stop the repetitive thoughts?

The Zoloft is horrible and I hate it. I haven't tried another drug because my MD thought this one is best. My family is supportive but are adamant that I need to stay on the medications. I know there are many that have dealt with the mental state change that comes along with some PCS sufferers.

Thank you.
Capital is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 10:11 AM #4
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
Default

Thank you, Capital, for the helpful response. It makes me feel hopeful that this will one day pass. The feeling of being fearful and anxious at every corner is making my life a living hell. I try very hard to work on relaxation techniques. But I'm having a horrible time with my thoughts. They are controlling me.

I'm going to look into the med you mentioned and other techniques. I feel myself at a stagnant place so maybe the answer is pushing myself to do thing I would have done in my "normal" life.

Thank you again for sharing. I'm so happy you are doing well. It gives me hope.
__________________

.

32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
RAllen82 is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 10:50 AM #5
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

This Fight or Flight therapy sounds interesting. It would be good if there was a clinical study available. The military should be using this if it has a valid use.

How much does it cost ?

I agree than a benzo anti-anxiety med for the short term may be better than the Zoloft but they should not be used for more than a month or two.

btw, Dr Tessler is not an MD. He is an optometrist, O.D.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 11:37 AM #6
SuperElectric SuperElectric is offline
Member
 
Join Date: May 2014
Posts: 326
8 yr Member
SuperElectric SuperElectric is offline
Member
 
Join Date: May 2014
Posts: 326
8 yr Member
Default

I didn't know you could be on two SSRI's at the same time, in your case mirtazapine and sertraline? I think if after say three weeks on an SSRI you feel it's not having a beneficial effect then I would see about coming off it or trying another, there's a few to choose from. I was offered AD's but turned them down because I'd never taken prescription meds before, I think they could have helped me at the time but was stubborn and chicken, I also wanted to see if I could effect change with diet and exercise, jurys out on that one lol.

I think my real bad anxiety lasted around two months then came down a fair bit from three to four months, at six is all but gone (fingers crossed!) so it will get better, just hang in there.
__________________
Concussion 28-02-2014 head butted a door edge.
.

Symptoms overcome: Nausea, head pressure, debilitating fatigue, jelly legs, raised pulse rate, night sweats, restlessness, depersonalisation, anxiety, neck ache, depression.
Symptoms left: Disturbed sleep, some residual tinnitus.
SuperElectric is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 12:50 PM #7
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
Default

I'm not sure of the cost. I am waiting to hear back from him. I just happened to stumble across his website when I was searching for methods to kick the body out of fight or flight mode. I will post when I hear something from him.

I didn't think Mirtazapine was an SSRI but I could be wrong. That is my problem, I don't know if these thoughts and feelings are mine or side effects of the meds. The MD says its me because my doses are so low that there is no way they are therapeutic. I don't want them bumped up because they make me scared, anxious , nervous and jittery. It's awful. I've never taken meds before this and have always been pretty sensitive to them.

Thanks for the encouragement.
__________________

.

32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
RAllen82 is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 02:01 PM #8
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

I'm also wondering why you are on both Zoloft and Mirtazapine.
Mirtazapine is a tetracyclic antidepressant.

There are some Drug Interactions Checkers in the Sticky posts at the top of the forum here.
http://www.drugs.com/drug-interactio...2057-1348.html

[never stop a medication without asking for doctor advice]
Lara is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 02:07 PM #9
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

Mirtazapine is not an SSRI or SNRI. It is a NaSSA. It works differently than the others.

If the doses are so low as to be non-therapeutic, you should be able to stop them and see how you do. I think you are still getting 'shot in the dark' med care since nobody seems interested in giving your meds a serious look.

Being free of them with an occasional minimal dose benzo for emergency situations may be worth considering.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 09-26-2014, 03:32 PM #10
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
RAllen82 RAllen82 is offline
Junior Member
 
Join Date: Aug 2014
Location: Alabama
Posts: 75
8 yr Member
Default

They put me on the Mirtazapine to aid with sleep. And it works. The Zoloft is for the anxiety issue. I checked the drug interaction- at high doses serotonin syndrome is a risk.

Thanks for the info Mark. I am hoping to come off this Zoloft first and just continue with the night med as I do believe I need it for sleep.

Just wish this nightmare could end. I can't believe I have to wake up to this every morning. My thoughts have gotten so out of control. Thanks you guys for always being helpful.
__________________

.

32 year old female
Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
RAllen82 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (09-26-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Beyond Fight or Flight Auberon Reflex Sympathetic Dystrophy (RSD and CRPS) 5 09-19-2007 09:54 AM
Fight or Flight syndrome??? Debby Reflex Sympathetic Dystrophy (RSD and CRPS) 17 07-26-2007 12:58 PM


All times are GMT -5. The time now is 06:49 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.