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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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11-19-2014, 07:03 PM | #1 | ||
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Legendary
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Welcome to NeuroTalk. I had to quote your post because your paragraphs were too long. Many of us struggle to follow from line to line when the paragraph is more than 5 lines. Proper paragraphs are not required here. Just put a double space very 5 lines or so. It sounds like you need to have the vestibular testing done before move forward. You may also have a subtle neck injury. Not a bad injury but just some instability that gets inflamed and cause symptoms to be worse. A CT Scan or MRI will not show these subtle injuries. Some icing a good neck posture during rest and sleep will usually help. It will help to find ways to moderate your duties at home. Getting rushed or feeling pressured to get dinner ready can be stressful. Try to write down a days activities/chores list so you do not have everything bouncinhg around in your head. Others, especially the moms may chime in a give you some better ideas. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | SweetC (11-22-2014) |
11-19-2014, 08:24 PM | #2 | |||
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Thank you for your input Mark, the daily list is a fabulous idea. I find that I am easily forgetting things that I intended to do. I apologize for the lengthy paragraphs. As I've been reading through previous posts for a while and based on my own reading capabilities I should have known better. I've been utilizing the talk to text feature on my iPhone so that I don't have to look at the screen very much and just got rambling. Between my first post and now I received a second phone call from my HR and they sound like they are going to do their best to be accommodating and supportive. I'll only be going in to work for two hours at a time for two days next week to meet with my teaching coach and then we'll evaluate how I do with that experience. I plan on going in equipped with earplugs and my trusty sunglasses. I'm still very frightened and completely uncertain that I'm at a point in my recovery where I can actually do my job even partly well. If there are any other teachers out there I would love to hear from you. It would be great to hear from the other moms as well. This has been very challenging with four young kids at home. I've explained to them that mommy's brain can usually only handle focusing on one thing at a time right now and they need to reduce audio and visual background "noise" to help me. I hate telling them I'm tired, I have a headache, you have to be quiet and turn down the glaring lights all the time. I've been trying to stay positive and limit distractions in order to be able to be present for my family but boy does it get hard. |
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11-19-2014, 08:38 PM | #3 | |||
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Magnate
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Sorry about your injury, but welcome to our little brain boo boo club.
Have you undergone neuro-psychological testing? That is really the best way to pinpoint your deficits and evaluate how they're affecting your day to day life. It can also help you access useful cognitive therapies and help convince your employer of the necessity of being flexible and accommodating. Are you getting any help with your emotional issues? Of all the things I've had to deal with since my TBI, the depression, anxiety and anger problems have been the most painful. Statistically speaking, TBI patients are at higher risk for suicide and substance abuse. As moms, I know we're conditioned to worry about other people, but please don't ignore your emotional needs. Talk to your doctor, find a psychologist with experience with TBI, contact your local branch of the Brain Injury Society about support groups, come here and ask/say whatever you need to... Although it might feel that way, you are not alone. |
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"Thanks for this!" says: | goldenwillow (11-20-2014), SweetC (11-22-2014) |
11-19-2014, 09:42 PM | #4 | ||
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You are definitely not alone on your road to recovery. I'm pretty much a noob at this concussion recovery thing but there are some real gurus on here. There's definitely a lot of good information on this forum and we're all in this trying to support each other back to recovery
As much as a lot of people were work driven prior to their concussion you need to put your healing and family first at this point. I made the mistake of trying to tough it out and go back to work too soon twice and symptoms came back pretty bad so be weary of trying to get back to go-go-go mode too soon again. Quote:
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"Thanks for this!" says: |
11-20-2014, 08:16 AM | #5 | ||
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I am sorry too for your injury.
I am in the beginning stages of my journey myself and really have no wise words, however, as a mother of a young one too (who seriously bounces off the walls with amazing energy both physically and intellectually) try to give yourself a break. Mark and Hockey in this forum has given me wise words to remember. Peace. Last edited by goldenwillow; 11-20-2014 at 08:19 AM. Reason: added a thought |
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"Thanks for this!" says: | SweetC (11-22-2014) |
11-20-2014, 09:07 AM | #6 | |||
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Magnate
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Did I look odd, walking around the house in them? Probably, but who cares? She got to play with all her loud toys (and friends) without my head imploding. To cope as a TBI mom, I think you have to learn to prioritize. To say my house is not as tidy as it used to be, would be the understatement of the century. If I expend energy on cleaning, I won't have it to take my kid to the beach. To me, that choice is a no brainer. (no pun intended ) If people are offended by my housekeeping, they're shallow and I don't need them around. That's another thing TBI patients learn: don't surround yourself with negative people. I like folks who remind me how far I've come since I was injured, not how far I am away from my old self. You will learn, quickly, who your real friends are. |
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"Thanks for this!" says: | goldenwillow (11-20-2014), SweetC (11-22-2014) |
11-20-2014, 09:44 AM | #7 | ||
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I get it in regards to a tidy house. For me, over the years, I somewhat subconsciously have set up my house very simply. Never veared away from a toddler safe house, possibly.... but it works for the most part. |
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"Thanks for this!" says: | SweetC (11-22-2014) |
11-20-2014, 04:09 PM | #8 | ||
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What I have learned through my PCS is that "you are only as able as your brain allows you". It took me a long time to accept this and I still have days that I don't, and my brain always wins.
The neuropsych doc that I seen explained it to me like this "your brain is a mass transit highway, and a concussion is like a tornado setting down on it. Even a small tornado can disrupt the traffic enough to create disruption. With the proper engineering, some of the roads can be fixed...and some are permanently demolished. No disaster that occurs repairs itself quickly, what is done quickly in repair is temporary.... |
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11-22-2014, 01:51 AM | #9 | |||
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My kids are used to seeing me wearing sunglasses quite a bit as I can't expect them to enjoy living like vampires like I typically do when they're out of the house. We've had a few candlelit dinners which they thought was novel but probably wouldn't go over well as the new norm...maybe! I've definitely been learning how to prioritize so that I CAN join in on important family things and I so hear you about learning who's my real friends. That's been an interesting lesson. |
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11-22-2014, 04:40 AM | #10 | ||
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Legendary
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Foam ear plugs also work very well. I like the yellow cylinder shaped ear plugs. I twist them tight then insert them and they expand to fill the ear canal. I keep some beside my bed for nights when my wife is snoring.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | SweetC (11-23-2014) |
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