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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-03-2014, 01:20 PM | #1 | ||
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Legendary
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If you can find a good concussion specialist, there is no reason to wait. She needs a serious evaluation. The neuro's 'three weeks' is just a shot in the dark. Generic neuros are usually lousy with concussions.
Read my post on this page. It has lots of information collected over the years. http://neurotalk.psychcentral.com/thread181974-11.html
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 Last edited by Mark in Idaho; 12-03-2014 at 01:45 PM. |
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12-03-2014, 01:43 PM | #2 | ||
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From my experience a regular neurologist is clueless about PCS.
Unless they see some evidence of brain damage/serious neurological issues, they won't do anything. Mine prescribed me sleeping pills and send me on my way. After a couple more visits I stopped going to see her and found other doctors on my own that I thought I needed to see. A friend of mine who is a boxer had similar experience here in town when he struggled after his last concussion for several months. Unfortunately in AK we don't get too many options for good doctors, and it's not like we can just drive to another state.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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12-03-2014, 02:52 PM | #3 | ||
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Ok I got her in with the head concussion Dr. Fri. I am mad at myself for wasting all this time. I feel responsible for not acting faster. I kept thinking she would get better but she never has.
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"Thanks for this!" says: | hockeymom1998 (12-03-2014) |
12-03-2014, 08:01 PM | #4 | ||
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Legendary
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Don't blame yourself. You got a lot of bad advice from the school.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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12-05-2014, 08:25 PM | #5 | ||
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Have you heard of exotropia or wall-eye? The neurologist wants an MRI and to see a vision dr. And a neurologist appointment. I am very concerned. This dr said no tv and no computer where the other neurologist said watch tv. Confusing?
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12-06-2014, 11:03 AM | #6 | ||
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Quote:
I have not heard of exortripia.. The normal treatment is no / limited screen for the first 6 months. This gives the brain time to rest and heal (my treatment plan). The rehab starts after that with a slow increase in activities (my treatment plan). This the treatment plan that the doctors gave me, your doctors would give your daughter a plan for her current state. |
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12-06-2014, 01:50 PM | #7 | ||
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Legendary
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They mention exotropia in this article I had saved.
Post Trauma Vision Syndrome: Part I By William V. Padula, OD and Stephanie Argyris, OD http://www.neuroskills.com/brain-inj...syndrome-1.php |
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12-08-2014, 06:17 PM | #8 | ||
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Hi msnyder- sorry to hear about your daughter. As another newcomer to this scenario I now realize this needs much more awareness and less pressure to return to school athletics.
Found this from a link in Lara's post: http://www.strabismus.org/intermittent_exotropia.html My vision is a mess as well -- at least your daughter has youth on her side...good luck with the appts & keep us posted. Grace |
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"Thanks for this!" says: | Lara (12-08-2014) |
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