Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-28-2014, 02:08 PM #1
mdiane630 mdiane630 is offline
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mdiane630 mdiane630 is offline
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Default Preparing for shoulder surgery 18-months PCS

When I had my accident, I knew I'd damaged my shoulder but thought I could just live with it. (I had surgery on the other shoulder ~6 years ago, and it was a tough recovery that I didn't want to go through again.) I did 5-6 months of ortho PT for my neck and shoulder, then was transferred to a neuro/vestibular PT for another 6 mo after my concussion was diagnosed.

At the 1-year point, I guess I was ready to know what I was dealing with and had an MRI that showed a torn labrum. I did some more PT and continue to work with a PT privately. I finally saw a surgeon a few weeks ago because I'm accepting that it's not going to get any better on its own.

My main motivation is that I still haven't given up on returning to triathlon, hopefully long-course distances. But with the head injury issues I'm not sure that even if my body is fixed that my head will let me go along with my plan (or maybe I should say my wishes). I've been having trouble with my heart rate climbing when I exercise - at this point I can jog 3-4 slow miles before I'm "maxed out." I don't know how much better this will get.

I think I'll still benefit in terms of day-to-day living, like being able to do house- and yard-work, sleep, or carry groceries, without shoulder pain. My neck is slowly improving, which will also help. I've analyzed and talked this out with my PT, and I think that if I don't go for it, I'll regret it.

So... sorry for the long post, but writing it out helps me organize my thoughts. Any suggestions for getting the best possible outcome with the fewest side effects from surgery? I had sinus surgery a few months ago and was extremely dizzy the first day and then had a pretty nasty headache for a few weeks. I've been following most of the suggestions in the vitamin thread, trying to eat healthy, and getting a moderate amount of exercise.

I'm starting to feel a sense of peace about my decision but would still love to hear from anyone who wants to share tips, experiences, faith, or prayers!
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What happened: I was on my Triathlon bike doing an easy ride through my neighborhood just a few weeks after completing Ironman Texas (2.4 mile swim, 112 mile bike, 26.2 mile run). A driver on a side street pulled up to a stop sign but didn't see me and pulled out in front of me. I tried to make a sharp turn alongside her but fishtailed and went into the side of her car with the left side of my body at about 17 mph.

I walked away with a headache and a whiplash, a sore shoulder, and some bruises but was counting my blessings. I did several months of PT for my shoulder and neck, and I still had problems with headaches, neck pain, and dizziness. My PT insisted I be evaluated, and I was diagnosed with a concussion. I was still in denial, but then I transferred to a vestibular/neuro rehab specialist and learned that my eyes weren't focusing properly (nystagmus, convergence disorder). I was discharged from that PT on June 10, 2014 - exactly one year after my accident - because I was no longer making "significant progress." I did more PT for my neck/shoulder, and on Dec 16, 2014, I had shoulder surgery. I'm coming to terms with the fact that I might never do another Ironman, but I'm not giving up on returning at some level.
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Old 12-01-2014, 02:09 AM #2
russiarulez russiarulez is offline
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I can only relate my recent ear surgery experience where I didn't have the general anesthesia, just what they call the "twilight" anesthesia.

I've felt very nauseous and dizzy right after, but that was expected since they were messing with my inner ear. Pretty much slept for two days after that coming off of the drugs I guess.
Had a hard time standing up as I've felt like I'm going to pass out with some tunnel vision coming in. Basically for two or three days I would only get up to go to the bathroom and eat, and spent most of the time in a recliner.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 12-01-2014, 05:44 PM #3
PCSJourney42 PCSJourney42 is offline
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I had should surgery post concussion. Be careful while on narcotics. I have vestibular damage, and I was black and blue from walking into things, extreme nausea.

Be prepared for difficulties, however, not everyone is the same. This was just my experience
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