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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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10-16-2014, 05:41 PM | #1 | ||
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Junior Member
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Hello guys,
I haven't been hear in over a year and just want to spread my message. Two years ago I thought my brain was damaged. I had all the symptoms you could imagine. I was detached, dizzy, had blurry vision and a set of crazy symptoms I'll never forget. It all started when I bumped my head and I got a headache. I thought I had a concussion and a week later I sarted feeling miserable. I went from doctor to doctor but they could not find anything. I went to the ER and to every specialist around. It was a horrible time and I no treatment helped. The doctors looked at me and just shrugged their shoulders and told me that my nervous system was probably damaged, some just stared at me with a funny look, like if I was crazy. I was then send to a neuropsychologist. I remeber that session. I was sitting in front of her with dark sunglasses because I thought all the sensation around me would damage my brain even further. She explained to me that the only thing being wrong with me was my reaction when I bumped my head. She said that it was only in my head and my anxiety caused all of this. Well I did not belive her at first. What did this **** just say? I am not stupid, I thought, I really suffer from a serious condition and you don't know what I am going through. But she urged me to believe her and yes it made sense. The x ray, nor the MRI showed anything specific and I just bumped my head. And I had an anxiet issue before all this happened. But why was I experiencing all the symptoms then? Anxiety does this to you. It manifest in crazy thoughts and symtomps. I educated myself on the subject and realized that every symptom I experienced was also found in anxiety disorders. I went to a therapist and I was in fact diagnosed with an anxiety disorder, including health anxiety. After this diagnosis I went out and did sport for the first time in months. Before that I wouldn't even dare to sneeze or shake my head. I didn't take my meds anymore and faced my fears and it just took a month and the first symptoms started to disappear. It took me a while to get up the courage but in the end I overcame my fears and lost all my symtomps. I do a lot of sport nowadays and lead a happy life. This is for the people that only have a minor concussion, and didn't pass out or anything. This is also for the people that have had anxiety issues before. I really am convinced that the post concussion syndrome exists but our body is the best healing system in the world and when bumping your head it will quickly repair itself. Please don't feel offended by my statement. If you can afford it see a neuropsychologist or a doctor that specialized on anxiety. Or just check out this website. You find a list of symptoms when you scroll down. http://www.anxietycentre.com/anxiety-symptoms.shtml Best wishes to everyone! PS: Please excuse my English! |
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"Thanks for this!" says: | JC1875 (01-06-2016) |
10-16-2014, 06:03 PM | #2 | ||
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Legendary
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Lui,
I am glad you found help for your anxiety. I remember expressing concern that anxiety was a big part of your problem. Good for you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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10-18-2014, 05:08 PM | #3 | ||
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I feel like a lot of people on here are anxiety driven people which do not suffer from a cocussion but anxiety and if anybody feels like anxiety might be their main problem,feel free to message me. I would be happy giving advice! |
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10-18-2014, 05:50 PM | #5 | ||
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10-19-2014, 01:07 AM | #6 | ||
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I appreciate the idea being spread here that anxiety can magnify the very minor symptoms that we may actually have. What about tinnitus and hyperacusis ? How do you relate that to anxiety ? Specially when the tinnitus started soon after the concussion . One possibility I know is upper neck injury .
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01-06-2016, 11:22 AM | #7 | ||
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I'm new to this site as of today. I had a bicycle accident exactly 6 weeks ago. Broke my hand, my ankle and worst of all learned that I had a concussion. The concussion stuff didn't hit me until approximately 5 days later. Headaches and naseau are pretty much gone but will this anxiety ever go away. Scares the heck out of me. One day I think I'm recovering then all the sudden, bam, major panic attacks. I never had anything like this. Neurologist put me on Effexor and then moved me to Zoloft which made me feel like my heart was going to explode. I finally went to my general practitioner who told me to stop taking it. I felt better for a day. Almost normal then bam, last night I had a major anxiety attack for no reason. Is this ever going to end? I can't live like this. Currently taking Ativan but only a .5 milligrams. Any help or recommendations? I want my normal back. I never had to deal with this stuff before the crash. Please help.
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01-06-2016, 01:27 PM | #8 | ||
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When it was at its worst I couldn't sleep for several days, my BP was through the roof, I couldn't function at all. The realization that it was all just panic attacks helped some, but I continued to have them on a daily basis for about two months. I refused to take xanax so just toughed it out. Don't really have an answer for you as everyone is different, the only thing I can tell you is that this is "normal" for PCS and it will get better. Also I would avoid any heavy stuff like xanax and anti-depressants as much as possible.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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01-06-2016, 02:36 PM | #9 | ||
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Legendary
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Jeff146,
Welcome to NeuroTalk. As RR said, anxiety is normal for PCS. But, there are often things you can do to minimize them. Your brain is hyper sensitive to all stimuli, visual, audio (sounds and voices), tactile(touch). It is also hyper-sensitive to caffeine and stimulants. So, reducing these factors can help. Many need to wear foam ear plugs for a while, especially in noisy situation. Shopping malls can be miserable for PCS. If you can, get your blood pressure checked when you are having an attack. Many have at-home meters. If your BP is elevating, a beta blocker may help better than a benzo (Ativan) or SSRI (Zoloft) or SNRI (Effexor). The latter two take weeks to start to work. A beta blocker like propranolol can be taken at the time of the anxiety attack and work in 30 minutes or so. It is a basic blood pressure lowering med that helps with the other panic issues, too. Maintenance use of benzos are not recommended for PCS. The first way to move forward is to accept that you need a vacation from normal. You need to slow down and get 'quiet rest.' That means low stress, low stimulation for an extended period. There is no way to push through PCS. In fact, trying to push through will only make your PCS last longer. Your brain will only heal when stress is low and you have no anxiety. Anxiety is like massive pollution for your struggling brain. It will help you to read the Vitamins sticky at the top. The injured brain needs additional nutrition far above what a healthy brain can survive on. It also needs to be free of intoxicants (alcohol) and stimulants (caffeine). At most, a single serving per day of either is considered OK by some. And, most important. Just because you are having a good day does not mean you can return to 'normal' activity levels. Those good days need to last for a week or two before they can be considered recovery. Many end up riding the good day, bad day roller coaster because they do too much on their good days. Year end party and social time is over so you have an opportunity to slow down and let time heal. Also, nobody can predict how long your recovery will last. Please feel free to tell us about any other symptoms you are experiencing. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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01-07-2016, 04:18 PM | #10 | ||
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Quote:
My anxiety made these symptoms about 10 times worse . . . and although Zoloft did not work for me, Effexor has worked quite well. I have a history of anxiety and depression and my concussion was severe (and docs think a vestibular concussion by the way I hit the back of my head). It was a recipe for severe anxiety and depression for me--yet relatively minor symptoms were turned into major ones because of the psychiatric difficulties. Please consider seeing a neuropsychologist, if they have them in your area. I got my anxiety and depression in check, and all of my symptoms quickly started to resolve. NPs are very good at explaining the complex soup that is mental illness + tbi. I was also much better able to accept my situation. I do not, and may never feel 100% the same as I was, but that isn't keeping me from racing my bike again this year and leading a full and active life! Cheers! |
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