[QUOTE=Hockey;1109677]When they say, "don't trust what you think you know about your injury," I think they are also referring to the fact that TBI patients can often be unaware of their own deficits. In fact, sometimes it's the worst affected who most believe they're $100% okay.

There have been cases of TBI patients being unable to acknowledge such seemingly obvious things as blindness in one eye. We've had members here assert that they are not cognitively damaged - in jumbled posts that are clearly the products of disoriented, confused minds.

Before I was tested, I thought I was aware of all of my issues. Not so. Prior to being tested by a neuro-psychologist and a neuro-optomologist, I had no idea that I was repeating myself, had lost my ability to see patterns, was completely inattentive to a significant area of my visual field, etc..., etc...,


After 2 years of not knowing I was really symptomatic, it was my reliance on the doctors to tell me how I was doing. Still to this day I become aware of new oddities that I have that are due to the injury. Every time I see my doctor I say, "Oh yeah, and I do this and I do that and I'm super hungry, and I'm not sleeping, and I can't see straight," etc. It's not that I mean to leave symptoms out, it's that sadly with many TBI patients, I forget what symptoms I have!

So I think it is absolutely necessary that you continue seeing doctors that are well versed in neurology and brain injuries so you don't get worse as time goes by. They will be able to put the story together for you that you may not be able to do currently.

Sounds like a really bad situation. I hope you are recovering ok. What are your main symptoms?