Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-10-2014, 10:29 AM #1
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Default 84 ways Concussion/TBI can make your life really interesting

http://brokenbrilliant.wordpress.com...y-interesting/

i dont know if i posted the link right. i worked iwth omputers my whole life now i cat put up a link right lol.

it is an interesting article. the one about hearing music that wasn't there made me feel better because this happened to me in the begining ad occasionally now. i know its not real so it's not psychotic. it is quite weird though.

i dont know if i should have posted this ni stickys at top or not. sorry if i should have.
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Old 08-10-2014, 03:15 PM #2
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Quote:
Originally Posted by markneil1212 View Post
http://brokenbrilliant.wordpress.com...y-interesting/

i dont know if i posted the link right. i worked iwth omputers my whole life now i cat put up a link right lol.

it is an interesting article. the one about hearing music that wasn't there made me feel better because this happened to me in the begining ad occasionally now. i know its not real so it's not psychotic. it is quite weird though.

i dont know if i should have posted this ni stickys at top or not. sorry if i should have.
oh yeah at first i heard country/folk, maybe allison kraus or joni mitchell from my air filter and more like club music from my white noise machine. thank god haven't heard those ghosts in a while. didn't hear full lyrics or anything, just a faint melody
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-10-2014, 03:18 PM #3
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i can't believe you did too!!! the first time i heard music that wasn't there was when i was in the psych ward because i couldn't be alone with my head pain anymore. The pain is definitely better and i haven't heard a "song" in a while lol always knew it wasn't real, just annoying.
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Old 08-10-2014, 03:30 PM #4
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yeah, i think i'm only now realizing what a bad injury i had/have. kept thinking i'd snap out of it any day. good thing is that hte music would go away when i turned off the machines, so it was like my mind was filling in extra notes but wasn't gonna run off and come up with a whole looney tune on its own
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-10-2014, 10:19 PM #5
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I don't hear nonexistent music, but I used to constantly smell odors that didn't exist. It's been exactly 8 months since my injury, but I still sometimes smell odors that nobody else can smell.

What sucks is that the imaginary odors are incredibly repulsive. I smell things like feces, rotten food, etc. It drives me insane.

The good thing is that there are days when my house is super clean because I scrub it like crazy to get rid of the nasty smells that don't even exist lol.
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Old 08-10-2014, 10:23 PM #6
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Quote:
Originally Posted by MomWriterStudent View Post
I don't hear nonexistent music, but I used to constantly smell odors that didn't exist. It's been exactly 8 months since my injury, but I still sometimes smell odors that nobody else can smell.

What sucks is that the imaginary odors are incredibly repulsive. I smell things like feces, rotten food, etc. It drives me insane.

The good thing is that there are days when my house is super clean because I scrub it like crazy to get rid of the nasty smells that don't even exist lol.
I wonder what causes that?
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Old 08-10-2014, 10:27 PM #7
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Quote:
Originally Posted by markneil1212 View Post
I wonder what causes that?
I'm not really sure. I can't remember if any of my doctors ever explained why it happens.

I had this symptom, too: "Feeling like you’re observing yourself from afar". I hated that one and am glad it's gone. I also got really confused at first and didn't recognize myself in the mirror.

Oh, and I spent the first few months feeling like I was living in a dream. Like, everything looked like I was dreaming. I don't have the right words to describe this symptom.

It's crazy what a brain injury can do.
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Old 08-11-2014, 12:05 AM #8
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I don't think this link is appropriate reading for most NT participants. It creates too much opportunity to focus on every little nit picky symptom.

Broken Brilliant complains about his struggles yet he continues to push the limits with his job. He writes incessantly in his blog. His constant focus on the minor issues is counterproductive in my opinion.

But, that's just my opinion.
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"Be still and know that I am God" Psalm 46:10
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Old 11-14-2014, 06:06 AM #9
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Default For every one person who hates hearing me hash on about "minor details"...

... there are plenty more who thank me for putting into words what they experience everyday.

I don't blog for myself, I do it for all of us who have no voice and no visibility.

It's not about self-pity, it's about simply understanding how things are, in order to improve them.

Because they can improve.
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----------------------------------------
What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.

I blog about this at
.
.

Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
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Old 11-14-2014, 12:14 PM #10
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Most of us grow up and get past the need to see a therapist every week or two and just learn how to go on living with our struggles. We make changes to the intensity level of our lifestyle/work and thus reduce some of our struggles.
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