Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 11-12-2014, 11:12 AM #1
bh_pcs bh_pcs is offline
Member
 
Join Date: Oct 2011
Posts: 104
10 yr Member
bh_pcs bh_pcs is offline
Member
 
Join Date: Oct 2011
Posts: 104
10 yr Member
Chat Long term personal update - 3+ years PCS

Hi All!

I haven't posted here for a long time, mainly because I've been getting my life back together and living it! But that is not without some challenges that still linger on. My previous thread can be found here if you want to compare and anticipate your own healing. (I'm using it as my own records.) My condition is as follows...

Symptoms that still remain

Short term memory loss - putting names to faces take longer than usual. And when I haven't interacted with certain people in a long time, I forget their names and have to ask. I also have difficulty in remembering what I have done recently anywhere from a few days to several months or more. This could be more human nature, but it's important that I remember these things. Most of the time I have to refer to notes or calendars or some sort of aid in order to remember. I read an article that one man used Twitter to remember what he does. I use apps like Swarm and Facebook to do that.


Symptoms that have improved but have also regressed

Erratic and slow processing speed - The depth of my thinking (and working memory) has increased immensely, but there are times especially when I'm fatigued, tired or overwhelmed that I cannot even receive what is being said or read. There's some sort of disconnect and I'd have to ask again or go over the material again so I can process the information. And it's not like it's always caused by attention loss.

Fatigue - This has much to do with my new life of being busy all the time now. I'm being more social and meeting new people, making new friends, but can only handle the talking noise up to 2 hours. I'm also cycling, training or doing yoga, always something physical nearly every day and it has helped me recover from PCS more than anything else. But I still get tired and it might be because I'm overdoing it and my brain can't handle the load. My mental capacity has indeed decreased. And while I need more sleep, sometimes my schedule is so packed, I can only sleep for 6 to 7 hours instead of 8. Other times I don't even want to sleep. So maybe this is part of a new normalcy that I'm developing.

Irritability - Despite doing meditation and yoga which keeps my mind, body and soul in balance, I still get irritated from time to time. Sometimes even just being around people gets me irritated and I withdraw, wanting peace and quiet and being alone. Maybe my introvertedness is more pervasive than before.

Impulsiveness - This is one of the most difficult characteristics to cope with. To counter it, I usually give myself more time to process before I act. Doing so requires more energy. Other times, I don't cope and just act and deal with the consequences later.


Those that have faded but sometimes linger

Periodic word finding difficulty - Not much change but it does improve when I think about what I want to say way beforehand.


Those that no longer exist
- OCD.
- tinnitus.


New symptoms

Motivation (and depression) - This is a big one. My motivation to get things done are obviously situation and item specific. But there are even times when my lack of motivation can lead to depression. It's happened a few times and it seems that having PCS really accentuates any particular mood I'm having whether it's being happy or sad.

I hope this is helpful for some of you still having issues. Any tips or advice is always welcome!
__________________
Hit by a car while on a training ride on a bicycle Aug. 17, 2011. Loss of consciousness, road rash, left leg issues, head trauma, broken bicycle. Dealing with PCS - short term memory loss, verbal memory loss, attention loss, slow processing speed, irritability, anxiety, word-finding troubles, impulsive, tinnitus, fatigue, OCD. Intellect intact, motor skills intact, other cognitive skills intact. Motivated to get better!
bh_pcs is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (11-12-2014), Mokey (11-13-2014), mouse1 (11-12-2014), music-in-me (11-12-2014)

advertisement
Old 11-12-2014, 04:30 PM #2
NormaW NormaW is offline
Member
 
Join Date: Apr 2013
Location: Ottawa, Ontario
Posts: 161
10 yr Member
NormaW NormaW is offline
Member
 
Join Date: Apr 2013
Location: Ottawa, Ontario
Posts: 161
10 yr Member
Default

Do you work?
__________________
MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues.

Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest.....
NormaW is offline   Reply With QuoteReply With Quote
Old 11-14-2014, 07:58 PM #3
martin82 martin82 is offline
Banned User
 
Join Date: Apr 2014
Posts: 81
10 yr Member
martin82 martin82 is offline
Banned User
 
Join Date: Apr 2014
Posts: 81
10 yr Member
Default

Thanks for this report. Just curious when the Tinnitus faded for you? I'm 8 months post injury and stuck with this roaring in my right ear.

Many thanks.
martin82 is offline   Reply With QuoteReply With Quote
Old 11-14-2014, 09:37 PM #4
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

martin,

Your tinnitus is unique to you. Trying to compare it to others is a losing proposition.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 11-22-2014, 06:28 PM #5
bh_pcs bh_pcs is offline
Member
 
Join Date: Oct 2011
Posts: 104
10 yr Member
bh_pcs bh_pcs is offline
Member
 
Join Date: Oct 2011
Posts: 104
10 yr Member
Default

Quote:
Originally Posted by NormaW View Post
Do you work?
Yes, I do work. Why do you ask?
__________________
Hit by a car while on a training ride on a bicycle Aug. 17, 2011. Loss of consciousness, road rash, left leg issues, head trauma, broken bicycle. Dealing with PCS - short term memory loss, verbal memory loss, attention loss, slow processing speed, irritability, anxiety, word-finding troubles, impulsive, tinnitus, fatigue, OCD. Intellect intact, motor skills intact, other cognitive skills intact. Motivated to get better!
bh_pcs is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Term PCS slrjr71 Traumatic Brain Injury and Post Concussion Syndrome 4 10-15-2012 03:37 PM
long term PCS Chapo Traumatic Brain Injury and Post Concussion Syndrome 5 07-06-2012 11:24 AM
How do you do this long term? Dejibo Multiple Sclerosis 21 05-21-2012 11:08 AM


All times are GMT -5. The time now is 11:05 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.